neuropathy

sweetheart12356
By sweetheart12356 Latest Reply 2015-03-28 22:24:04 -0500
Started 2015-03-15 00:16:29 -0500

I have severe neuropathy in my feet and legs and the question I have is besides medication what will eleviate the pain?


9 replies

Frogpuddlefarm
Frogpuddlefarm 2015-03-28 22:24:04 -0500 Report

I have been taking vitamin D3 (5000IU) daily and vitamin B12 (2000 to 3000 mcg) daily and it has helped a lot. My neuropathy started when I was given an antibiotic called Cipro for a kidney infection in Feb 2014. My BG went really high. I ended up in ICU on an insulin iv for 4 days. Had never been on insulin until then. The Dr.s all wanted to give me another persscription and I refused so have been trying to find something to help with the pain.

gg777
gg777 2015-03-15 19:52:48 -0500 Report

I use capsaicin - it's a cream for "arthritis" but it works well for the extreme heel, feet, and calf pain I get. It's derived from hot peppers and it temporarily deadens the nerves . I found this works pretty well when I just can't take the pain anymore. It does make the area feel warm for awhile , but the pain stops.

Did a little research and they've found it helps with neuropathy http://www.ncbi.nlm.nih.gov/m/pubmed/1953227/... also are using it to stop heart attacks http://www.acs.org/content/acs/en/pressroom/n...

haoleboy
haoleboy 2015-03-15 01:13:33 -0500 Report

I have been diagnosed with severe motor and sensory neuropathy in my legs and feet. I take 900 mg of gabapentin at bedtime and that seems to help but on occasion I am awoken by what I can only describe as the worse shin splints ever. When that happens I find that Icy Hot or other such topical rubs help as do leg stretching exercises.
My real issue though is not the pain, but the lack of feeling from mid-calf down which makes walking (and even standing) an extreme sport, LOL.
I walk 1-2 miles every day with the aid of a trekking pole and believe that this helps keep the neuropathy from getting worse … well at least slowing down its progression.
Are you experiencing difficulty in walking yet?

namaste
Steve

sweetheart12356
sweetheart12356 2015-03-15 01:16:55 -0500 Report

Yes I have trouble walking and standing for long periods of time. I sometimes seem to lose balance and the pain is a 24 hour thing and the neuropathy is now in my hands to were I almost drop things.

haoleboy
haoleboy 2015-03-15 01:42:25 -0500 Report

I have virtually no balance at this point, but some days are worse than others.
My issue in my hands is insensitivity to temperature. If I am not careful I can burn myself pretty bad without knowing it … my first indication was getting 2nd degree burns on my fingers when boning chicken I thought had cooled.
Have you tried Lipoic Acid? Some folks have had success with that. I tried Alpha-Lipoic Acid but with limited success. My understanding is that R-Lipoic Acid is better but it is out of my price range so have not tried it.
I was told that keeping tight control of your blood Glucose helps but my A1C has been under 6 since before I developed neuropathy so I am at a loss here. Apparently I am destined to be the exception that proves the rule.

Steve

sweetheart12356
sweetheart12356 2015-03-15 01:53:31 -0500 Report

That type of medicine is also out of my price range. My A1C was 12.6 in December and I am totally insulin dependent. My doctor says that my kidneys are a little damaged and my pancreas is not working properly. Even my doctor is dumbfounded that I am getting most symptoms of what diabetics get. I also have a little sugar behind my eyes so now I wear glasses. Thank you for your advice I appreciate it.

calayx
calayx 2015-03-15 00:50:56 -0500 Report

I elevate my feet and legs. Exchange warm compresses with cool ones for the entire evening. Going back and forth all evening. It's so tiring but I found out that these things don't work at all.
I know you didn't want to know about medication.
But I use a medication that works 100 % . I take 600 mg of Gabapentin every six hours.
As long as it works, I'm never gonna stop !
Good luck,
Calayx

sweetheart12356
sweetheart12356 2015-03-15 00:58:49 -0500 Report

Thankyou I also take that medication it it doesnt seem to work for me.it makes me itch all over when I take it.Do you know of anymore medications that are equivelent to that medicine.