Can one be misdiagnosed?

By Mando_Lynn Latest Reply 2015-06-04 18:58:13 -0500
Started 2015-05-25 21:54:38 -0500

Does anyone have any thoughts about being misdiagnosed with diabetes? I'm a believer that once you've got it, you can't get rid of it, but that there is such a thing as keeping it in check with a close watch on diet and exercise.

I was diagnosed a year ago with an A1c of 6.5. It was my first year teaching at a new school and I was also still touring (I'm a musician but have left touring since diagnosis). I had pretty bad migraines all year so much that by February of that school year I was taking Advil around the clock to no avail. (Unbeknownst to me at the time, the headaches were due to having BP of 200/120). The headaches were so bad I stopped working out around Feb also and I gained some weight (got to 125).

By June the headaches forced me to the doc and I was diagnosed with the high BP and also diabetes with the 6.5 A1c.

I'm wondering if my a1c was due to the severe and constant headaches and total lack of working out. Almost a year later now my BS rarely goes above 130 at peak even when I stuff myself with carbs. Tonight I went to red lobster and ate cheddar biscuits, potato soup, salad with croutons, chicken pasta and a brownie ice cream dessert. I tested every 20 minutes for 2.5 hours. Never above 113. (I'm not on any meds.)

I don't plan on hogging like that every meal from now on as I usually don't eat much of anything (even before diagnosis). I'm just wondering if it's possible I was misdiagnosed and was never diabetic in the first place.

Anybody ever heard of anything like that?

14 replies

jmgrn65 2015-06-04 18:25:33 -0500 Report

a person without diabetes, their sugars should be able to stay within normal range aprox. 70-110, and since your a1c was up as well as a bs then you were probably not misdiagnosed. You can control your bs with diet, exercise and or medications, weight loss will also help a lot.

Punkiedoo 2015-05-30 10:25:53 -0500 Report

Mando-Lynn,It's possible that you could have been misdiagnosed.!!! But I have never heard of anyone being misdiagnosed having Diabetes.And usally When the Doctor thinks that a person has Diabetes,He dose a Bloodsugar on them to find out if they have diabetes and if His diagnoses is correct. Punkiedoo

Dorothywilson 2015-05-30 06:33:49 -0500 Report

A1c test has a error range of about 0.5%. That is if you were tested as 6.5% your actual A1c might be 6% -7%. You can get more comprehensive evaluations done over a period of time to properly establish things.

Mando_Lynn 2015-05-30 07:01:49 -0500 Report

I'm quite sure my A1c was accurate at 6.5. I was just pondering if it was that high due to 24 hour round the clock migraines I was having due to the 200/120 BP rather than full blown diabetes. With both parents at T2 I'm pretty sure I'm at least pre-diabetic. Hoping to hold off actual diabetes as long as I can.

CraftyTafty 2015-05-29 21:47:36 -0500 Report

If you're at a point where you can be mistakenly diagnosed, you're still going to want to change up your diet and lifestyle to change that. The only difference would (ideally) be you wouldn't be required to take Metformin or Insulin for your diabetes treatment. In the ideal world (of course) you'd want to change up your lifestyle to naturally combat diabetes

Mando_Lynn 2015-05-30 06:58:26 -0500 Report

My diet and lifestyle is already where it needs to be and always has been. With both parent being T2 rather early in life I've been actively trying to avoid this all my life. I don't carry extra weight (the most I ever weighed was 125 as mentioned in the op when I stopped working out due to headaches.) I've been going to the gym for 30 years. Except for 3-4 times a year on special occasions I don't "stuff myself with carbs". And I'm not on metformin or insulin.

There's nothing to change.

haoleboy 2015-05-29 23:28:36 -0500 Report

Love it! They rail against the medical establishment only being driven by profit and ten try an sell you a $95 paperback book. Looks like a lvegetarian low-fat plan.
Snake oil!

Mallacai 2015-05-27 10:55:44 -0500 Report

I have been asking myself this question for almost a year now. I was Dx type 2 in May 2014. My BG was 311 ( i had a huge and i mean huge high carb Breakfast). I was prescribed Metformin 500 3 time a day. Radically change my eating, exercised religiously and one month later no glucose in my urine, A1c was 6.4. I kept improving my diet and lifestyle lost a total of 29 lbs. my two subsequent A1c were 4.8 and 5. I have since gained back 11 lbs stopped exercising and eating not so healthy but my BG's are pretty good. I went on a vacation had lots of beers then had some more at dinner. A friend ordered dessert of cheese cake for me which i told our server i did not want. left for the washroom only to return to see a slice of cheese cake in front of me and my friend put half his homemade coconut ice cream with nutmeg. i ate the entire thing and 11/2 hours later BG was 144. My BG goes up to 130 only if i overdo white flour. Fruits, alcohol and a host of other foods does nothing to elevate my BG. I am on 1 Metformin 500 daily. I have asked my doctor if i can stop my meds a few times to which he said not yet. We have an excellent relationship and i do trust him but i ask myself am i really diabetic. I have to do my A1c a week time which should tell me if i am since i have been a bit delinquent for quite a while now but i ask myself if i was misdiagnosed.

LRD 2015-05-26 16:24:15 -0500 Report

They say by one doctor I am a type 1 and then another doctor type 2, both endocriniologists, so it is possible.

GabbyPA 2015-05-26 07:57:30 -0500 Report

Yes, there is another member here who was. When they put her on meds, she was always going low. What happened, and I am sure she could explain it better than me, but it was due to a treatment she was getting for another health issue. When that treatment was done, the high sugars were gone. She went back several times and they finally figured it out. She is normal now, no special needs, meds or anything.

haoleboy 2015-05-25 22:50:13 -0500 Report

Were you diagnosed solely on the basis of the A1c test? Yes, it is possible that it was wrong, but there is such a thing as non-diabetic hyperglycemia … why not get an Oral Glucose Tolerance Test (OGTT) and end the suspense.
I would point out that stuffing oneself with carbs is a bad idea for anyone, not just diabetics. Healthy eating is its own reward.


Mando_Lynn 2015-05-26 05:11:06 -0500 Report

Yeah, like I said I don't usually eat that way but it was a big get together and I felt like it. Every other dinner is lean meat, pile of veggies and a little bit of either rice or potato.

It was the A1c and the fact that BS was 180 when I came to the doc that first time with the headaches and the 200/120.