Type 1 Diabetes and Multiple Sclerosis

electricrd
By electricrd Latest Reply 2015-03-13 01:52:22 -0500
Started 2015-03-12 23:41:00 -0500

My 19 year old daughter was just diagnosed with type 1 diabetes 2/12/15. Her A1C came back at 11.9, She is on Humalog and Levemir. She has been seeing her pediatrician for several years with symptoms we thought were poor circulation. She was referred to a Rheumatologist last year who ruled out lupus and several other autoimmune diseases. Now, her pediatrician is referring us next week to a neurologist. She is convinced that my daughter has MS. We are terrified. Finding out she was a diabetic was a challenge in itself. I can't even imagine what we may be facing if she does, in fact, have MS. She and I have both been reading up on both diseases. We have found conflicting info showing a connection between diabetes and MS. I was wondering if anyone else on here has both. As her mother, I am extremely worried about my baby. I want to do everything in my power to help her and become as educated as possible. I'm not sure how this discussion works, but if it does not show for everyone, please share if you know of anyone who can offer some advice. We are also overwhelmed with the expense of her meds. Is there anywhere out there that could possibly offer assistance? She is a freshman in college, and I have even been researching possible scholarships relating to the diabetes, but it is so hard to dig through it all and determine which is legit and which just want your personal information. I am hoping for medical advice as well as emotional support. Feeling completely overwhelmed, Thank you for your support. Kellye


4 replies

lilleyheidi
lilleyheidi 2015-03-13 01:52:22 -0500 Report

I would definitely talk to the financial aide office at the college about scholarships and assistance for your daughter, there are all kinds of assistance and help available for kids.
As far as the medications, contact your medical provider and ask for the paperwork to get on a program for assistance with the pharmaceutical company that makes the meds that your daughter is on. They often will provide full assistance for the meds if you qualify financially for them. Best of luck to you.
I will keep your daughter in my thoughts and prayers next week for a good test results.

jayabee52
jayabee52 2015-03-13 00:14:41 -0500 Report

Howdy Kellye
WELCOME to DC!
One of the things I learned while answering questions was that hormones mess with the young person's BG (blood glucose) levels.

Don't be so quick to rule out Lups (SLE) as my late wife had it but she told me that the Rheumy had to test her several times before it finally showed a positive for SLE. Of course I pray that she doesn't have it because for my late wife it was a terrible scourge, and she died way too early (55)..

Of course I pray she doesn't have MS either.

As far as where to go for funding for your meds (or were you talking about school scholarships?) You may ask at the makers of her medications for help paying for them.

I will be praying for your daughter and for you, Kellye

James Baker

electricrd
electricrd 2015-03-13 00:23:22 -0500 Report

Thanks for your response. Hopefully we will get some answers from the neurologist next week. I pray it is not MS nor lupus. Both have me scared for my child.

I will inquire with the drug companies about assistance. I have been reading about the partnership for prescription assistance and that looks like the best place to start. I think it is like a clearing house for all the pharmaceutical companies.

I was also asking about school scholarships as well. I wonder if the financial aid office at the college could be helpful with that. It's a place to start.

Are you a diabetic? If so, how long?

Thanks again, Kellye

jayabee52
jayabee52 2015-03-13 00:39:29 -0500 Report

I have had T2 since 1995. I currently manage mine with a meal plan which avoids simple carbohydrates and loads up on proteins. You may also remember that I have Chronic Kidney disease for which I need Dialysis. I have been on dialysis since the early months of 2011.

I would guess that the financial aid office at the college would be the ideal place to start.

Blessings!
James

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