Cold turkey on Insulin

By Kaydoo Latest Reply 2015-02-28 09:39:35 -0600
Started 2015-02-25 19:08:36 -0600

Keep in mind this is a question to satisfy curiosity, not a cry for help.
What would happen as a type 1, if I just stopped all insulin? I was diagnosed last year and just can't understand how I lived my first 44 years with no insulin

10 replies

Sopies Grandma
Sopies Grandma 2015-02-28 09:39:35 -0600 Report

I am type 1.5 LADA and I did one of the most stupid things anyone could ever possibly do. I took a vacation from Diabetes a few weeks ago. and yes, I am still alive. I just came to a moment where I was sooo totally overwhelmed I just couldn't take it anymore, so I went for 4 days without insulin or any of my meds. it was hard on my body, but it really helped me to see that dealing with diabetes is not so overly whelming. hard, it was just my attitude towards it. So I got my head out of my butt about it, and got back on the program. I no longer feel stressed out and I am taking control over my health and looking at live with a better understanding.

MarkS 2015-02-27 15:25:16 -0600 Report

If you stopped your insulin injections you would slowly die a very miserable death to put it coldly, so to speak. That's the fact. As for how did you live your first 44 years not needing insulin? That's a great question, one that has perplexed scientists for a long time. Since the current theory is that diabetes is most likely an autoimmune disease, your body's immune system, for some unknown reason, did not turn against your islet cells of the pancreas until sometime around your 44th year of existence. I was diagnosed at 34 years of age as a Type 1 so I can relate. All I remember is feeling like crap (tired, thirsty, peeing like a racehorse, lost 25 pounds, eyes were terrible) before diagnosis. Once I was diagnosed and got that first insulin injection, I felt like I had been reborn. Don't stop taking insulin, your body depends on receiving it!

GabbyPA 2015-02-26 15:29:11 -0600 Report

Your first 44 years you had insulin. Something along the way caused your pancreas to fail. There can be all kinds of reasons for that. So what happened in the past 44 years is not how your body functions now.

Your doctor most likely "assumed" you were type 2 because it's not that common to become type 1 so late in life. Don't you love being the exception to the rule? There are some other members here who developed in much later as well. It's a huge adjustment, even more so than if you were a kid because of all the habits you have now as an adult.

Everyone has told you what could happen. Scary all. It's easy to want to give up when we are in a downward slide. The trick is to grab on, hold tight, and move back to doing what was working for you before. I have just had to do that myself and the benefits are great. We are here to help if you need.

NewDiabetic2015 2015-02-26 18:49:24 -0600 Report

Ty… I ended up in the Hospital with back and tummy pains. We thought it was my IBS! So we waited thinking the pain would subside right! Well, hubby found me after 3 days feeling awful in a intense amount of pain and completely out of it… Trying to find a place to sleep and die! He found me in the closet! Worked hard with him being confused and scared because I was unable to talk and make any sense … Finally got me dressed got up 15 stairs and to our vehicle. Went straight to the Hospital and I'm out of it this entire time. Apparently, the had me up in the ICU unit for 2 weeks in a coma! And the Drs told my hubby if he had waited one more day I wouldn't be here… So I had acute Pancreatitis and it shut down all my organs.. Ended up on Kidney Dialyses and they had four tubes in my throat and a machine to filter my blood!
The first 72 hrs were critical… So hubby was told to call my family members in… They weren't sure I was going to pull through! So 2 weeks later I woke up! Dr and nurses said I was there Miracle lady! I had to re-learn to eat, think, go potty ( both) and memory was gone! Oh and I had an out of body experience… God gave me a second chance at life! I was in perfect health except my IBS and some depression! Now I'm a diabetic 2, have a bad pancreas and every month have to keep trying to find the money to get all my meds. Insulin: Lantus 50 units ( slow acting) $445 per month .. Homolog depending how low my sugar level gets ( Fast acting ). $475 per month Creon 1200 for my pancreas $400 a month.. And stuff for my depression Mirtazapine 15mg $45 per month and Gemfibrozil 600MG $55 per month plus the stuff I was on before this happened… So with that being said we fight each month to get money to just keep me alive… Ugh sometimes I just cry and cry and cry! But, I do my elliptical everyday and the stairs everyday clean our home everyday… I'm in pain but, I'm doing it. Dr says it could take a year sometimes up to 3 years for some people to feel in control and find the right things to work for me! Then right after I got home about a month and hubby got Influenza and guess who got it too… Lol me. It took longer for me to heal. It's a one step forward and 3 steps back… Crazy! Thanks for listening… NewDiabetic2015

Kaydoo 2015-02-26 13:01:09 -0600 Report

Thank you all, I was frustrated enough being diagnosed as Type 2 I initially, finding out I was type 1 a few months later left me crestfallen.
I am not handling this so well, I had slashed my A1c almost in half after starting insulin, but have since backslid.
I appreciate your input

jayabee52 2015-02-26 12:47:37 -0600 Report

Howdy Kaydoo
I note from your profile posting you'd been initially Dx'd as T 2 but have recently re-Dx'd as a T 1.

Type 1 Lou has a good overview of what would happen if you went off insulin.

As to how you survived "44 years without insulin" you didn't. Your body supplied its own insulin until some disease (usually "autoimmune") caused your beta cells to die. Beta cells are what produced the insulin which regulated your BG (blood glucose) naturally.

God's best to you and yours


Type1Lou 2015-02-26 08:49:58 -0600 Report

A Type 1 produces no insulin naturally because an auto-immune response destroyed the Beta cells in your pancreas that produce insulin in "normal" people. This can happen at any time and at any age (even though Type 1 used to be called "Juvenile" Onset Diabetes). I was 27 when diagnosed with Type 1. Your Beta Cells were functioning for 40 years and then "Bam!" they stopped producing insulin, turning you into a Type 1. If you stopped insulin, your BG's would skyrocket, your kidneys would work overtime to get rid of the excess sugar in your body and you would want to urinate nearly every 5 to 10 minutes. You would be forever thirsty because you are excreting all your fluids trying to get rid of the excess sugar. Because, without insulin, your body could not metabolize the food you eat, it would begin to draw upon its fat reserves and you would lose weight, no matter how much you ate. You would feel constantly hungry and tired. After a while, you would go into DKA (Diabetic KetoAcidosis) leading to coma and death.

lilleyheidi 2015-02-26 02:24:11 -0600 Report

If you went off insulin, your blood glucose would go up, high. Your kidneys would start to fail, and you would probably go into a coma and eventually die. It's not a pretty picture. You need insulin to live. Please don't consider going off it.

valentine lady
valentine lady 2015-02-25 21:40:16 -0600 Report

Hi kaydoo,
I'm type 2 diabetic but as I understand it in certain areas we're alike. .I could be wrong but your pancreas worked for 44 years then died. My pancreas still works just enough to allow me to be off medication. For you to go off of insulin is a quick exit out. You know what I mean. I think your in denial and need a wake up call. This is it. You've come to the right place though for good advice and understanding. I went through denial way back when. Then I got real and accepted itfor what it is. I'm sure that your dr. has you what's up with you. Accept it and strive to make your life as full and rich as possible. Work to get as healthy as you can. Know my prayers are with you. Hugs, VL