Diabetes Forums

w8chd
By w8chd Latest Reply 2017-06-29 08:40:24 -0500
Started 2017-05-12 08:42:56 -0500

I just wanted to throw this out there. In an effort to enhance my knowledge of our illness I joined a support group on Facebook. I was also curious as to the likes and differences to DC. The likes were few, the differences were many.
I left the group two days later. They were not anything like the folks here on DC. They reacted negatively to ideas regarding alternative methods and ideas. I'm not trying to run anyone down, we all handle our illness as to how we feel is best for us. But those people were the doctors dream patients. They questioned very little and tried nothing unless their doctor gave permission. Lots of talk regarding dietitians and nutritionists and the worst of all, if it is in the ADA guidelines it is as good as gold.
Anyway, you folks here on DC are very supportive and informational. No one is judged for how we handle our illness. The responses are helpful and sensible and we can freely share different ideas. That's what it's all about. This is a great group here and I thank everyone for all the tips and nuggets of information.


13 replies

Dr Gary
Dr GaryCA 2017-06-22 13:33:34 -0500 Report

Hey w8chd, I totally agree, this is a really special place. People here really care about each other. And lots of empowerment here! So glad to know this is such a great resource for you.

Stuart1966
Stuart1966 2017-05-24 10:51:09 -0500 Report

Hello w8chd:
As you know, there are RADICALLY different diseases which have the same generic blanket. There are fundamental rules which none of us regardless of "flavor" should break. Type 1 and 2 have all kinds of "similar" and "parallel". But there is an ocean of wiggle room with Type 2, and most of the other classifications (all?) have which TYPE ! does not possess

We can debate the "brilliance" of a particular eating plan/nutritional approach or its lack, but over the long term, we must all balance the portions against our insulin usage AND our physical activities.

Mess that balance up, particularly the insulin piece of the math, and it can have severe, possibly fatal consequences. It does not kill us often, but just once is one time too many.

As someone whose body requires ONLY injectable insulin, its difficult enough to calculate, but toss in somebody's ~Avocado diet~ silliness (sic. to cure whatever side effects/symptoms) and there is unfortunately too much of what PT Barnum called ~hokum~.

There are basic fundamentals of diabetes that cannot be ignored, not by Type 2's, Type 1's, gestational, LADA… as raw beginners, newly diagnosed, we start someplace, and carefully, slowly tweak what we do and use. The more experienced the doctor/teacher the better. Diabetes oes not suffer pretending we are not diabetic, Nor will it tolerate if we ignore the fact we have the disease
for very long. Too often, or just once if the stars align correctly… when that happens any of us get turned into char-broiled toast by our disease. Hopefully we learn, and make a change or two

As someone with far, far more than a day or two riding this dragon, the sole thing I need a doctor for, is their signature. I do it all myself, and only let them observe, tweak my formula(s) when I have troubles that I cannot solve in spite of my meaningful experiences.

As a T1, I am forbidden all kinds of "alternatives" because they would literally kill me, if I were to use them in place of injected insulin. There are excellent reasons lots of "alternatives" are passionately discouraged. Take your pick, there are hosts of them. As diabetics we have to choose wisely AND with more than a little skepticism towards most of it.

The rules for you are not different than, her, or him, me or the next hundred of us. There are basic rules that have zero to do with me as an individual specifically.

ADA guidelines ae a place to start. Gotta start someplace. Ok so they are heavy with the breads, the carbs… you work from there IMV.

What kids of alternatives you considering???

I surely could be mistaken, but only when I'm awake
-S

w8chd
w8chd 2017-05-24 22:59:44 -0500 Report

Did I not say "we all handle our illness as to how we feel is best for us." I am merely pointing out the differences in the two support groups. Here on DC we can agree to disagree and move on. Those folks were simply rude.

WASHED OUT
WASHED OUT 2017-05-18 08:22:05 -0500 Report

w8chd : I am certainly glad you like our group, we are unique here. Most all you see is people sharing here are our personal techniques that we have done ourselves that work. Many of these things are not according to what doctors recommendations would include because much of the ADA guidelines and diets are wrong on several things. We are here to help you treat the cause of your problem and not just the symptoms. Doctors tend to go after treatment to the symptoms rather than isolating and treating the cause. Please stick around and learn and share with others in our group, there are many success stories here among us. The experience is unbeatable here and proven by our own medical records and doctor's reports.

cmr55
cmr55 2017-05-17 18:24:20 -0500 Report

Yes a great group of people here. A lot of us take different path with this disease. We have all learned from each other. Some things work for one person and not for others. I have been on this site for two years and most people are positive with new ideas. When first coming to this site I learned about Fasting and wished I new about it 5 years earlier. So sorry the other site did not work out. But we welcome you here. Carol

Mcamk
Mcamk 2017-05-16 20:50:39 -0500 Report

This has also been my experience. Nothing like this site anywhere. This group is like warriors!

NewSong53
NewSong53 2017-05-15 10:34:09 -0500 Report

I've discovered the same thing about most other sites. You're right — we can't be sheep. We need to be gazelles!

Gabby
GabbyPA 2017-05-14 10:04:26 -0500 Report

I have heard similar things. Not sure why it's that way, but this place is certainly very special. Glad you found us and hang around. We all grow from interaction and expanding our ideas and ways of thinking.

Type1Lou
Type1Lou 2017-05-12 12:50:02 -0500 Report

I've left several Facebook diabetes groups because of some of the aggressively unhelpful responses posted…not a group I wish to participate in. We can disagree without being disagreeable.

onafixedincome
onafixedincome 2017-05-12 08:54:29 -0500 Report

Thanks for posting this…I was incredibly lucky to find this place, and now I know it for sure. :) :) Sad and scary to hear that not all forums are similar.

I think one of my favorite things here is not only that we can offer/receive advice, but that there are those who don't hesitate to tell you you screwed up—followed by CONSTRUCTIVE feedback to help you not do it again. :)

My kind of place, and thank you all.

NewSong53
NewSong53 2017-05-15 10:36:25 -0500 Report

I agree! Sometimes I don't like the responses I get — not because the're wrong but because of the way it came across — but I always think it over later and more often than not look into it and learn they were right. (I'm pretty hard-headed that way.)

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