Get help for YOU, not the average diabetic

By GabbyPA Latest Reply 2014-11-28 13:38:24 -0600
Started 2009-08-04 17:55:03 -0500

As I was leaving a comment on another discussion, I realized that too often, we accept advice from our doctors that is based on the "average" diabetic or the "typical" symptoms. We should never settle for this. While I know there are many things that are starting points, we have to make sure that our health care team understands that we are individuals and require individual treatment. I recall blanket statements given to me like, "all diabetics should be taking this pill or doing this thing…" It made my skin crawl, but I didn't realize why until this concept hit me.
What kind of tips do you all have to getting personal care for your illness? How do you get them to see you as an individual?

18 replies

TsalagiLenape 2014-11-28 13:38:24 -0600 Report

By showing that I am not ignorant of my disease nor am I lacking in knowledge that can help me and others that have Diabetes. Like I never had signs of being low or severely high in sugars but now with the Levemir flex pen I know because of what I have read here. We all share. We all care and Thus we are a Family of sorts. The ones who will cry with and for you. The ones who will find useful info for you and least but not last, is the ones who will help us keep accounted for ourselves aka butt kickers (like I said I another post today). So can we all say with Happiness Thanks and much Love This is my Diabetic Family! :) So we can all get ready to formulate for the New Year our Diabetic Masterpieces we hope to attain for the following year? Just a thought. Hugs

Kim-islet transplant
Kim-islet transplant 2010-06-10 12:00:31 -0500 Report

The bottom line - it is up to each diabetic to effectively manage the disease. Sure, the Dr's provide the medication and tests. But noone, not even the Dr's, know our bodies better than we do.

I remember the guilt put on my when I was young - before these types of support groups were available. I was in my teens and had all the hormonal changes that happen which can raise BG levels. My Doctor would tell me it's my fault my BG's were out of control. I realize things have changed since the 70's but still it's up to each of us to manage for our diabetes. Through a lot of research and many years of waiting, I was able to go out and find a functional cure for my type 1 diabetes.

Miminv 2010-04-01 05:03:22 -0500 Report

I trusted my old doctor for over 10 years. I didn't stop seeing him after he almost killed me by leaving me on a medication that was making me swell three times my legs and feet size for three years. It was when I drove my mother to the ER and she almost died that I stopped seeing him. My mother kept going in to see him because her head was itching for over a year(she didn't tell it was this long at the time). She finaly came to me telling me she didn't know what else to do because now she was having a hard time breathing. I told her to see a different doctor. She finaly agreed to see a different doctor and the doctor wanted to send her in a ambulence but my mother didn't want one and made me drive her(this will never happen again, I told her that). It ended up she was anemic and in the end thay found she had Graves disese. They had to bring her back twice as they were giving her blood (she was a 7, most people are a 14 in amount of blood in the body). The point of this story is that I grew up were doctors new everything and thay had to know more then me, right. This is not true as I have figured out. They get up in the morning and have to breath just like everyone else. And they don't have all the answers and some of them don't even ask the questions. We are all different. Some drink pepsi and other coke and yes dr. pepper too. The more information you get the better off you are about the medication you are getting. It is also good to check online to see what kind of side effects other people are having. Don't just rely on the list of side effects that you get with a medication, go online and find out the most recent studies. I finaly did this with the actos I was on and found that older people(70 and up) were having the problems I was having in my fortys with the swelling, they were also dying from it too. I stopped taking it and the swelling slowed down to about a forth of what it used to be.

GabbyPA 2010-04-01 09:08:14 -0500 Report

My mom also used to take actos and she suffered so much with swelling of her feet and lower legs she had to get a special cream made for her skin. It was awful. When she encouraged her doctor to change her over to insulin...bam! Swelling all gone, she feels better and has better control. Though her control was good before. She is so glad she changed to insulin. She is the one who had to suggest it to her doctor, he was hesitant, but did it. Best thing she could have done for herself.

Miminv 2010-04-01 09:45:46 -0500 Report

I also changed to insulin. My doctor said no to stopping the actos but I checked out enough resources and took myself off of it and changed doctors. This old doctor put me on water pills and stocking and special fitted stocking but kept me on actos as if it was the last med for me to take. The swell did go down alot but my legs and feet were so used to it that just going to the store now makes them swell.
Thanks for sharing and making me feel like i am not the only one who has gone through this with the actos.

Miminv 2010-04-01 10:18:18 -0500 Report

I found a article in 2005 stating that doctors in a hospital had figured out that the actos was the cause of the swelling and the heart attacks of patients that they were tending too. Sorry I don't remember the hospital or the website, I just know it was long before these other stories and studies came out. I was searching for the reason that my feet and legs were swelling. Before actos my legs and feet did not swell. Unfortunately the old doctor had me conviced that he new best and the it was the diabetes.

MAYS 2010-03-31 13:47:30 -0500 Report

Do your research, stay on top of the latest information and don't be afraid to talk, ask questions and give a little advice, don't be a medical conformist, you're an individual with a disease that is in a way unique to you, what applies to someone else may not exactly apply to you !

