Diabetes Nightmare

bellamimi
By bellamimi Latest Reply 2010-01-25 22:47:14 -0600
Started 2009-09-06 14:53:22 -0500

I am in terrible control of my diabetes. I was first diagnosed with gestational diabetes 1988 when I was pregnant with my last child. During my pregnancy and for a while afterwards, I followed all the rules, watched my diet, walked every day, etc. I had a "honeymoon" period for about 2 years after delivery and was put on a minimal amount of insulin. I now inject 8-10 units of Humalog before every meal and 32 units of Lantus at bedtime. At times I do pay close attention to my diet, i.e., exercising limiting carbs, eating protein and veggies. However I do love fruit, especially the summer fruits of nectarines, peaches, cherries, apricots and watermelon (which, of course, send my sugar levels skyrocketing). So far, I have not experienced any problems (although I have been hospitalized with ketoacidosis due to illness). My last H1AC was 10.2 and my blood sugars range from 200 to over 500 sometimes. I want to desperately want to get my control back and don't really know how. I have been to a couple of those diabetes education classes but have been kicked out for non-compliance, even though as long as I was in the classes I tried awfully hard to due what was suggested. I don't want to say I don't care about my health, but I will say that I am in denial. I HATE HAVING THIS DISEASE. True, it is not MS, or cancer or AIDS but I tend to think I will be o.k. in the long run although I know that will probably not be the case. My husband was also a diabetic, had kidney failure and died of a heart attack at 45. If anyone has any suggestions on how I can improve I would appreciate. Thank you.


17 replies

bellamimi
bellamimi 2010-01-25 22:02:05 -0600 Report

Hello everyone,

Once again thanks for your all support and suggestions. It's been a while since I've been here because I was having terrible problems with the site, i.e., logging in and reading replies.

I am hapy to report that my H1AC has improved. The last one was 9.5. Still very high, but it is getting better. I have really started to count carbs and adjust insulin. Also, exercising 5x week, mostly to cardio videos for 30-45 mins, with a walk thrown in once a week for some outside air. Now, however, I experience more lows than ever! I'm still adjusting to eating an adequate meal before exercising. I haven't had a b.s. greater than 150 in a while. I'm extremely happy and feeling lots better (although I never really feel bad even with b.s. in the 300-400's. This disease is still and always will be the pits, though. Anyway, just thought I'd let you all know how I'm doing and offer any encouragement that I can. If I can do it, ANYONE CAN.

begonia
begonia 2010-01-25 22:10:40 -0600 Report

fabulous for you ,keep it up and before u know it you'll be lowering insulin and god forbid actually enjoying excerising everyday ,at the same time,let's be honest nobody really likes to have to excercise

Gabby
GabbyPA 2009-09-20 12:20:24 -0500 Report

Sometimes if you cannot be your own motivator, let someone or something else do that for a while. I know that I am ultimately responsible for what I do to my body, but knowing that I could leave my family without a mom and a wife is what often helps me focus. What would they do if I were gone? My mom has lost her husband and my brother....I would hate to see her loose her daughter too.
So while I don't always do an excellent job, I keep in mind that there are more people around me that need me to some degree. When I loose sight of doing it for me, I remember them.

The other thing I tend to do is play a game. I see my numbers as my tell alls. I know that I can get them lower and I do my best to "win" the game. Sometimes I get frustrated because it doesn't always play fair, but I keep on playing. I win more often than not now, and that gives me the inspirations and the drive to keep on winning. Once you win, you really hate to loose.

mamaoak
mamaoak 2009-09-20 11:50:33 -0500 Report

i eat fruits but in small amounts i love them as well hve to use self control and it is hard but it is better than not haveing any fruit is my treat have at breakfast lunch and supper like 6 grapes insted of 14 1/3 cup of blueberries rasberies black and straw berries any fruit just small amounts.

Jlynn
Jlynn 2009-09-20 10:28:09 -0500 Report

Hey friend, You and I are alot alike..I too started out w/gest. and then went undiagnosed for 2 yrs. at least, before a 3rd pregnancy landed me in ICU w/keta and my aic was 16 or 18, I forget.but way up there. And years later i still go from 500 plus to 33 in a few hours,and all the while Iam in a state of "denial" that this will eventually "get Me".

It is however becoming a painful reality,as a year ago or more,I started having neuropathy, in hands and feet.Now I can no longer tell when Iam low, I can be at 30, and still heading out the door to run errands..Its a scary place to be, especially when your mind is your worst, and most stubborn,friend!!
good luck to the both of us!! take care, it can only get better,if WE make it!!

