Sacred to death....

Jibber Jabber
By Jibber Jabber Latest Reply 2015-02-23 13:18:58 -0600
Started 2015-02-22 07:51:10 -0600

I might have to take next semester off from school…or at the very least not take any classes in the summer semester…My 9 year old nephew was diagnosed type 1 about 6 weeks after I was diagnosed with type 2…My sister has so many health issues herself that she is used to dealing with doctors and meds…she was fine until Friday when one of her doctors "suggested" that her sons type 1 diabetes was caused by her deciding to become pregnant with her son when she was told not to have children…She contracted a very rare auto immune disease in her early 30's that actually made her a paraplegic..(don't ask me the name the doctors told her there are only 6 other cases currently in the United States)…she has since battled breast cancer, cervical cancer..MERCA and has gone septic twice…she has come through all of it like a trooper…But this is different…this is her son…and she was handling things very well until this idiot doctor opened his mouth (even if true what is the point of saying something like that to someone..does it change anything??)… She lives all the way in Jersey..she moved there from NYC to have legal access to medical marijuana for her pain which is a constant level 9-10…I am all the way down in Louisiana…and I feel helpless…she wants my help adjusting her sons diet to make it less what his doctors want it to be and MORE of what she knows it should be…I am so NOT qualified to do this …I have zero experience with insulin…and am uncomfortable with the entire situation..I told her I would shoot up for a few mos at the end of the semester to help her deal with everything…I am just so angry at this IDIOT doctor for throwing all that Guilt on a woman that already has more to deal with than anyone should ever have to…I know there is nothing any of you can do to help..guess I just needed to say it to someone..


15 replies

Type1Lou
Type1Lou 2015-02-22 18:09:28 -0600 Report

You may wish to suggest she read Dr Richard Bernstein's "Diabetes Solution". Dr Bernstein is a Type 1 himself and has a clinic on Long Island as I understand it. He was an engineer who returned to school to get his medical degree to gain credibility for his low-carb approach to dealing with his diabetes. He advocated a low carb approach long before the main-stream medical community hopped on board the low-carb wagon. Reading his book was a turning point for me and I drastically reduced my carbohydrate intake after reading it and gained beeter control. You're right that the doctor was a total jerk in telling her it was her fault. Since no one really knows what triggers the auto-immune response that causes beta cells to self-destruct, resulting in Type 1, he also appears to have demonstrated his ignorance as well as his insensitivity. Your sister has more than her share of trials and my heart goes out to her. I know you'll give her all the support you can, even if it's from a distance. She's lucky to have you.

Gabby
GabbyPA 2015-02-22 15:14:24 -0600 Report

Doctors say the most stupid things sometimes. Mine once told me that god made me have a boil so I would come to see him. REALLY? I guess we are all prone to lapses in good judgement or common sense.

Your sister sounds like a very strong soul and the time you get to be with her, you will learn so much and I know you will be a huge and helpful support to her. I know your research ethics and I believe that together, you guys will rock it and keep her son healthy and maybe even teach the doc a thing or two along the way.

I know it's trite, but there are reasons that things happen. I am a firm believer in that.

jayabee52
jayabee52 2015-02-22 16:19:19 -0600 Report

Gabby, sounds to me like you went full circle from what your Dr said about the boil, to "there are reasons that things happen". Only difference is he placed the reason things happen on God.

James

Gabby
GabbyPA 2015-02-23 13:18:58 -0600 Report

I suppose you are right there. I just am not a big fan of placing god in the category of things happening to get me to see a doctor. But your point is taken.

robertoj
robertoj 2015-02-22 14:58:34 -0600 Report

The doctor was out of line. There is no reason to blame anyone. When I was was growing up the doctor told our neighbor not to have children and she had three healthy boys. Her son might have been a type 1 even if she was healthy.

suecsdy
suecsdy 2015-02-22 12:54:19 -0600 Report

Someone needs to take that mans foot out of his mouth and stick it where the sun don't shine. How insensitve can you get. Drs should have to take a course in how to talk to their patients and when to keep the mouth shut. Prayers to your sister and her son..It sounda like he has the best advocates possible, his Mom and his Aunt.

valentine lady
valentine lady 2015-02-22 10:26:54 -0600 Report

Hi Jib Jab,
I Ann so sorry about all this. I could repeat what everyone else has said. but I won't. We both know what an idiot the dr. is. Your advice was good to find a new dr. Good for you for willing.want to go to your sister to help her. Allot of people wouldn't do that. Especially for months. My prayers are with you all especially your nephew. Hugs, VL

Ruth2015
Ruth2015 2015-02-22 10:14:50 -0600 Report

Jibber this what I talk about All the time if you have nothing good to don't say anything at all I am so sorry to here about your sister in this situation all you now is give her all the support that you can give her is not her fault She has to make sure he does his bolus right for the amount food of especially the carb ratio I struggle some thine my self with especially when I eat pasta. This can seen her deeper into stress and make her depress check on frequently chin up hugs from me to you.

sweetslover
sweetslover 2015-02-22 10:04:35 -0600 Report

Some doctors just have no filter in place before they open their mouths. So sorry your sister was subjected to that. I know you are unsure about dealing with T1, but you do know diabetic nutrition and you are an intelligent woman. You will do what you need to do. All of you are in my prayers.

Pegsy
Pegsy 2015-02-22 08:02:24 -0600 Report

I can help with encouraging words and prayers! I don't think you will ever regret taking time out to be with and help your loved ones. Of course you are uncomfortable! This is huge, uncharted territory. I understand your fears. But look at it this way. As little as you feel you know and understand, she knows and understands even less. But she sees how your lifestyle changes have changed you. She wants that for her son. You can teach her what you already know and the two of you can learn more together. She may need to find a new doctor, both for herself and her son. I does sound like her doctor is very insensitive and condemning. She needs someone who will be supportive and work with her compassionately. I'm proud of you and thankful for you wanting to be there for your family. Many families don't get that kind love and support.

Jibber Jabber
Jibber Jabber 2015-02-22 08:51:22 -0600 Report

I am just going to have to do a shit ton of research on type 1…and I already have so much on my plate…I told her that the best thing she can do for now is just start looking for a new doctor…one that knows about diabetes and one that goes against the grain and condones low carb diets…because we are going to need a lot of supervision…it's not like we are playing with out own lives…this is a little boy that is depending on his family to take care of him…my sister DID shut her doctor up though…she is a HOLMES and Holmes women don't take crap..she told the doctor she didn't get pregnant on purpose..and she is a Christian woman..and Christian women don't kill their babies…and she reminded the idiot that she risked her life carrying her son..her doctor told her there was a 50/50 chance she would die…BUT we are all just human…and the guilt is still there…