How long will I live?

AmandaJ - 53769
By AmandaJ - 53769 Latest Reply 2009-09-27 01:48:34 -0500
Started 2009-07-27 19:48:17 -0500

Hi, I am a 32 year old woman I'v had diabetes for 30 years now (type 2). Even though I have had this all my life it seems I never get used to it, I'v always taken shots two a day! Never miss them, my blood work has always been ok. Three months ago I decided I was going to go get some brekfast for the family, I had already taken my shot when I got in my little Jeep Wrangler, so half way there my sugar bottoms out with out no warnning at all, I ended up driving passed out and lucky I didnt get myself killed, I had ended up in a ditch with my little jeep on its side. No big problems from this but it did lead to me having lots of test done and thats when my life fell apart. I was sent to a kidney specialist, to make a long story short they told me I have Type2 diabetes kidney disease kidney failure, it started out my kidneys was fuctioning at 43% than a month later it was down to 33% they did the blood work again and took ultra sounds of my kidneys and told me I have a huige mass on my left kidney. What in the world am I to think of all of this I'm only 32 and I have a 13 year old son. I DO NOT WONT TO DIE NOT NOW OR THE FEW YEARS, I wanna see grand children when I get old. Well I have changed alot in the last few months and it all started with my diet no salts no sodas nothing out of a can! Any advise is welcome! Thanks Amanda

17 replies

Turtle 2009-09-27 01:48:34 -0500 Report

Hi Amanda,
I have not had to go thru this. I have t2. I just want you to know I am here to be of support for you if you want. A real good person, besides your docs to talk with is right here on this site. Her name is Pat Roth and she has posted a lot on this subject. She's good people. Sorry about the poor English but that's how my mom says it when she likes someone a lot.
Take care,

imsuzie2 2009-09-26 19:52:49 -0500 Report

Amanda, what about the mass??????????? What is being done? my husband had a mass on his right kidney they found by accident, and the kidney and malignant mass were removed 2 months later. They were able to remove the kidney before the cancer spread, so he was damn lucky!!! I hope your doctors have addressed the mass as well as the kidney function…if your functions are being monitored regularly, that is good. My husband's urologist said as long as his remaining kidney functions at 17% or better he is fine and we would not even need to think about transplants unless the function falls to 4%. 33% is still a long way from 4%, so start to think more positively. I know you are scared, any of us would be in your situation. You haven't posted again since you opened this discussion…what is happening?????????? S2

KarenH 2009-09-26 19:42:06 -0500 Report

It's been a while since you first posted this. I hope you are doing well and enjoying your son. My prayers are with you…Karen

AGreen 2009-09-26 18:58:57 -0500 Report

Amanda, God Bless you and keep you well and healthy for your son and grands. I read all previous replies sent to you, so loving and kind, brought tears to my eyes, and pray for you and all who replied, who are also sick with Diab, and other illnesses.I have T2, since 5/09, accompanied by Hi Blood Pressure, and just starting to learn all about them, how to take care of my whole body, weight, diet, exercise, emotions, etc. I have always been very healthy all my life, til now. But after reading your and others histories, I will stop pity party, and do all I can to help myself and enyone else I can too. There are so many needs, but Prayers if nothing else, God is listening! Bless you all. Angela

P2putt 2009-08-14 07:46:25 -0500 Report

Amanda, I am so sorry to hear of all your misfortune.You are so young. I don't know what to say other than my prayers will be with you and I can't imagine what you are feeling. May the Lord bless you and keep you,may He let His light shine upon you and give you His peace. Pete

PAL12367A 2009-08-13 13:11:51 -0500 Report

Hi Amanda. I am new here & came across your post. I am 42 & also a Type2 Diabetic diagnosed in 1998. For the 9+ years before that I was Hypoglaucemic. I am a single mother of a 14 year old beautiful son who has seen me fight a very rare form of Lymphoma, fight my way back from a coma that had the doctors ready to give up on me. Currently a long list of other medical problems such as chronic pain from a completely damaged nervous system, liver disease, etc. My point to you is that I am a fighter & I get the strength I need to beat it all from my son. I don't know you, but I see from your post that you are a fighter also. Know that you have the strength & love of your family as well as a large online family here for you as well. With all of our personal experiences we are here to share our knowledge, love and support & I hope you feed off of it and take as much from us as you need to help you fight this fight. I'm truly happy to hear that you made it through the accident without serious injury, but know that somehow it is the things we least expect that open the door for us to learn about things we don't want to know. I hope you find strength in my words and comfort in knowing that you have a caring friend here to support you however I can. Take care and stay blessed…Pat

lipsie 2009-07-30 04:22:36 -0500 Report

Hi there! I really don't know much about this myself but wanted to show support and letcha know I am here for you. We all are! Keep us up t date as well.Hugss Sheila

