My bs stay low normal 24/7 and feel bad all the time

By funnygirl98 Latest Reply 2015-01-22 03:57:43 -0600
Started 2015-01-11 12:38:32 -0600

Just to let all my friends know, I am a hypoglycemic diabetic and until the end of September 2014 I've been doing real well at keeping myself in the "normal" range with a few high spikes into the 200 range and at times crashes down into the 50-60 range. Well since then I cannot get my bg to go over 72 in the mornings when I first test. I eat healthy 6 small meals throughout the day but I'm constantly have the shakes, headaches, nausea and dry heaves 95% of my day. I try to excercise as much as I am able to but when I move around I start getting all the signs of starting to crash. When I check my bg it's down in the 50's sometimes 40 range. I've even had 3 bad crashes to where I blacked out for a few sec and come back to but all I want to do after I crash is sleep for 6 to 8 hrs it's like it takes everything out of me. Since the start of me haveing crashes in sept. I've lost around 30 lbs… when this comes on I start freakin and getting scared because a few times my bg has dropped down to 32 and the other time was 28. I have my dr. and diabetic dietician appts. on this thursday. Is there any kind of meds besides what I take already which is the glucophage tablets to help bring me back up from my crashes that a dr. might be able to put me on to help me regulate and stay in the normal bg ranges? Any help would be awesome and a great help to me cause I'm running out of ideas i've been trying and nothing seems to be working.

56 replies

kathylynne56 2015-01-22 03:57:43 -0600 Report

I am a Organic Hypoglycemic. I constantly have lows and few highs. I am always checking my blood sugars. Every 3 hrs. I check them and eat a carb because I have dropped as low as 21 and lower. The main reason I found out what is wrong with me is I went a day without eating because of my seizures and my husband didn't know I never got up to eat. I had, had to many seizures to wake up and get up to get food, plus, I hit myself. I learned my glucose level was under 20 when they came for me at my house and started reviving me from a full code. My blood sugars had gone so low it was that bad. Plus all of my seizures combined that I had the day before 10 min. apart and then constantly hitting myself all thru the rest of the day and night. until 7:30 the next evening when my husband decided it was time to check on me to see how I was. I was not breathing. After that, I saw an endocrinologist and put me in the hospital and came to a conclusion I had Organic Hypoglycemia. At the moment I am taking Cortef 5mg to try and keep it at a better range. but, it is not working either. I drop just as bad as, before. I know, we are trying everything we, can think of to bring it up. I have gained weight to prove it was not my weight. So, he knows, that is not the problem. I am really frustrated with mine too. I drop so low and I can not feel it drop. That is the scary part for me. I can still be standing and not feel any symptoms at 21. Maybe I feel cold on the inside and outside…but, that is all. It is scary and I can't have a pump to alert me. That is only for diabetics. I am not diabetic and it won't go thru insurance either. I do have to eat small meals each 3 hrs. but, it just doesn't do the job. Any advice is welcome. My fingers are callused and getting harder to get blood out of.. Any advice on what to use on them?? I would love to have answers to help me out. Since Cortef is not really helping me and I have to wait until 2-19 to see him again.

4gsus2 2015-01-20 21:16:16 -0600 Report

I am struggling in getting my Blood Sugar to a healthy level. I am on Metformin 1000mg 2x a day, however it keeps me in the bathroom all day. Sorry y'all, I keep it real. So I asked the doctor if I could change the dosage to the XR…we did and it seems to be working a better, I guess. But my BS levels are still all over the place. The doc suggested that I use daily injections of Victoza in the stomach to curb appetite (I think) but he never gave me a prescription for it and I don't think you can get it over the counter. I know I need to call him for I missed my last appointment with him in Dec. around Christmas time. I'm not very good at managing all of this. I did join a gym over the holidays which is a good thing. Now if I can just talk myself out of the house during the winter months. Please forgive me for being the downer of the day. I suppose I need some encouragement. Sigh.

cbwiseowl 2015-01-17 22:06:09 -0600 Report

Besides adjusting medication, beans, nuts and seeds are slow releasing carbs that can help keep blood sugars level. Keep some with you and snack occasionally.

Hops 2015-01-14 10:20:56 -0600 Report

The New York Times had an article Tuesday in which a doctor talks about the fact that as we age our body as a tendency to build up excess insulin and this especially happens when he have many hypoglycemia episodes. If I were you I would speak with my doctor and let him know about your problems with lows and ash her if you can dial down your dosage of diabetes medication so you can enjoy life with no more than one or two mow blood sugars a week. You are in my prayers.

