Artificial Sweeteners and allergies

ravenbat
By ravenbat Latest Reply 2018-02-24 01:38:45 -0600
Started 2018-02-12 21:47:13 -0600

I think I need to vent and if anyone has a suggestion, please share.

I was diagnosed as diabetic about 10 years ago. In that time my previous doctor and I discovered that I'm allergic to every artificial sweetener. Splenda, Equal, Sweet N Low, etc all cause large blisters on the inside of my mouth and my throat to close up. The diabetes nutritionist I was sent to said that I could use "real" sugar in moderation, which I do on occasion and I have also tried using Stevia. I started seeing a new endo recently (because the other doctor retired) and the first thing he did was insist that I cannot possibly be allergic to Splenda and the other sweeteners and that it was "all in my head." I left the appointment feeling like I wasn't listened to and that he honestly didn't care if I had an allergic reaction or not. This man is the only endo for over 200 miles and I do not drive. I'm not sure if I want to cry, scream or what.


9 replies

Gabby
GabbyPA 2018-02-15 10:49:31 -0600 Report

Wow, that is insane. I hate it when doctors do that. This is where you do what you know is good for you and move on. You may have to see him, but you don't have to change that part.

Does the Stevia mess with you the same way? Of course, cutting out all "sweet" can be ideal, but not always realistic. I use stevia because things like aspartame mess with me if I consume too much of it.

Things like agave and honey are options, but they are no less carbs and while the impact can be less than table sugar, it may not be a better option. I have found that liquid stevia with flavors such as vanilla can be less bitter.

58TH
58TH 2018-02-18 02:23:29 -0600 Report

I use Agave in small amounts, such as 4 oz in a gallon of tea, a teaspoon and teaspoon of margarine melted on my gluten free waffles. I have celiac disease, too.

Pegsy
Pegsy 2018-02-15 08:14:11 -0600 Report

I'm so sorry that happened to you! I would not want to return to that doctor either. Since there are no other Endo's in your area my question is, "Do you have to see an Endo?" Could you see a doctor who is Family Practice or Internal Medicine or even a DO? You need to be able to trust and feel comfortable with your doctor(s).

Conadyl77
Conadyl77 2018-02-14 11:17:45 -0600 Report

Sorry to hear about your trouble . Have you tried agave for a sweetener ?

ravenbat
ravenbat 2018-02-14 20:39:55 -0600 Report

I haven't tried Agave yet, it's on my list to try. I've used Stevia and it's not too bad, but it can be bitter if I get the amount wrong.

Thank you for answering.

Nick1962
Nick1962 2018-02-14 11:05:28 -0600 Report

People have reported having reactions to artificial sweeteners, although it may be a reaction to the foods you’re using it in also. Having food allergies myself, I know how that anaphylactic reaction feels and it’s not nice. Mouth blisters though, I’ve never experienced that.
There are artificial sweeteners in a lot of foods. Do you have reactions to those as well?
Have you planned to see an allergist to get tested?
I think I’d just stay away from them. Real sugar is fine in moderation, your meter will show you what moderation means for you.

ravenbat
ravenbat 2018-02-14 20:38:20 -0600 Report

I have to be very cautious and watch ingredient listings on foods. I'm also allergic to cinnamon, so I'm used to checking the labels. Any food with sucralose will cause the blisters and the swelling of my throat. The allergist I saw actually chuckled (and no, I didn't find it amusing) and said that they'd personally never seen a reaction like mine and that if I liked to breathe I should avoid the artificial sweeteners. I remember sitting there looking at this woman and thinking to myself, "Gee, you think?" The allergist referred to the blisters as hives. Either way, the blisters will pop after a time and just … yuck, to say the least.

Thank you for the reply.