Neuropathy Resource Center

Avera
By Avera Latest Reply 2010-10-30 22:56:17 -0500
Started 2009-06-28 22:32:37 -0500

Lately, many discussions have been posted concerning *Neuropathy.*

There is a great organization out there that can help you. It is called **The Neuropathy Association.**

They have a site on the Internet where you can read all about Neuropathy and find out some answers concerning treatment, research, and support groups.

There are sections where you can tell your own story, sign up for their Newsletter, vote in polls, and even find Neuropathy Medical Centers that might be near where you live.

If you would like to check this out, here is the link:

http://www.neuropathy.org/site/PageServer


9 replies

dj7110
dj7110 2009-07-01 10:45:18 -0500 Report

Thanks for posting this. I have neuropathy in both my legs and feet. left one worse than the right. end up staying bed sometimes when it's worse. The neurologist I was seeing moved away to work at a bigger hospital a couple yrs ago and have no neuroligists anywheres close to me. Problems of living in the sticks. David

Avera
Avera 2009-07-02 18:24:07 -0500 Report

David,

This is the same problem with me. I have to drive 70 miles to Duke University Hospital for a Neurologist, but he is sure a good one. I was amazed when I had one of those tests to see where my problems were. It hurt a bit,,,,all those little needles, but worth it to know.

dj7110
dj7110 2009-07-02 19:55:55 -0500 Report

at first I thought my leg problems where caused by my hurniated discs. But with my feet swelling like they where from time to time had the test done which led to my diagnosis of the neuropathy. Right now I would have to go 150 miles one way either west or south to get to the nearest neurologist

Gabby
GabbyPA 2009-06-30 11:13:18 -0500 Report

This is a very helpful site. I found a center that is only 2 hours away...I might just have to pay a visit. My primary doctor insists that my levels are not bad enough to have neuropathy, even tough I tell him I have it in my toes and the soles of my feet.

Brenda_B
Brenda_B 2010-10-30 22:56:17 -0500 Report

just a note and everybody is different but I wasn't diabetic… well not by the numbers… they were fine or maybe pre-diabetic… AC1 was 5 - 5.5… morning fasting was under 115. But it was the neuropathy pain that sent me to an orthopedic who sent me in for a 4-hr fasting test. … So my number were bad enought some of the time to cause damage.

david cee
david cee 2010-10-30 22:48:07 -0500 Report

Gabby, I sometimes think their primary care doctors aren't too smart or they don't want to send you to somebody else because they want to appear to know everything. At least my primary care doctor and my diabetes doctor typically do not have problems referring me.
I think a trip to a podiatrist for a diabetic checkup or a neurologist would be worth while.
As others have said getting treatment early on is the best thing.

One thing that is rarely mentioned as a cause of neuropathy is heavy alcohol consumption. Most people think of diabetic neuropathy, but there is also alcoholic neuropathy. I don't think there is a way to determine what caused the neuropathy and in my opinion it makes no difference. It is still very painful.

2009-06-29 00:05:28 -0500 Report

Thank you for supplying this information. This web site should be very helpful for those with neuropathy, or for anyone who just wants information about this condition.

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