Type1Lou 2015-01-13 07:36:46 -0600 Report

As long as you experience low BG's, make certain you always have a FAST-ACTING glucose source with you to get those BG's back up. Fast-acting glucose comes in the forms of gel, tablets or liquids. In a pinch, just mixing sugar in water will work. Raisins and some juices or regular soda also work. Stay away from anything with fat in it (candybars etc) since the glucose won't be absorbed as quickly as you need it.

ohneclue 2015-01-12 16:34:30 -0600 Report

What is the strength of your glucophage tablets? You might need a lower dose so I would suggest you CALL your doctor before Thursday's appt and ask about cutting itin half. I've had my BG (please, not bs ;) ) as low as 25 and my husband knows to wake me up. and see what is going on. Usually waking me up does the trick and my BG starts back up again without any sugar stuff, but some food helps. When you lose the weight as you've done, that usually changes your medication load which is WHY it is so important to lose the weight. But now, it's important to change your medication dose OR routine or both. CALL your doctor today.

GabbyPA 2015-01-12 13:58:37 -0600 Report

What kind of meds are you taking? Those lows are scarey numbers for sure and blacking out is not good. What has your doctor's said about what is happening? Should you maybe be eating a little more slow release carbs to help keep you going?

kathymbs3 2015-01-12 13:35:13 -0600 Report

I am really sorry you are having a rough time of it, I can't give advice because i don't have diabetes, but i do have my health problems

Skatinlayton 2015-01-12 09:52:56 -0600 Report

My neice is a nurse working with young children with diabetes and their families. She informed me that there is an emergency glucose pen that you can carry with you at all times. I suffer from lows but not like yours. I would check into carrying one for safeties sake. Be carefull and take care of yourself.

Billie Kay
Billie Kay 2015-01-13 11:44:45 -0600 Report

I have had insulant depend diabetes for 40 years
It is a balancing act with your activity carb intake and your meds

Type1Lou 2015-01-12 14:18:54 -0600 Report

It's actually called a glucagon kit. It is available via prescription. I always have one on hand because, prior to starting on a pump in 2011, I had many serious and scary low BG's. My husband learned to administer/inject the glucagon to raise my BG's. ALWAYS check the expiration date and replace one that has expired because it will not work as effectively if at all…I know from experience.

Skatinlayton 2015-01-12 20:04:24 -0600 Report

How long is the period of time a kit is usualy good for?

Type1Lou 2015-01-13 07:31:47 -0600 Report

I just looked at the one I have and it expires in August 2015. I think I may have gotten it in the spring of 2014…so at least a year, maybe a bit longer.

Skatinlayton 2015-01-13 12:09:49 -0600 Report

Thanks, I think I will talk to my doc so I can have one on hand. I go on long bike rides of 30 miles or more and it would be nice to have that security.

Type1Lou 2015-01-13 16:03:16 -0600 Report

I think glucagon should be used in extreme low BG cases…We used it when I was either unconscious or not coherent and able to help myself. I always keep a fast-acting carb on me when I leave the house. Discuss with your doctor when glucagon is appropriate, OK?

lilleyheidi 2015-01-12 01:01:46 -0600 Report

I am not a doctor… I can only say the others here have given good advice. If your BG drops again, before you see your doctor, PLEASE call him right away, immediately. Or go to the ER immediately. Low BG is not something to mess around with. Best of health. Heidi

RebDee 2015-01-11 21:23:25 -0600 Report

Glucophage caused me to have lows also before I switched to insulin. Occasionally insulin caused hypoglycemic episodes also but that was probably because I didn't eat enough or not late enough since my episodes always happen at night, I am very lucky that my dog, Artemus Gordon wakes me when he notices that it is happening so that I can go to eat something.

sweetslover 2015-01-11 21:57:29 -0600 Report

I do not think going to your endo can be considered going over a PA's head. Crashing when you are not even on meds does not sound good.

robertoj 2015-01-11 20:33:17 -0600 Report

Except for the beginning I haven't had any extreme highs but have had lows. My doctor has me on a slightly high bg.

