Hello Everyone

By CannaMonty Latest Reply 2014-12-23 03:42:59 -0600
Started 2014-12-22 07:12:36 -0600

Although I've been t1 for 15 years I am new to looking for help and support. My years of neglect are rapidly catching up to me and I am left with all kinds of feelings. I have nerve pain in my feet and i am blind in an eye at the moment with a doctor wanting to do surgery. I'm scared and I feel all alone no matter what kind of support i have with my family and friends. Which i am not lacking in the least bit. BUT i dont know anyone like myself. Please help me. Let me know Im not alone here. Im crying as i type this message.

5 replies

lilleyheidi 2014-12-23 03:42:59 -0600 Report

Hi and welcome, I'm type2 diabetic, so don't necessarily know all you go through, but have similar issues. Like you I neglected my diabetes for several years and am paying the consequences with neuropathy. It wasn't until I lost a good friend to kidney failure (not diabetes related) that i woke up a bit and decided to take my diabetes seriously this past summer.
Your not alone at all. Spend time in Diabetic Connect, talk to us, ask questions, share your concerns, and talk to your endocrinologist and maybe dietician and get back up on that horse. We'll support you, but ultimately you have to be the one to make the changes necessary for your health.
I wish you the best of health. HUGS, Heidi

RebDee 2014-12-22 09:45:32 -0600 Report

Dear CannaMonty: You are definitely not alone and there are many like you and me. I am blind in my right eye and had diabetic neuropathy in my feet (but not longer since I had my bariatric surgery and now eat much differently than I ever did before). Ask any questions you wish and I guarantee that members of the Diabetic Connect community will answer you with help and love.

Type1Lou 2014-12-22 09:27:13 -0600 Report

I've been a Type 1 for 38 years and was not always really good about my control either. You are definitely not alone. It is not too late to take the reins and tighten up your control. I took steps to lower my carb intake about 10 years ago and that has helped prevent some of my complications from getting any worse. I have some neuropathy in my feet and some diabetic retinopathy but nothing that is really serious or impairing yet. After years on MDI, I began to use an insulin pump in 2011. Pumping has given me tighter control with less overall insulin and eliminated the scary low BG's. I limit my carbs to 120 grams per day and my last A1c was 6.9…I need to get that lower…mid-6's is my immediate goal which means even fewer carbs…not easy but the results are worth it. Wishing you the strength and resolve you need for better control in 2015!

wraithmb 2014-12-22 08:58:58 -0600 Report

Hi Canna!

Like you, I've been a T1 for quite a few years now. I've neglected it since just before my 18th birthday. Although my complications don't seem as bad as yours, they are most definitely a wake up call. For a good 4 to 6 months over summer, I was doing a pretty good job of looking after things, but about three months ago, I got into s situation that left me scrambling for everything. My diabetes suffered once again. But with the end of this situation I can now get back on the horse, so to speak.

James, as I often find, is right on the money with questioning whether you really need surgery, or if there is another way. Your treatment is ultimately up to you. If you feel that it is better handled another way, then it is your decision to make, not a doctor or a surgeon's.

You most definitely are not alone. :-)

jayabee52 2014-12-22 07:41:57 -0600 Report

Howdy Canna
You are not alone! There are thousands of people like you are here.

I too had neglected and abused my body for too long and now my biggest problem is I have burning neuropathy from knees to toes. I also have Chronic Kidney disease (stage 5) for which I need dialysis 3 days/wk 4 hrs per session.
I also have other lesser "medical challenges" as well.

I am now serious about managing my diabetes and do so by following a low carb, high protein meal plan. I have been on Rx pills and NPH insulin for a while but discovered my pancreas was producing enough insulin on its own to allow me to manage my diabetes if I eat very carefully.

I am curious as to what kind of surgery that Dr wants to do. Before undergoing the scalpel, I would want to know if this were something which could be handled another way, like with a modified eating plan. Sometimes with surgeons they want to cut on you for profit. It is said that if the only tool one has is a hammer everything looks like a nail.

Praying for your improving health