By harper Latest Reply 2009-09-12 18:36:17 -0500
Started 2009-09-04 17:50:34 -0500

I started with gestational diabetes when i was 25. I was told it would go away. I am 43 and still have it. I have always been on insulin. However i got up one 12 mons ago and decided I was not going to take anymore insulin I was done. I stopped eating carbs,sweats. I am only 125lbs and my aic is stll 13. i cant go back on insulin for the rest of my life. There has to be somthing else. Sticking myself everyday and checking my BS three times a day is just crazy. I have not told my husband i stop takine my insulin however sleepy all the time. I dont even know what to say to the doctor with out hearing this long speachWhat should i do?

13 replies

itssmee 2009-09-12 18:36:17 -0500 Report

Please get help!! I understand what you are going through. I was just browsing here (just joined) and was looking for some motivation for myself because I am going thru "diabetes burnout". I have been a ttype 2 diabetic for 10 years and also tired of the finger sticks and injections numerous times a day. I've been through diabetic retinopathy symptoms (thank heavens it went away when I tightened up my control), excess protein in the urine to where I was on extremely low protein diet for a year, open heart surgery (triple bypass 9 years ago). As I read your post I realized that as much as I hate this disease I want to live. And at this point the ONLY way is to keep tight control and keep the complications at bay. PLEASE talk to a professional who can help. At 43 you are young and have so much to look forward to don't compromise your entire future for a few finger sticks and injections!

alanbossman 2009-09-10 12:17:12 -0500 Report

Harper, I agree with every here. Dont stop your meds, I lost a uncle and a grandmother to diabetes,early in my life. As fate would have it I, too have diabetes type 2, i take one insulin shot a day, and meds to control my BS.

TopWrench 2009-09-06 21:21:28 -0500 Report

I definately know how you feel about not wanting to continue on with diabetes ruling your life but I feel that way for diferent reasons. I don't have any children so that doesn't really aply to me but I want to know how someone like myself who is 27 years old can make 35k a year and still not be able to provide for my wife and cover my insulin. I haven't been able to find any financial support for my insulin and rediculously expensive test strips unless I'm 65 and have medicare. I have no choice but to run a BS of 300 or more a day because I can't afford to keep it any lower. I refuse to die a slow and painful death and when the day comes will gladly face my shotgun. What is the hardest thought to deal with is what I will put my family through doing so, but it's a lot better than them watching me die in a hospital. If you can afford the insulin you have no excuse. The pain is nothing.

imsuzie2 2009-09-07 05:33:53 -0500 Report

Harper, I agree with everyone above, and let me add one more thing. It also sounds like you have depression…and maybe counseling will help you to adjust to your diabetes. Could be a chemical imbalance playing in with you…making it even harder to accept your diagnoses. Run to a therapist, it won't hurt, only help. Hugs, and I agree with Anonymous, check in with us and let us know you are ok. Now, go test, take your insulin, and have a healthy meal. Hugs, S2

imsuzie2 2009-09-07 05:42:56 -0500 Report

TopWrench…I take Actos, and the company reimburses me the $35 co-pay. Contact each of the companies who manufacture your meds and see if they have a help program. Here are some sites I got off the internet, don't know if they can help, but try each one!!!!!

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There were more, but you get the idea. I just typed in "help pay for medications" in the search. Let me know how it goes, and good luck. You need to test and take your meds!!!!!!!!!!!! Hugs S2

Anonymous 2009-09-05 13:35:31 -0500 Report

Harper - Please update us on your thoughts now that some have responded to you. I am concerned for you. You don't have to agree with any of us, but I sure hope you keep the communication lines open.

Jipwhip 2009-09-05 12:25:46 -0500 Report

I know taking insulin sucks, but if you don't you will die. Is that what you want to do? Think about what this will do to your family? And yes you not taking your insulin can lead to going blind, having amputations, kidney problems, heart attacks and a whole slew of other problems. So you have to ask yourself is a little bit of poking worth the effort. Please thing about what you are doing to yourself and your family.

sarah d
sarah d 2009-09-04 23:32:05 -0500 Report

Ask yourself one question…will my husband or my child blame themselves? Will they be able to deal with the false guilt that you gave to them because you are being selfish? I am on insulin four shots a day and I need to test my bs six or seven times a day. I know it's not fun. I just started on the insulin two months ago and I wonder how I will be able to do it for the rest of my life…but it is what God allowed me to have for a reason…maybe that is so that I could write this reply to you. What is God's purpose for your diabetes?

Turtle 2009-09-04 21:58:54 -0500 Report

I am not insulin dependant but I agree with what everyone here has said. I also agree with a little tough love approach.

What would you say if it was your partner or child who did not want to test and take med? Would you sit there and say ok kill yourself? I am sorry that is not what this is about. You have to want to live. Diabetes is not fun. It is a way of life. I will be your friend but I cannot be your life boat.

Anonymous 2009-09-04 20:53:20 -0500 Report

With tough love I say to you, OK, you think you can't take insulin for the rest of your life? You want an alternative? Quite frankly the alternative is to NOT take insulin for the rest of your life which will come very soon and with probably a lot of painful complications if you are Type I. I suggest again with all the love and support that I can muster in this kind of forum, if you are insulin dependent, get your head on straight. If accepting that giving yourself insulin and checking your blood sugars for the rest of your life is undoable, then tell yourself you will it do it for one day at a time to the best of your ability. When that day's sun has risen and set, be grateful that you awake to another day to give yourself insulin and check your blood sugars to the best of your ability for that new day. You will be doing what probably millions of diabetics have done before you. If you stay on this website you will be living with diabetes one day at a time with hundreds of people who love you, support you and are grateful that you are with us on this journey.

Harlen 2009-09-04 19:59:26 -0500 Report

Dont you wish to be there for your gand kids??? I have seen somone die from not taking her insulin she was my mom
first she lost a foot then the other one
and still would not take care of it
then she was going bined she cryed wht me o lord why me I looked at her and sed why did you do this to us we love you and need you and you are killing your self.
She looked ai me and sed she just cant do it she dide three month later she just didnt wont to do it any more
To this day I feal she cheeted us out of having a mom its up to you hun what do you think your man and or you kids will think of you ???
Please keep trying

kdroberts 2009-09-04 18:26:27 -0500 Report

This will sound harsh but you are hurting yourself. An A1c of 13 means that you will have complications soon, amputations, blindness, heart attack, that type of thing. So, you have to ask yourself a few things. Is it worth talking to your doctor about this or is it better to essentially kill yourself slowly and painfully?

The reason they give people with gestational diabetes insulin is that the oral medications can be toxic to the baby. However, if you are type 1 and it was just found out during pregnancy then you will HAVE to take insulin. If not there are a number of oral medications you can likely take. Also, blood sugar testing is essential to be able to control your diabetes. You say that you have cut out all carb and are 125lbs and still have an a1c of 13 then you will have to take something. It sounds very much like you are either type 1 or have impaired insulin production which means insulin. It is kind of annoying but I have to take 4-5 shots a day and I test 6 times a day and it's easy to work in and is pretty much pain free. I'd rather live with maybe 5 minutes a day total of injecting and testing than all the complications that come with uncontrolled diabetes.

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