Kats49 2015-01-11 20:07:36 -0600 Report

I would advise you to get another endocrinologist. Keep records and call the current Doctor you have and report the numbers to them. You are going to end up in a medical emergency or even a coma. and in that state it is hard to think much less function. One thing that will always work is to keep a high quality protein available such as a nut butter…so when you start to crash you can intervene. But, until you need some professional assistance and the ER is there for that purpose. Good luck
It is a scary feeling and not one I would wish on anyone.

sweetjoy 2015-01-17 10:30:51 -0600 Report

High protein, high fat such as a nut butter is not good to raise BG. juice, some kind of sugar is what works. However, i remember a time i went low and couldn't even think where i put my glucose tablets to chew them when i purposely always kept them in the same outside pocket of my bag for easy access. Since i started taking Lantus the lows have stopped.

Rosie9940 2015-01-11 19:57:29 -0600 Report

Hi, for me then Glucophage never worked..tried all pills,before I was put on lantus…and 6 smalls meals are not good either. My Dr said 3 meals and 3 snacks

Stuart1966 2015-01-11 19:52:47 -0600 Report

The problem is NOT any "high's". What you have happening is too many nasty lows. One can kick someone teeth in, but repeatedly, frequently. Uggh.

Call the doctor TODAY, tell them you've had XYZ lows in the 30-50) range in the last week (your specifics), provided you have enough to raise some red flags for the person whomever is answering the phone.

Based on your description, the med dose definitely sounds too high, and you need to get in corrected immediately, ANYBODY would.

Don't know your particulars, however sounds like you want to double up on what you are eating, specifically the protein, and some more complex carbs, instead of "simple" carbs (e.g. anything that gets broken down too easily, and ties weights to your ankles BG wise).

What are you drinking these days? Any juice(s) in what you're eating at breakfast? Trying to probe a little here, bare with me… any wine/alcohol at dinner? What kind of junk food do you eat (if any) when you do? What kind of quantities are we talking about…?

At this point, as long as you stop crashing, you don't care frankly. Long as it stops, preferably before the appt.!!!

Stuart1966 2015-01-11 20:36:19 -0600 Report

PS, what kind of FAT do you eat… butter, margarine, soy… what goes on the toast?

Usually, a much higher, MUCH higher amount of fat in whatever (sic. everything) we eat will slow down the digestion/breakdown into the sugars and nutrients in your bloodstream.

Weird and counter intuitive, but try adding a boat load more fat, JUST until you can get this to stop for a couple days. Once you see the dietitian, you will be fine.

Eat peanut butter? Soy butter? Its got a nice amount, plus is definately protein.

Tsey52 2015-01-11 19:09:16 -0600 Report

Funny, I am so sorry to hear you are having so many bs lows & crashes. I do agree with Just Joyce about making sure you eat enough at meals and get protein. Please check with your dr. as soon as possible and take care. It sounds like you are in serious trouble, so please take care & let me know how you are doing.

Anonymous 2015-01-11 18:08:53 -0600 Report

Get with your health care provider ASAP and start carrying a protein bar or energy bar with you, protein last longer better in my opinion.

Fefe12 2015-01-11 17:54:53 -0600 Report

Please, please take our advise and go to your endrocologist right away. If you don't have one find one immediately. All we can do is tell you what has and hasn't worked for us and share ideas. But medical advise no! Let us know how your doing.

Freedom wolf
Freedom wolf 2015-01-11 16:42:51 -0600 Report

You sound like you are in serious trouble to the point I would go to the er and tell them exactly what is going on. Does your dr. Know the severity of your symptoms because if they did they would suggest the same thing. It sounds like your system is working against you. Please get help immediately with no hesitations. Are you on any medications now?
Let me know how things go.

Chairmaker 2015-01-11 16:15:25 -0600 Report

I had some what of the same problem recently, only my readings were off the chart so to speak. Normal for me was in the 250 to 400 mg when I would check my blood sugar.
My regular doctor checked all the medications I was taking and he had me to stop taking a few of them and had me change my dosage for a few more.
It is going on 3 month's now and I have only had 2 times where my BG level was higher than the sliding scale I go by for taking one of two of the Insulin's I am presently taking. That, plus losing several pounds of my weight, I actually feel a lot better.
Maybe have your personal doctor recheck the med's you are taking because the change my doctor gave me has really helped.

