Royal Screwup

By suecsdy Latest Reply 2015-01-29 16:45:41 -0600
Started 2015-01-27 09:57:50 -0600

I am so upset and angry right now I just want to break things. I just came from the clinic where I was supposed to have a ct scan on my kidneys this morning. I did all my prep last night, made sure everything was ready so I could get out quick this morning, got up early and started drinking because they said I had to have a full bladder for this test. I'm sitting in the little room and the tech is getting ready to start the iv and somebody says "stop, we can't do the injectable dye, we don't want to risk it, it has to be an mr scan now". Then they want me to call my pcp to get a request for the test, ok? Hell no. It will take at least 2 weeks to put a request through my ins and get approval back. Asked if they could call the kidney dr, because she is the one who requested the ct scan. I called yesterday and specifically asked if this dye test was safe for me because of decreased function and asked about a pill that I read they could give me to prevent any further damage. Someone there looked at my test results and told me I would be fine, my kidneys would be able to handle it. and then to top it off they try to make it sound as if they're doing me a favor to "fit me in" on Thursday at 5:00 PM. Thanks for the favor. Now another three day wait and a drive in prime time traffic to make the appt and it will be Friday before I here anything. This is not right! Plus now I have to cancel an appt with my surgeon to scedule my takedown, an appt that I have had for 2 months.

11 replies

Dr Gary
Dr GaryCA 2015-01-29 16:45:41 -0600 Report

HI suecsdy, this is so frustrating! These miscommunications are rough on patients. The employees are going to be there anyway, but patients are left to scramble and figure things out. Glad to hear you advocated for yourself here with the test. I feel bad for you.

rhett t
rhett t 2015-01-28 06:18:50 -0600 Report

So sorry to hear about them doing you like this. it was wrong and they should have known better.

RebDee 2015-01-28 06:07:10 -0600 Report

I suspect that all of us at one time or another has experienced what you experienced. Now stand on the other side and think about how the technician who has been doing this test repeatedly for many patients actually knows more than the doctor who prescribed it without thinking of the consequences. That has happened to me time and time again.

In fact, the other day, because of the flu, I was seen by an on-call physician who did not know me. I told him that I was allergic to all cillins and mycins and sulfa drugs, and he should check the chart. I told him that the drugs of choice for me were Biaxin and Keflex, so he ordered Ceftin, which as it turns out is a Penicillin derivative. I got a rash and swelling all over my face and my heart beat was felt from my lips to my nose. Scared the bejesus out of me. So why did he prescribe what he did, because he didn't take the time to check the PDR to learn the formula for this new drug. So why didn't the pharmacy find it, after all they also knew (and could read my chart) of my allergies. Instead I had to suffer. So I called my PCP and she immediately changed the medication without my having to make an appointment to see her (probably three weeks later). I am feeling better now. My flu is gone even though I am still coughing especially in the evenings. The new medication works just fine. But I am angry that I had to suffer and that I had to pay for two instead of one medication for the same diagnosis - and neither med was cheap.

So each of us has episodes of anger and depression for things we have no way of knowing why or how or that we have no control over. As the song goes, "pick yourself up, dust yourself off, and start all over again."

suecsdy 2015-01-27 14:04:08 -0600 Report

I came home and called the nephrology clinic. The Dr. I spoke with a week ago in not available but the Dr. I spoke with was more forthcoming with information about what is going on. In addition to having cysts on my kidneys, my left kidney is swollen(hydronephrosis). This indicates some kind of blockage, possibly a stone, maybe just from surgery(doubtful). It most certainly means that I will be seeing a urologist after the mri. Joy. Another round of doctors before I can see some resolution to this problem. And now I think my back is starting to hurt from the kidney although that may be all in my mind. Hope so, cause I have no strong meds for the pain. In the meantime,bg levels are up, blood pressure is up and I am in a really foul temper. Thanks all for listening. PS: The colostomy surgery is postponed indefinitely till this issue is addressed.

RosalieM 2015-01-27 13:53:34 -0600 Report

Sorry to hear what they put you through. I find service is just awful. I find myself doing the same thing over and over because someone didn't follow through. It is epidemic. It wasn't always this way. Everything is so automated that talking to a real person about anything takes a very long time.

GeekonBoard 2015-01-27 13:36:34 -0600 Report

I'm relieved that my diabetes education team & my PCP informed me about my diabetes medications & having medical tests involving dye. I was told that I was to inform my PCP before having such tests with the dye because it can do serious harm to your organs (being on the diabetic meds & being a diabetic).
I'm so sorry that they put your through the paces of doing everything needed to have this test only to pull the rug out from under your feet. If it is true that it can do irreversible harm to your organs then I'm glad they stopped it before it was too late, but I can only imagine how frustrated you must feel. But, if they told you your kidneys can take it - they must know something different - good they can get the ball rolling again. Hang in there! :)

suecsdy 2015-01-27 14:15:05 -0600 Report

I discovered that information on my own and asked specifically yesterday and was told it wasn't a problem. Then I get there and minutes before the test they cancel on me Being able to vent here helps, but cannot really convey the magnitude of my anger.

valentine lady
valentine lady 2015-01-27 13:19:19 -0600 Report

Hi Sue
I'm so sorry this has happened to you. These set backs are passed frustrating and not to mention infuriating. They think their helping you
but infact the the stress alone feels like it will kill you. My thoughts and prayers are with you now and always. Try to take a deep breath and plow ahead. Hugs, VL

Pegsy 2015-01-27 13:06:55 -0600 Report

I'm sorry you are going through this. I watched this happen to my mother many times in the past. It was either her kidney function or her BP was too high or something. It was often very frustrating. These days, even when I am just going in for an A1C test I call the day before to make sure the doctor has ordered my labs. I have gone in fasting only to be turned away because they didn't have the order. And when I call they don't want to take the time to check and they argue that it "will" be there. I insist that they check before I hang up. I tell them, "If I get turned away again, I will change doctors and I will explain to the doctor why. How do you spell your name?" It works every time. Obviously this is just a blood draw, nothing like what you are experiencing. I hope this all gets resolved quickly and you get the tests you need.

GabbyPA 2015-01-27 12:25:23 -0600 Report

Sadly, I think this is the way things are going to stay. You did good by asking the right questions. It's a shame that the ball fell. I know how nuts it can be to reschedule. Last March, an appointment screw-up (that we protested) put my husband in the hospital, almost killed him. Sometimes it feels like they don't care. I know that is not really the case, but the patients need to be listened to and not belittled.

sweetslover 2015-01-27 10:07:59 -0600 Report

What really bothers me is when a technician countermands what a doctor has ordered. I appreciate them being careful because doctors can make mistakes too, but they should do a quick phone call to check things out and not inconvenience the patient.

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