Dialysis and Disability

By MrsCDogg Latest Reply 2018-03-17 22:18:02 -0500
Started 2018-03-07 21:48:57 -0600

So, I had my first dialysis on December 22. It all went well until it didn't. My fistula stopped working and they weren't able to canulate me at all. I had a perma cath placed and they used that for dialysis and that went great. The surgeon re did my fistula and we are now using that for dialysis and it is working perfectly. I'm scheduled to have my perma cath removed near the end of April. Keeping my fingers crossed that the fistula continues to function well.
I got an attorney who specializes in disability cases and applied in December. I was shocked to find out that I was approved without much fuss. My husband applied for disability nearly two years ago and is still not approved.
I'm not feeling better but I'm still here. I can deal with it.

6 replies

Dr Gary
Dr GaryCA 2018-03-17 22:18:02 -0500 Report

Hi MrsCDogg, nice to hear from you. I am sorry you have had so much trouble in getting your dialysis routine underway. I hope you have an easier time ahead. Good to hear you got your disability so quickly. I so often have clients who are dealing with same problems your husband is, it can be a long and frustrating process. Please keep us posted on how you're doing!

suecsdy 2018-03-12 13:01:43 -0500 Report

I'm sorry that you're having to go through all this, but it's good to know that they were able to get things working for you. I'll send you some positive thoughts and prayers that everything will continue to be well for you and you'll be able to have the perma-cath removed. Can I ask how long you've been dealing with kidney disease? It's ok if you don't want to say. Less than 5 mos after the diabetes dx, I was told about the kidney disease. From GO to stage 3 in 5 mos. So far I'm holding steady, but the threat is always there. I just handle it better these days.
Transplant is a scary thought. I pray that you will have the strength you need to deal with this. Be well and take care.

MrsCDogg 2018-03-15 17:40:40 -0500 Report

I was diagnosed with diabetes in 2000 at the age of 39. I was diagnosed with kidney disease in 2014. Then in early 2017 I was told that dialysis was in my future and had the first fistula in May of 2017.

NewSong53 2018-03-11 19:05:48 -0500 Report

I'm happy for you that the disability was approved for you. And very glad that you made it through your ordeal okay and hope your new fistula heals quickly. Hopefully, something will occur in the future that will make it unnecessary to have dialysis — I've known a few people who had to do that and it is difficult sometimes to work out transportation and to wait for it to be over. Are you on a wait list for a new kidney?

MrsCDogg 2018-03-11 20:29:03 -0500 Report

I'm not really sure about the transplant idea yet. There isn't any guarantee that it will work properly even after the transplant. Plus I'd have to take anti rejection drugs for the rest of my life and those have a whole mess of unpleasant side effects. So, I'm not really sure that I want to go that route.
Thanks for the kind words. I appreciate it.

NewSong53 2018-03-12 11:34:53 -0500 Report

I certainly understand your concern about the drugs and the gravity of your situation. My thoughts are with you.

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