Bill65 2015-01-11 14:57:22 -0600 Report

I agree with Dr. John to not take medical advice from these postings. I never do but I do look at them to see if any seem to be close to my issues. The reason for this is that I can ask my Dr. about doing something like that myself. My Dr. may agree or may not but it does show that I am consciousness enough to try to do a little research prior to my visit. I used to have my bs going all over the place, including up in the 300's at times and as low as in the 40's and maybe lower. There were a few times that I even passed out and my wife forced some glucose tabs in me to bring me back around. My Dr. could not figure it out. I then had an accident which nearly cost me my leg, if not my life. After getting out of the hospital, my Dr. reduced my Levemir from 60 units twice a day to 47 units once a day. He also reduced my Apidra drastically also. We worked out a sliding scale for me to go by, not a standard diabetic scale used in the clinics and Hospitals. It took awhile to get it adjusted properly, but it has helped my out tremendously. Maybe something like this could help you. It started with me keeping track of my bs readings along with the amount of insulin taken and the amount of carbs and calories and the times for all of this. Maybe something like this may be helpful for you and your Dr's. Whatever is decided by you and your medical staff, I wish the best for you.

Phagen 2015-01-11 14:43:45 -0600 Report

I just read the other posts here after I posted mine. I agree that these questions are better asked to your doctor, but I appreciate that you asked them here too. It gives the rest of us some insight into what others are experiencing with their diabetes so we can compare our own problems…Thanks for posting.

Type1Lou 2015-01-11 14:16:12 -0600 Report

Are you currently seeing an endocrinologist? They are the specialists in diabetes, whether you are Type 2 or Type 1. (I'm assuming you are a Type 2 because you are taking glucophage.) Endocrinologists have more knowledge than primary care doctors about what might work best for you. In 2010, I was seeing my PCP for my diabetes and his treatment almost killed me. I self-referred to an endo who took things in hand, reduced my meds and eventually started me on an insulin pump which virtually eliminated those scary lows. There are alternatives for you. Please keep us posted.

Kats49 2015-01-11 20:13:43 -0600 Report

I had that very same issue with my PCP..finally when I was having 30/40 in the middle of the nite almost daily they referred me to an endocrinologist. The PCP are not trained specifically, the endocrinologist are.

Chuck Fisher
Chuck Fisher 2015-01-11 13:33:01 -0600 Report

I hope that you have recorded your BG measurements and present them to your medical professionals.

In my case, I prepare charts and tables with measurements and trends for my doctor to to review. I also have notes along with the measurements such as time after last meal, feeling sick, or switching to a new lot of test strips. But then I am probably my doctor's only diabetic patient to do so.

Also I would suggest acquiring a kitchen nutritional scale and weighing what you eat. You can determine how many calories, carbs, protein and fat you are eating. Your dietician can recommend goals for you. The scale helps you reach those goals.

Just Joyce
Just Joyce 2015-01-11 13:19:03 -0600 Report

The question is are you eating enough food to compensate for the exercising? Are you adding protein to your diet. I eat three meals with snacks. 6 small meals do not work for me.

The ONLY person to ask about medications is your doctor. Under no circumstances do would I ever give medical advice. Just because some of us are on different medications does not mean that these medications will work for you. When I have medical problems , I do not wait for my next appointment. I call the doctor immediately.

I had a really bad problem with being high and low all in a matter of several hours. I went to the ER an then my doctor. My appointment was 3 months away. If I were you, I would not wait to see him/her, I would be on the phone. I do not take medical advice from anyone who is not my doctor or a part of the medical system in my healthcare network.

maryanne55 2015-01-11 17:21:13 -0600 Report

good answer just joyce. was my thought exactly. eating enough and not waiting too long before eating is a big problem for low sugars. i have highs but once in awhile i wait too long before eating and it drops very low

funnygirl98 2015-01-11 17:54:50 -0600 Report

I am not on any meds for my diabetes… just glucophage tablets for when I keep crashing low. I control my diabetes with diet and excercize right now but if I move around too much I start getting the symptoms of being low and so I have to sit down and eat or drink something to bring my bs back up. I have talked to my primary dr. about this and he doesn't act like this is a problem. On Thursday I see my surgeon's PA who is specialized in diabetes and also my diabetic dietician and I am bringing this up to them. I don't know if my PA will send me back to my ENDO for this problem or not… if she doesn't I think I'll b going over her head and seeing my Endo myself cause with my bg crashing like it does it's making me scared out of my wits. I will for sure keep u all posted so when I get some answers to my problem I will b sure to let u all know also. Thanks for all ur replies they really mean a lot to me;-)

Rollerball 2015-01-12 03:56:26 -0600 Report

See your diabetes clinic as soon as possible, and take as much info as possible, ie.. a log book of all your meds what you've eaten and the times of day etc… Take care

Just Joyce
Just Joyce 2015-01-11 22:18:43 -0600 Report

What is Glucophage?

