Coming to terms with kidney issues

By suecsdy Latest Reply 2015-02-13 11:53:41 -0600
Started 2015-02-12 09:20:10 -0600

I am slowly coming to terms with the issue of decreased kidney function…not because the Dr has said I am ok, but because,sadly, it seems there is nothing I can do about it. I have not been able to find any encouraging information about it and may never know what caused it. So now everything I do or take or eat has to be tempered with how it will impact my kidneys. It limits a lot of stuff I would like to try to help with diabetes. Frustrating. I am trying not to let it occupy my mind so constantly and God has given me a little help and a little more peace of mind. Had to postpone my kidney education class because of a conflicting appt.,but hope to make it next month. It still feels a bit like giving up, and I don't like that or the wait and see approach to treatment. Nothing I can do but eat right and drink lots for now. I want to question the use of Valsartan for bp as I have seen conflicting reports on the effect it has on kidneys, one saying it can cause kidney problems and the other saying it may help. I just don't know how to ask my drs the question or even which Dr to ask. For some reason the bp has been harder to deal with than D. I so want to get off these pills. That's where things are for now.

8 replies

lilleyheidi 2015-02-13 01:25:45 -0600 Report

So very sorry your having to deal with all of this. I'm keeping you in my thoughts and prayers. I'm glad your going to be going to the class, that will probably give you more things your going to want to ask the doctors. The class instructor may be able to help you sort which doctor to ask what. Keep up the good faith. HUGS

Pegsy 2015-02-12 12:34:55 -0600 Report

I'm sorry you have to deal with this. Diabetes and kidney issues seem to go hand in hand for many. I pray you will find the answers you seek and will live a long happy life, despite the problem.

GabbyPA 2015-02-12 09:40:08 -0600 Report

My heart goes out to you. Above any complications of diabetes, kidney disease is on my "creeps me out" list. Write down every question you have and present it to every doctor you have. I would push them for answers or at least get them to tell you where you might get answers. I know it is crummy when there is so much conflicting information out there.

suecsdy 2015-02-12 13:09:38 -0600 Report

Went right past "creep me out" and straight to "freak out". Calming down some now,but still pretty scared about it.

Sopies Grandma
Sopies Grandma 2015-02-12 17:50:35 -0600 Report

I'm sorry that you r having such a difficult time with this issue, I also have problems with my kidneys and have been told that there isn't really anything I can do about it. I was told that I will eventually have to go on dy. I am trying not to worry about it. I hope you can find some peace with what your dealing with. u r n my prayers

suecsdy 2015-02-12 18:29:31 -0600 Report

Here's what the nephrologist told me. We don't know what has caused the CKD My kidney function right now is somewhere in the neighborhood of 55-65% She told me we are born with more kidney function than we need and I can go a long time at this level. She cannot tell me if it will improve, but I have found nothing encouraging in my own research. Also said I am nowhere near dialysis. I do have a cyst on each kidney, not the common simple cyst, but not malignant. Treatment for now is just wait and see if they are stable.Go back in 3 mos for follow up. Don't know if I will be repeating the ultrasound or MRI then or just bloodwork. That is all I know and the lack of further information is driving me nuts. That's why I was really excited about the kidney education class. I will take that class, just not next week.

sweetslover 2015-02-13 11:53:41 -0600 Report

For me, not knowing something is worse than being given bad news. When I don't know, I worry and research, and generally end of scaring myself half to death. Prayers for you. I'm glad that you are not close to dialysis at this point.