bighead 2009-07-30 12:10:08 -0500 Report

Hi Amanda..
So sorry to hear about your accident but thank God you are ok.
Let me give you a little story and very true.I have had two heart atacks major, I died on the helicopter to Roanoke Va, but they got me back and that was the second time, two years ago July, The first was in 1995 I was young and they called my family in and said I would not live through the night, But I did and was also sent to Roanoke Va, I never found out I had dibetes until last year and almost died again, it was well over six hundred, well to make a long story short I bacame very close friends with my doctor, I depended on him solely in case I had more problems with my heart which he has put seven stints in my right cornary.Our family is so close to him and he is just like a brother to me, two months ago he called me crying and said he had given up his practice because he had liver cancer. I was devistated. I don't know how long he has or how long I have, none of us do but we can take the experiences in our lives and maybe be help to others, if we look around us we can always find someone else much worse than we are, so sweetie live your life as best you can and remember it is a gift from God. Life is precious and Our families are so much a big part of it. Be happy that you have breath and a new day one God has given you, thats all anyone of us can do we have no hope of tomorrow but live it to the fullest today and maybe tomorrow, God Bless you dear friend, It always helps to know you are in our prayers in which we all need.Let me know how you are doing, BE HAPPY dear one you are not alone…Barbara

Harlen 2009-08-01 10:21:27 -0500 Report

Glad your ok
Befor I drive or do anything that mite be able to hert me or others ie,cook
I check my BS I just got my pump,befor I had to take 9 to 10 shots a day just to keep my BS 100/150 now it is somuch better.I still do my BS 8 to 10 times a day
I hope we all live a long long time take care of your BS and it will take care of you

mamaoak 2009-07-29 19:01:03 -0500 Report

hi amanda i have only one kidney and i am doing well i have type 2 and live a normal life i am 64 have been on a salt free diet since i was 9 years of age, hope this makes you feel better.

Sarguillo 2009-07-28 14:23:11 -0500 Report

Hello, My mother in law is T2 with kidney problems also. Hers were down to 22% but have come back up to about 29% in the last 2 years. She has to watch her protien intake very carefully. Please get the best possible medical advice you can get and follow it as well as you can. Hopefully, you will live out a long and fruitfull life. Good luck.

John Crowley
John Crowley 2009-07-28 12:32:52 -0500 Report

Wow, what a traumatic experience. And I guess the first thing is that we all can use the reminder to be so careful when we're getting behind the wheel of a car to be sure we're OK to drive. How scary for you. So glad that it wasn't more serious of an accident.

Now as for your kidney, I can only imagine the anguish you're going through right now. But there is a quote from Shakespeare that I like a lot. He wrote: "Cowards die many times before their deaths. The valiant never taste of death but once." Don't let your imagination run away with the rest of your life.

Right now, you know something is wrong. But there's no way to know what the end result will be of all this. Be strong. Take each day as it comes. Enjoy your son every day (though having had a 13 year old son I know even that has its unique challenges :-). Do your best to live as healthy as you can and then be at peace with that.

GabbyPA 2009-07-28 10:11:18 -0500 Report

Keep that attitude and you will go far. Your mass may not even be related to your diabetes, it could be another thing all together. So you are taking the right steps and doing all you can.

None of us are promised tomorrow and while that seems harsh, it is true. As you learned from your accident. So you make the best of what you have. Enjoy your son, plan his wedding and get the baby clothes for the grands. You can prepare the best you can for the future, but it never guarantees you will get it. So do things that he will remember. I recall the goofiest things I did with my dad. Saturday night roller skating, camping and collecting maple syrup from the trees in the winter. Strange things that have so much meaning, and none of them revolve around how much money he spent on me, just how much time he spent with me.

You can either be an inspiration to your son or a drag down a depressing road. The choice is yours, the timing is not. So do what you can now, to ensure he has great memories of his brave, wonderfully funny, over nosey mom. You will do great!

Ms.B2 2009-07-27 23:41:06 -0500 Report

Hi Amanda, I can understand how frightened you must be, but please never give in to your panic. Without our faith and hope we have nothing. You have proven that you are strong you and your family have been through so much. Keep believing that God is with each of us to help guide our way when so much grief and turmoil cover our plates.Bless you and your family. Please keep us informed, take care.
Always Lucie

BLC 2009-07-27 23:34:23 -0500 Report

Hey Amanda, so sorry about your accident. I am glad you are okay. So you were diagnosed with type 2 at two years old? That seems really unusual. Anyway, I find myself asking all the time, how long will I live having this illness. But honestly Amanda we none know when our final day will come. I have learned to live each day at a time and take the best possible care of myself. Good luck. I hope you feel better and get better soon. You are in my prayers.

Debe Pendice
Debe Pendice 2009-07-27 23:09:11 -0500 Report

Are you saying you were 2 years old and diagnosed with type 2 diabetes? I never heard of that at that age…Debe

SusanJ 2009-07-27 20:56:04 -0500 Report

Hi Amanda
First I want to say that I am glad that you were not hurt. I do not know what to tell you about this whole thing. What has your doctors said about it. I want you to know that you will be in my thoughts and prays. Please keep us posted on how you are doing. Hugs to you and your family.