Glucophage (metformin) is an oral diabetes medicine that helps control blood sugar levels.

Glucophage is for people with type 2 diabetes. Glucophage is sometimes used in combination with insulin or other medications, but it is not for treating type 1 diabetes.

Glucophage may also be used for purposes not listed in this medication guide.

You are taking a diabetic medication and it lowers your blood sugar. Didn't you ask your doctor what the medication was for?

I take 500 mgs every day an it keeps my BS low. If you are not eating properly and are exercising you are causing the lows. You should be on the phone with your doctor.

maryanne55 2015-01-13 11:24:29 -0600 Report

very true Joyce. i have high bs and im on glucophage metformin and insulin and im type 2. i would think dr would not recommend that for anyone with lows like that. just saying

jcarlisle 2015-01-11 19:39:44 -0600 Report

Hi Funnygirl98! I think you are throwing people off with the comment you made that you are not taking any Meds for Diabetes, but are taking Glucophage tablets for when you go low… Glucophage is a diabetic medicine… do you mean Glucose tablets by chance? if not, and you are really taking Glucophage when you are low, that will just try to lower your sugar more… I am not a Doctor, so don't take my word for it… how ever I do work for a Pharma company, and being a Type 1 Diabetic, I do try to keep up on all the stuff that effects diabetics! when you go low… Take a couple glucose tablets… will get your sugar back on track pretty quick… going low is a scary thing… I have been up and answering questions when my sugar was at 22… bet felt like I just wanted to take a nap, so I do understand what you mean with that! Keep us posted on what you find out from your Endo!

Just Joyce
Just Joyce 2015-01-11 22:15:30 -0600 Report

Excellent post. People want advice but never give the full story. Glucophage is Metformin. This means she is medication. If she didn't know this she didn't ask her doctor what she was taking the medication for.

Just Joyce
Just Joyce 2015-01-11 17:41:52 -0600 Report

When you speak to your dietitian, ask about eating and exercising. You cannot wait too long to eat and should keep snacks available. Sometimes in an effort to do the right things people find that to a point they have been irresponsible. As Dr, John said, "This is for your doctor to answer, not here". Instead of asking people who are not doctors and who have no idea what your medical situation is or what your treatment requires, your doctor is the only one who can answer your medical questions. Diabetes is not a one size fits all disease. Take care of yourself and good luck to you.

DrJohn 2015-01-11 12:49:26 -0600 Report

I cannot give you any advice because I have no idea if you are type 1 or type 2 or if you are taking insulin and what kind. This is for your doctor to answer, not here.

Anonymous 2015-01-11 22:46:23 -0600 Report

*Chuckle* I agree that for Medicine only HER Doctor should give her Medical Advice… However you should have been able to deduce that she was a Type 2 from her saying she took Glucophage, since that is not used to treat Type 1 Diabetes… now it is used for some type 2's and even by some type 2's that are force to take Insulin at times…

Just Joyce
Just Joyce 2015-01-11 13:21:02 -0600 Report

I agree with you 100%. When it comes to medical problems, asking people who are not physicians or even know what your medical treatment plan may be is not the wise thing to do and in my opinion is irresponsible. People have got to learn that this is why they have doctors.

Just Joyce
Just Joyce 2015-01-11 13:20:49 -0600 Report

I agree with you 100%. When it comes to medical problems, asking people who are not physicians or even know what your medical treatment plan may be is not the wise thing to do and in my opinion is irresponsible. People have got to learn that this is why they have doctors.

denipink57 2015-01-11 12:48:59 -0600 Report

geeze funny, i am so sorry you are going thru this. do you eat a protein with each meal? i used to have a lot of lows with similar symptoms as you and my diabetic nurse told me to start eating a protein with every meal. to do this is just eat a tablespoon of peanut butter after each meal and since i have been doing this and keeping my insulin lower i have not had any more lows. discuss this with your diabetic care giver to see if this might help you too.

good luck. i am praying for you.