Diabetic children

momof2diabetics
By momof2diabetics Latest Reply 2012-10-20 21:31:33 -0500
Started 2009-09-10 02:06:33 -0500

Hello,
I am new here and just putting myself out there. Anyway, I have two type one diabetic sons. The oldest is 12 the other is nine. The 12 year old was diagnosed at 4 1/4 years old, which was the most devastating thing we had gone through. The 9 year old was diagnosed at a little over five, which again was devastating but at least it wasn't new to us.
They are both doing pretty good, now that school has started I worry about lows though. The staff at both of their schools seem pretty on top of things which so far I'm happy with.
We try to make them feel as "normal" as possible, but they still feel like people notice everything. They hate having what they can eat limited, and of course they aren't fond of shots, but they are used to them.
Anyway, if there is anyone out there that is/has gone through this with kids and want to talk get back to me, it's nice to have someone to talk to that understands. My husband is here for me, but doesn't really help manage any of it.
Thanks for listening,
momof2diabetics


17 replies

mommy1956
mommy1956 2012-07-06 20:53:08 -0500 Report

I am wondering about when my child gets older. She is 6 years old with type1 diabetes. She was 5 when she was diagnosed in january this year. We have a family history littered with type 2 diabetes, and I knew how to deal with that, but when they put her in ICU , and said "I would be giving her shots for the rest of her life, I just wanted go back in time; and take it all away." Her blood sugar was 988, they said if I had waited any longer she might not have been alive the next morning. I just wondered if any one was having problems with seeing things crawling on them or around them. In the hospital they called it ICU trauma. What are some future issues with girls that they often dont tell you about at the doctors office.

Turtle
Turtle 2012-10-20 21:31:33 -0500 Report

WOW!!! 988, bless you and your child. It must have been very scary at the time. It is never fun to have a sick child. I believe from my past experience as a mom, the best gift you can give your ill child is lots of love, taking time to read to them, even if they can read, some of their favorite things. When diet obviously has to change, it is terrible for the child, but as you begin to introduce new healthy foods, sometimes it helps to have them go grocery shopping with you and watch you fix it and eat it with them.

J Kate
J Kate 2012-07-03 10:50:09 -0500 Report

Hi, your story is very similar to mine. I have two type 1 boys. One was diagnosed at 4 the other at 23 months. Both diagnoses were devastating, but as you say- the second time we were used to it.

Lows were always the worst part for me. I was in charge of the diabetes care at my house too. Getting the boys a pump was the best decision I ever made. The nasty lows got farther and fewer. Very grateful for the technology. Diabetic camp was another great thing we added in. My son said it was the first time he didn't feel alone and like he was the only one.

Best of luck to you.

gbc43
gbc43 2012-07-03 11:07:25 -0500 Report

Diabetics lead a long life now and can do just about anything. Like any sickness there are things you need to do to stay healthy . Cry not for me because Iam better off than some others.

Caroltoo
Caroltoo 2012-06-11 16:02:24 -0500 Report

Can't answer any of the big questions like "Why my child?", but I'd sure like to express my admiration for all that you, as parents of diabetic children, do for them. Without you, they would not be here; with you, they can have an increasingly normal life as you teach them how to care for and about themselves. HATS OFF to all of you!!!!

Candice79
Candice79 2012-06-11 13:24:56 -0500 Report

Hi my daughter is 3 1/2 she was dignosed with type 1 Diabetes in December. It's been 5 mos now and it's still really hard to deal with. It breaks my heart everyday to have to give her a shot exspecially when shes saying mommy I promise I will be a good girl don't give me a shot and i try the best why I can to exsplain to her she is a good girl, but the shots are what keep her healthy and keep her out of the hospital. I have 2 older girls 15 and 11 no Diabetes with them. it's just so hard because my daughter Aly also had craino surgery at 5 months so she has been through more than most adults have been through in her little life. She is a fighter and is a very strong and special little girl. I often wonder why God choose her for this, but I know he has a reason and has a purpose for her I just can't help but wonder why her as I'm sure all parents of Diabetec Children wonder. I can't imgine having two with Diabetes I didn't know hoe you do it, but I guess because as a mother we do anythng for our kids and we just take it one step at a time and day by day to get through it. Any advice and help on how to get my 3 year old not to constintly get onto food would be greatly apperciated. I'm new tot his site just joined today.. Thanks Candice

Caroltoo
Caroltoo 2012-06-11 15:17:40 -0500 Report

Welcome, Candice.

Re. how to not get into food: have you tried cupboard and refrigerator locks? She may be bright enough to get around them and you would need the older children to be onboard with the need to use them. Three is an exploratory age and they aren't big on reasoning until about nine, so this may be a time to explore various ways of physically restricting access as well as rewarding behaviors that you want to see with stickers on a chart and lot's of verbalization of praise.

Turtle
Turtle 2009-09-27 22:55:44 -0500 Report

I do not have any diabetic children. I was hypoglycemic as a child. I was always trying to trade stuff at luch for the stuff I was not supposed to have. Little did I know then that the staff was reporting this. I did not want to get sick, I just did not understand what I was facing.

