Confused and Ignored

AbagailHide
By AbagailHide Latest Reply 2017-10-31 09:59:36 -0600
Started 2017-10-28 14:39:15 -0600

My name is Abagail, I am 30 years old and I was diagnosed with type 2 diabetes two months ago; however, the circumstances surrounding my diagnosis do not make any sense and doctors and nurses are ignoring it completely.
Once a year, for the past 15 years I have a physical with my family doctor, which includes blood work to check my cholesterol, iron, hormones, etc., and always my blood sugar. In the past 15 years, I have always had normal (even perfect) everything, the only anomaly that has ever occurred was slightly low iron, which my doctor assured me was barley noticeable. (I will note that 3 years ago I did have my gall bladder removed and my doctor informed me I had a fatty liver, but months later he reported my liver was normal). In August of 2016, my blood sugar levels for the A1c was 4 (around 80-90) and my fasting was 5 (under 100), yet in August of 2017, my A1c was 10 (in the 200’s) and my fasting was 15 (over 300). Moreover, I went to my doctor in January (maybe February) for an unrelated issue and he would not test my blood sugar because and I quote “it is impossible for you to have diabetes given your last test”, yet a few months later he tells me I have full blown diabetes. This to me makes no sense and all the research I have done indicates that diabetes is a progressive disease, but doctors and nurses just ignore me, tell me to take medication, and repeat the same lame excuses that do not make any sense for me and my body. (I would also like to point out that I had zero symptoms at the time of diagnosis, I know that it happens but I just wanted to include that).
Here is my background.
I do not have a strong family history of diabetes; my grandmother on my mother’s side had it, and my great grandfather on my father side had it, other than that nothing. My blood pressures has always been great (doctors have called it perfect) ranging from 100/60 to 120/80; never higher even when under duress. I have never had chronic pancreatitis nor any prolonged inflammation in my pancreas that could have precipitated this. I am a smoker but am working on quitting, and I rarely drink (maybe 4 glasses of wine a year). I am overweight and my diet is not perfect but I have always eaten plenty of fruits and vegetables and have always done my best to prepare well balances meals. My husband, who is 36 does have a strong family history of diabetes and eats far more sugar and carbs than me, has normal blood sugar. I will also note that in August 2017 I was diagnosed with GERD, which my doctor attributes to the diabetes.
None of this makes any logical sense to me and no medical professional will give me any information other than the standard 4 responses:
• “its genetic you would have gotten it eventually” (one nurse actually told me my sisters must have it and have just not been tested; they get tested every year as well)
• “you overweight and all overweight people will get diabetes eventually” (which I have found to be untrue)
• “you need to just focus on keeping your blood sugars low”
• “its possible for type 2 diabetes to happen suddenly” (however, I have found no scientific information in any country in the world to actually back this claim)
I am hoping that someone on here might be able to shed some light on what is happening to my body as no medical professional I have seen has given me any information that makes sense.
Don’t worry though, I plan on getting tested for type 1 and some other testing done (vitamin K deficiency, etc.) and my pancreas tested normal very recently but apparently my liver is a little out of whack and am getting retested next week. My doctor is retiring next month and I am waiting for the new doctor to get anymore testing done as my doctor won’t listen to me or even have a conversation with me about it other than take these pills.
Also, I am not on any medication right now, and have been on an extreme diet based off a new study and my blood sugars have dropped into the normal ranges 4-5.5 (70-100) (I have been testing 6-10 times daily, for my diet). I have also been engaging in extreme exercising; going on 10km walks, Aqua fit twice a week, and Zumba once a week and have lost 30 pounds. I will be talking with a nutritionist once this diet is over to discuss how to move forward safely as the diet is very low carb, very low calorie. (I am taking this seriously and making working on my health)
(I would also like to note that I am Canadian but have found that Canadian resources are not providing helpful information and have decided to expand into different countries that might have better information)


5 replies

MrsCDogg
MrsCDogg 2017-10-31 10:59:36 -0500 Report

It seems to me that you already have made up your mind about what you are going to do. Not sure what it is that you want from DC members.

Meredith B
Meredith B 2017-10-30 09:10:46 -0500 Report

I agree with all the comments below and empathize with your experience with non-supportive, non-helpful medical professionals. I found a great endocrinologist who has a dialogue with me and I fee is more of a partner in guiding my healthcare. Given your experience, you might want to find a good endocrinologist to manage your diabetes with you. They know more than general practitioners and, if you find a good one, can be a great resource.

Gabby
GabbyPA 2017-10-29 18:31:03 -0500 Report

For now, knowing that you have it and what you are doing to take action is great and a great start. Diabetes is very complicated and doctors try to minimize it to patients or even to themselves because to be honest, there are so many factors that contribute to it, it's really hard to "prevent" because onset is different for everyone. If I have learned anything, diabetes is a VERY personal condition.

In a year, a lot can happen and it may have seemed to happen overnight, but there was a whole year of things going on that could have just culminated in your 2017 levels. Doing research and reading even some of the crazy sounding things can give you more confidence when you approach your doctors. When I started citing other medical professionals and their studies, my doctor became more curious than confrontational and she told me as long as it is working for me, then she was fine with it.

Like haoleboy and Type1Lou, I also restrict my carb intake, and do intermittent fasting to help me. All of our journeys are different and that is what I love about it here, we can share things that work for us, and eventually you will find your solutions as well. It seems you are well on your way now, and that is fantastic.

haoleboy
haoleboy 2017-10-29 16:26:43 -0500 Report

nothing surprising here
understand they really do not know what "causes" type 2 diabetes so prescribing the best method for treatment is impossible. it is incumbent upon you to figure out your healthiest way forward.
many type 2's find some success with carbohydrate restriction (the amount varies person to person), weight loss/maintenance, exercise (both aerobic and anaerobic), and stress management.
but there is so much more
for me it is a concern that metformin was not prescribed given you A1c of 10 … but that's just my non-medical opinion.
you certainly have the right attitude
(be forewarned that it is possible your dietician may tell you that a very low carb diet is "unhealthy" and that the body needs carbohydrates … there is ample scientific evidence that proves that is just archaic thinking)
-
❤ eat as if your life depends on it
Steve

Type1Lou
Type1Lou 2017-10-29 14:00:30 -0500 Report

Diabetes manifests itself in many different ways. In some cases, (like mine) it can appear to come on very suddenly; with others, it has a much more gradual onset. Are you questioning the actual diagnosis of diabetes? One way that you, yourself, could verify whether your body does not process glucose normally would be to buy a meter and some test strips and test your BG upon awakening, at meal times and 2 hours after each meal. If your fasting (no food for 8 hours) readings are higher than 3.9 to 5.6 mmol (70 to 99 mg/dl) or your 2 hour post meal BG's are higher than 7.8 mmol (140 mg/dl), you have diabetes. Coupled with records about what you are eating, these records would be very helpful to your doctor in helping you both to determine the right course of action. It would also emphasize your commitment to do what you can to stay healthy. With the proper support, knowledge and the determination to make lifestyle changes, diabetes can be well managed. Congratulations for "taking the bull by the horns" and welcome to DC! Please let us know how you fare.