Meds work in conjunction with you, all meds are not necessary always remember that, do your research !

" Mays "

Pat Roth
Pat Roth 2009-08-09 23:39:42 -0500 Report

I was watching Fox news tonight with ex, governor Huckabee and a rep on the new health care bill. He stressed that these days, you HAVE to take a more important and active manner in your own medical care! So much ground was covered, but I do remember that they discussed some of the very issues of coverage that you all have mentioned, so we have a wise group here, I would say!

I so wish that I could remember more of the specifics, as I wanted to share them with all of you, but I just can't think!! Did someone else watch it and can report to us?
I get so aggravated with myself, I should have written a few notes, I am tired and not tracking too straight, just the normal tiredness—-but guess I had better go to bed!! That sounds like a reasonable thing to do when one is tired, doesn't it? Thank Heavens for my meds that allow me to sleep—-! Good Night ALL!! Pat R

GabbyPA 2009-08-05 14:03:13 -0500 Report

You are so right on all points. The doctors have to know all kinds of diseases, we have to focus on our own. So yes, we have to be in there involved and make a stand. I know that my doctor doesn't "blanket" me anymore. Now that he knows that I am doing all kinds of things for myself, following his advice, but also not just taking for granted that he is the only voice of reason. We are developing a relationship and it is making a good difference in how I feel about the care I get.

Thanks to you for your input, I look forward to hearing more.

Antique-Dave 2009-08-05 13:35:08 -0500 Report

I really like my family doc, he listens and talks to you as an equal, answers my questions and if he doesn't know the answer says so, always asks what I think or feel about whats going on.

BUT I don't think he is overly informed about diabetes, take your meds, eat lower carb and exercize is about the extent of it. Diabetes is an epidemic of one and with us all being so very different it has to be hard on the docs to try and figure it out for us. That is why I think it is so vitall important that as individuals we take charge of our own treatment and do the legwork.

Our docs don't have the time to do the detail work that we need to figure out the best approach for our individualized disease.

I don't see most diabetics doing that, they take their meds and eat what they want and then cry when the complications set in, thats gotta drive our docs a bit nuts too. knowing that we can have a positive impact on our health but knowing that so many don't take the time or care until its too late.

GabbyPA 2010-03-31 13:34:11 -0500 Report

Yes, we are the ones who are ultimately in control. Meds can only do so much if we are not taking action. I go to a clinic and I don't expect my doctor to really do as much as he does. I am so happy with him. But he does a lot for me because I come in with my own questions about things I am learning and things I would like to try. We have to be active or we will loose.

kdroberts 2009-08-04 18:42:52 -0500 Report

Be firm with your doctor and tell them what you expect out of them. It's not so much that doctors give generic advice because they don't want to treat the individual it's that most diabetics WANT the generic advice and don't want to put in the effort or time.

I take a list of questions for my doctor and don't leave until they are answered to my satisfaction. If he suggests something I don't agree on it's up to him to make me see the benefit of what is being suggested. He knows how I want to manage my diabetes and so does his CDE and I think they appreciate the opportunity to use what they learn and pass it on to me. I even took him a written test about insulin one time, got to keep them on their toes too!

Pat Roth
Pat Roth 2010-04-01 10:53:04 -0500 Report

A difference in Drs—-my former Dr would go off half-cocked if I asked "Why", would elaborate with a college info answer, instead of a short, reasonable explanation that I could understand. The more I tried to reason with him, the worse it got.
Then this new Dr over the past 3 years, used to treat me the same way, but for whatever reason—maybe the way I asked—he started telling me simple explanations and I said, "Good, I like to know the whys—-" and he didn't seem insulted and disrespectful, like I was trying to put him down—-but eagerly explained the difference between the Ganglion cyst that I had had in my left wrist, compared to the sebatious cyst on my back—a stopped up pore that contains the oil/stuff that is produced under our skin—he stuck it with a needle, twice in trying to find the right place, then gently squeezed out "goop"—said it would probably fill back up and needs more time for him to cut it out and get the lining of the sack—-I told him thank you as I really like to know—and it was treated with respect, NOT the usual questioning his ability—or whatever was the problem—-all yesterday. He also was the one who got shocked when they accidently found my malignant kidney, so guess he sees me in a "new light" and not just a complainer! Sigh—sad it took such a traumatic experience to open the doors to understanding, but it happens.

So, it depends on the human equation too——I now "click" with this new Dr—PRaise the Lord!! Pat Roth

Miminv 2010-04-01 11:37:58 -0500 Report

Last week my new Dr looked me in the eye and said, "I thought I was going to see you all the time". I hadn't seen him for six months, he smiled and we both laughed. It took a year but he finaly figured out that I want to be healthy and that my whole life can be stripped down to just about nothing (and it has during the last two years) and I will come back fighting.
It feels good to have a real Dr.

mamaoak 2009-08-04 18:25:55 -0500 Report

That is a good queston. guess you have to have the right dr. i was sure prised on some of the things mine said to me. But i use my owen intelegence and sifer what they say and do. go one line look up information as well. I found this site it helps and books about diabtics. an other site i found you coould down load a book it was great. hope this helps

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