Txchristi
Txchristi 2009-09-18 10:57:18 -0500 Report

Hi there. I do know where you are coming from. I have had diabetes for 15 years. I do try to keep my sugars under control however it does become very difficult. Not only is Diabetes a hard disease to deal with but an expensive one as well, especially when you don't have insurance. Like others have said, take it one day at a time. It is much easier this way. If you mess up don't get down on yourself. I mess up all the time. Learn how to adjust your insulin according to what you eat. It takes time but you learn how things effect you and what you need to do before you eat them. Don't deprive yourself. Just because we have diabetes does not mean that we have to be punished in all aspects of our lives.

Debe Pendice
Debe Pendice 2009-09-17 06:28:01 -0500 Report

You need to get this under control now. Blood sugars are extremely too high. You need to get it in control and get that A1c down. If you have to start over again today. See your MD. Get a dietitian consult and get a menu planner and try and stick with it. She/He will try and incorporated what you like to eat in it. Your definately need to go to diabetic class and also see if there is a support group in your area. I know I have been a diabetic almost 47 years now, and still try an attend a class every 2 years, may not need it but a good resherher always helps out. Please you need to get it under untrol before complications set in. I know our support group in my neighborhood is so involved in helping each other at all time.. Keep us updated…Debe

G4828
G4828 2009-09-07 22:18:34 -0500 Report

Always remember this…You have diabetes, IT does not have you !!! And don't let it. I have been type 1 since birth (46 yrs ago) and have had my share of hard times, we ALL do. I have been very blessed and I take care of myself adequately but could do better I know. The more you care for yourself the better you will feel and thus, want to live a full life. YOU have diabetes, IT DOES NOT HAVE YOU !

Hang in there ~~~

bellamimi
bellamimi 2009-09-17 00:54:21 -0500 Report

Thank you very much. After reading your response, I am doing much better. I am watching my bs more carefully and am walking every morning for 1 hour. You are right — I have diabetes, it doesn't have me!

kdroberts
kdroberts 2009-09-07 13:22:40 -0500 Report

When are you testing your blood sugar and what are you doing with the results? Fruit will raise blood sugar but there is no reason you can't incorporate it so that you can still control your blood sugar. Testing your blood sugar is important but testing it at the right times is critical. If you have the information about what a food does to your blood sugar you can start making adjustments so you are dosing your insulin effectively.

Jipwhip
Jipwhip 2009-09-07 11:32:53 -0500 Report

Just take one day at a time. Change one thing you do and keep doing the new thing. Then after this becomes habit change another thing and keep on doing it. This change won't happen overnight it takes time. If you fall down pick your self up and dust off and try, try agian and don't quit trying. You can do this. Just take small steps and you will succeed.

BLC
BLC 2009-09-07 11:21:57 -0500 Report

Gosh, your story sounds just like mine. My last A1cs have been in the 9s and 10s. I don't do to well at controlling my sugars either. It is mostly due to the fact that I don't have time to be on constant check of it, I am terrified of lows, and I don't like for people to know there is something wrong with me. I just want to be like everyone else. My sugars are between 200-450 most of the time. I, like you, love love love fruit. Isn't it funny how growing up as a kid they tell you fruit is good for you, eat lots of fruit? I am probably better off to eat chocolate than fruit! I don't understand why you were kicked out of diabetes education classes for non-compliance. Do they know how hard it is to be compliant with diabetes?!!! I just want you to know that you are not alone in this I face the same struggles everyday. Good luck. God bless.

tladybug77
tladybug77 2009-09-07 11:06:14 -0500 Report

I did this also, tried to look after myself but didn't really care and felt the same about the disease, but I have learned to live with it, I have had it for 45 years. I just recently went on the pump and have had better control than I ever have had. You might look into it. I understand your pain and hatred for the disease as I went through it also. I also have heart problems, neuropathy, high blood pressure, etc. so please do try to get your numbers under control and look into the pump, I am on the medtronic paradigm 722 and love it.

ellenl
ellenl 2009-09-06 22:53:02 -0500 Report

hi bellamimi my name is ellen i have had been a diabetec for 10 months and i wasnt told a whole lot abought this diabetys and i hate it to my blood leveles go from 275 to 500 and some thing .but i know win i get in the 400 becuse i start feeling bad and i was told o your sugar aint high enuf to feel bad thats from the doctor at the hospital i am sorry to babble on i just want you to know your not alone

Anonymous
Anonymous 2009-09-06 22:27:35 -0500 Report

I think it is too bad that you were kicked out of classes for "non=compliance". I challenge any of those that judged you like that to do what they were asking of you and then, when they failed as in all likelihood they would, to apologize. Whew! OK having vented my spleen about "non-compliance", have you tried making a plan for just one day and seeing how you do for a 24 hour period? Just start with one day, then reevaluate? I firmly believe we can do for one day at a time what we canot do for a lifetime.

Harlen
Harlen 2009-09-06 18:46:59 -0500 Report

that it will do you need to cover for them
I love them too and I have got to cover for them to keep me level
good luck

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