type 1 or type 2

Sopies Grandma
By Sopies Grandma Latest Reply 2015-02-17 22:14:12 -0600
Started 2015-02-13 20:17:56 -0600

I have been type 2 for couple of years, but after some blood work the doctor tells me that I never was type 2. They tell me that I am type 1.5.LADA. Did they get it wrong the first time? has this change ever happened to anyone else?


12 replies

lgfarns
lgfarns 2015-02-16 23:32:40 -0600 Report

Yes it happened to me. I was told I was type 2 then changed to type 1
Super frustrating and confusing

Gabby
GabbyPA 2015-02-15 15:30:14 -0600 Report

It does actually happen more often that many care to admit. It's mostly because doctors assume certain things based on age and other health issues as to determine it to be type 1 or 2.

suecsdy
suecsdy 2015-02-14 08:38:42 -0600 Report

I emailed my Dr just the other day and asked if I don't make enough insulin or just do not use my own insulin efficiently. They told me it could be both. How do you know?

Jibber Jabber
Jibber Jabber 2015-02-14 09:56:36 -0600 Report

I do believe there is a test that can give a definitive answer…this raises the issue of will the insurance company pay for it…I think it should be standard for everyone to be tested…especially because so many doctors do not even mention self testing for BG at diagnosis…they just cut scripts, send you on your way and tell you to come back in 6-8 weeks…what if you are actually 1.5 and in the latter stages of development and REQUIRE insulin…

Jibber Jabber
Jibber Jabber 2015-02-13 22:35:24 -0600 Report

It is actually becoming much more common…1.5 is auto immune the same as type 1, but from what I understand it takes much longer to develop…adults are usually just told they are diabetic and the assumption has always been that because it was adult onset diabetes that it was type two..THIS is why it is very very important for newly diagnosed adult diabetics to be very careful about monitoring there BG levels…you might do fine just on metformin and/or other oral meds for a couple of years and then need insulin everyday just like a type 1…

Sopies Grandma
Sopies Grandma 2015-02-14 08:07:44 -0600 Report

i was on Metformin when I was first dx but it didn't nothing for me, it only made me sick, right now I take insulin several times a day, but will be pumping soon, as for testing I test 6-8 times a day, I also have to use ketone strips.

RosalieM
RosalieM 2015-02-15 06:59:34 -0600 Report

Hi Sopies Grandma,
The same thing happened to me the metformin never worked for
me. I had to figure it out myself and ask for long acting insulin which I have been able to make work for me. If I watch my diet, I don't need the fast acting insulin.

sweetslover
sweetslover 2015-02-13 20:46:00 -0600 Report

I have just assumed I am a type 2—I have never asked my doctor. I am on metformin which is what they start a lot of type 2s on and it seems to be working for me. Exactly what is a 1.5 LADA?

notmaiden
notmaiden 2015-02-17 22:14:12 -0600 Report

I read something on it today actually. It's sorta like t1 but usually people over 30 get it. And it's commonly misdiagnosed t2 because of the persons age.

Sopies Grandma
Sopies Grandma 2015-02-14 12:17:10 -0600 Report

type 1 these people don't produce any insulin Type 2 produce some insulin but not enough type 1.5 LADA produce some insulin bt the body also produces antibodies that attack the insulin as if it is a sickness, it is more lilke type 1 just comes on a lot slower.