I am t2 now and I would be happy to be your friend if you want.
Take care,
Turtle

Dina Martin
Dina Martin 2009-09-23 14:56:27 -0500 Report

I have a son who is type1 since he was age7 and is now 22-23 next month in college, works and plays in a rock band at local taverns, festivals and benifits. He has lots of friends a overall happy, fun person. We have had some challenges along the way with attitude of some. Other kids are the best;-educate them let them kown about it you'lI be surprised at how interested and protective they will be and when your kids are away from you and playing with their friends you know there is another set of eyes there if something was to happen. A cell phone also adds same sercurity Kids do not fear what they know about. I believe diabetes is what he does not who he is. He played alot of sports and other activities. School was difficult he was a and still is a great student the other stuff he also exceled at. I believe some of that has to do with a regermented life style that as a person with diabetes has to live but something all childern could benifit from. There were those negitive people that made him feel he was in the spot light because of the diabetes and at times it was a challenge. With school nurses or teachers that made issue of it to stimulate their own self gradification. Beaware of those people they are in small # but can cause a snowball amount of stress to you and your child who does not need to have in their life. They do not just take diabetes to school it goes everywhere they go it is part of their everyday life your child manages to survive with out them making through the weekend and school vactions. I once had to say that to a school nurse. It is our childerns childhood …life is about them diabetes or not. Do what ever you have to to keep that normal so they do not miss out. My son played football from age 10 to 17 and was quarterback because of them having restrictions I had to get a Doc. order that he can play then go to a board meeting it was required I stay at every practice and game or they were not going to let him play. We had a school nurse when he was in the 5th grade that wanted him to have his lunch in her office and not have recess she also refused to let him do his own shots or prick his own finger that he had done himself for 3 years already at the time, she felt she should do it. I had to have a meeting with the school district and a doctor order for her to back off. I kept it among adults as much as posible and seeked help and did what I had to do to just let him be a kid.

John Crowley
John CrowleyCA 2009-09-16 12:09:57 -0500 Report

I hear you about your worries sending your boys off to school. We have never really had major issues at school. But that's partly due to my wife being a very involved volunteer at the school. So we know the staff quite well and we've always been able to get any help we've needed.

I do remember one time when my son was in the office to test and take his shot before lunch. He tested and saw that he was low. As he was trying to figure out the best way to handle the situation, (do I go eat lunch then come back and take insulin later? etc), the secretary told him to just go ahead and take his shot! He looked at her and said, "What so I can slip into a coma right here in the office?" She was stunned.

I was really glad that my son felt confident enough to respond like that.

Troy's Mom
Troy's Mom 2009-09-16 02:40:12 -0500 Report

Hi, my Boy Troy was diagnoised last year. He is two. I am so sorry to hear that both of your boys have diabetes. I have an older boy, 4 years old, and I check him every once in a while. We probably share a lot of the same worries. My husband is a great support as well, however I do most of the checks and administering of shots. I am lucky to be a stay at home mom and that gives me the ability to "try" to keep things under control. But we both know how hard it is to keep "it" under control. Sometimes I think under control is a myth. You must have your hands full. Are the boys using the pump? It's really late here but I just found you and will check back in tomorrow. I haven't met a lot of mother's of diabetic children yet. Wow two boys…God bless you. Troy's Mom

Anngelia
Anngelia 2009-09-16 12:17:29 -0500 Report

This group (diabetic connect) is a great site and full of information. But if your looking for a site on parenting I found a yahoo group, one is diabeticmoms and I think there is another one called 4Rkids. You can probably find a lot of information and support at these sites as well as this one.

Anngelia
Anngelia 2009-09-12 21:00:26 -0500 Report

I was dx'd at the age of 8. I never tried to hide it. I figured I didnt ask for it so there was no reason I needed to hide it. It was just a part of life. To this day I still dont think it is the end of the world. It is just a part of my life. Try to be as open and honest with your sons as you can be. That will give them an open door to be honest with you.

Crashnot
Crashnot 2009-09-11 08:25:47 -0500 Report

I became diabetic when I was 11 months old, so understand the feeling of being the "odd guy", especially since my school was small (45 in my class) and EVERYONE knew what i had. That was actually a good thing! But it doesn't make the child feel much better. There is no quick fix for this. But you can help them keep things in perspective. If you have a good speaking relationship with them (I have a 5 year old, he can be challenging!), find a quiet time to ask them if they have friends who are challenged by classes in school or physical activities, and then point out that those are things your boys have a handle on that the other kids have to work hard on too. Do a study of medical conditions people have that seem so obvious to them but you would never notice if you weren't told. And the bigger questions, are there kids in school with physical disabilities and how do your boys feel about them? If it's not good, challenge them to understand why everyone has to be appreciated for who they are and what they can do.

None of this is lightweight stuff! But their developing feelings about themselves and their place in the world is a long term thing. The more you can delve into how they feel and keep those feelings in perspective will let them fly as they grow.

I don't think I EVER had anyone make fun of me, but back then it was one injection a day (at home) and no blood testing. So my only obvious problems were passing out in class occasionally from not enough to eat. Kids are remarkable, if there is respect in the classroom, they just never bring it up again and it's forgotten! Hopefully they have a great school environment that will help you work them through this uncomfortable stage!

hbkunkel
hbkunkel 2009-09-10 03:42:00 -0500 Report

As a former teacher I understand what you are going through. Make an appointment to have a joint meeting with both teachers and perhaps the nurse and work out a workable plan to have be as normal as possible but still keep track of their diabetic needs. Diabetic kids in our school had specific times to go to the nurse and checked their bs. They weren't allowed to test in the classroom but you have to find out what the schol policy is. I hope you can successfuly work out a plan that is good for your sons and the school. Remember that you are the number 1 advocate for your sons.
Betsie