Pancreatitis

MANDIE2262
By MANDIE2262 Latest Reply 2009-05-26 18:19:48 -0500
Started 2009-05-23 19:00:21 -0500

I'm interested in hearing from people that are Diabetic because they had Pancreatitis. I had Pancreatitis when I was 25 years old. It was caused from a gall stone. Imagine that everything is fine and wonderful and a month after my little daughter was born…BAM… my life turned upside down. I was given less than a 40% chance of survival but I fought hard and I'm still here. I spent almost 6 months in the hospital and had multiple surgeries. That was almost 8 years ago. Everyday is such a struggle and I always feel so drained. I just want to hear that there are others out there that may have been through something similar. Sometimes I just feel all alone, like no one understands.


13 replies

BeckyJ
BeckyJ 2009-05-26 18:19:48 -0500 Report

I'm sorry to hear that you are still having a lot of trouble. I can only tell you from personal experience that limiting the foods on the list did offer some relief. I still have flareups on occasion and my Dad has gotten to the point where he can only eat if he takes a special medication called Creon. It replaces a naturally occuring enzyme in the pancreas that breaks down the food he eats. Amazingly with both Pancreatitis and Crohn's he is not diabetic…this stumps his Gastroenterologist no end! We believe that it's because he has always been so healthy otherwise. Never drank to excess or used recreational drugs in his life. They believe that his problems arrise from a early childhood experience with scarlet fever. Praying you get to feeling better!

BeckyJ
BeckyJ 2009-05-24 21:02:48 -0500 Report

This kind of touched base with me. My father has chronic pancreatitis with crohn's disease. He has been fighting this battle for 5 years now. There have been several close calls when he had to go to the hospital with an acute attack of pancreatitis that had to be stabalized but through God's will he has survived. Every day is a battle with medication to help him digest his food and lots of pain medication. I have a milder case of crohn's disease and I have some helpful advice if you don't mind. It has truly made a difference in how Dad and I handle the pain from these awful conditions.

1. Eat small meals/snacks every 3-4 hrs
2. Try low fiber foods during flareups
3. Drink lots of fluids
4. Try foods with probiotics/prebiotics
5. When syptom free include whole grains and variety of fruits & veg but start new foods one at a time to see which may cause flareups.
6. Relax before, during, and after meals.
7. Avoid distractions while eating.
8. Take small bites and chew food well.
9. Sip beverages instead of gulping, especially during mealtime.

Foods to AVOID:
Whole Milk
Half & Half
Ice Cream
Fried Meats (including sausage & bacon)
Luncheon Meats (Bologna or Salami)
Hot Dogs
Tough or Chewy cuts of meat
Fried Eggs
All dried beans, peas, nuts
Chuncky Nut Butters(I really miss the PB)
Whole wheat or wheat grain breads, rolls
Brown Rice or Wild Rice
Cereals made from whole grain(excluding steel cut oatmeal)
Any grain foods made with seeds or nuts
Beets
Broccoli, Brussel Sprouts
Cabbage and Sauerkraut
Cauliflower, Corn
Greens(mustard, turnip, collards) Spinach
Lima Beans
Mushrooms
Okra
Onions
Parsnips
Peppers
Potato Skins
Winter Squash
ALL Raw fruits except peeled apple, ripe bananas and melon
Canned berries, canned cherries
Dried fruits, including raisins
Prune Juice
Caffeine, including coffee, tea, soda
Alcoholic Drinks
Sweet fruit juices as they make pain worse
Sugar Alcohols (sorbitol, mannitol, xylitol) as these may cause intestional discomfort

Sorry if this went on a while but taking these particular steps and removing the foods on the list have helped us both considerably. I'm sure you have probably gotten the list from a dietician but just in case I thought it might help.

MANDIE2262
MANDIE2262 2009-05-24 21:19:05 -0500 Report

Thank you so much!! I really appreciate the info. There are a lot of things on that list of what to avoid that I really do like to eat so maybe if I cut those out then I will start feeling better. Sometimes my stomach hurts so bad I just sit in the floor and cry. Wonder if I need to have the doc check for Crohn's too?

LindaRuth
LindaRuth 2009-05-25 10:56:45 -0500 Report

It is amazing how some doctors focus on one thing and fail to see the big picture. My husband fell and had a serious head injury, that was their focus. While in the hospital he became jaundice and the medical staff kept telling me it was because of the head injury. When I finally became obnoxious and insisted that his doctor do a gall bladder series and a liver scan just to satisfy me.. they found he had a gangrenous gall bladder and they immediently took him to emergency surgery. He was in intensive care for a month and nearly died because the doctor and nurses saw a head injury instead of a human being that was very ill.
Don't blame yourself for what happened to you, it happens more that you think. Thank God you had a caring family that insisted you be transfered. I tell everyone I know that your doctor is not infallable and if you aren't satisfied with what they are telling you …find another doctor. Medical people are only human and cover up thousands of mistakes to protect their image.

MANDIE2262
MANDIE2262 2009-05-24 17:55:19 -0500 Report

Thank you all for your comments. Just going to fill you in a little more about my experience. I was about 7 mths preg when I started having severe pains in my back and side. At the time they were concerned with the effects that treatment would have on the baby and really didn't do much but the pain got worse and they finally did an urgent c-section. My daughter was 5 weeks early and was airlifted and spent 10 days in the NICU at the children's hospital. We hadn't been home with her long when the pains returned much worse than they were before. I went to ER and the doc said I had gall stones. I elected to go back home that night after the pain was managable because I wanted to be with my daughter. I went to the surgeon to discuss surgery and each time we had it scheduled, his office would call and reschedule it. This went on for several weeks. Finally, one night the pain got so bad that I thought I was dying. Turns out a gall stone got out into the bile duct and that led to the Pancreatitis. I was in the hospital for 2 weeks but I don't think my doc knew what he was doing because he kept trying to make me eat even though I couldn't keep anything down. I was feeling a little better and went home from the hospital still trying to eat but unable to keep much down at all. My mom did some research and found that I shouldn't be eating at all. I went back into the hospital about 2 weeks later. I laid there for another couple of weeks without much being done. My doc kept telling me there was just nothing he could do except wait. I kept asking about being transfered to a hospital in Nashville (Vanderbilt) and he just said they couldn't do anything he wasn't already doing. Finally, My family demanded that I be transfered or they were going to take me themselves. I got transfered to Vanderbilt and within about a week I had my first surgery. It was supposed to take a few hours and wound up taking 9 hrs. The doctor there said he wished he'd known how bad it was sooner. He gave less than 40% chance to make it through the next 24hrs. He said if I made it through that then there may be hope but it would be a long, hard battle. I was one of only a few patients with Pancreatitis that he'd ever seen that did survive. He said that about 90-95% of the people that develop Pancreatitis don't make it. I stayed in Vanderbilt for 3 months and had 3 surgeries. After the 2nd surgery, the doc said when he cut me open he almost just closed me back up to die. The infection didn't seem to be getting better. They elected to surgically put in feeding tubes and them when those were removed, the put a stomach drain in, so that I could actually get my body used to eating again but everything I ate came right back through the tube. It was actually 4 months after the diagnosis before I could actually eat and keep anything down. I'm sorry about going on and on but it feels better to talk about it with people that might actually understand. It took me over a year before I could really talk about it. My biggest problem was blaming myself for what happened because I should have stayed in the hospital the first night they found the gall stones and none of this would have probably happened.

Lisa Ann
Lisa Ann 2009-05-24 15:42:13 -0500 Report

I had my gallbladder removed 19 years ago. Then in May of 2005 I had Pancreatitis. I was having bad pains like I did when I had gallstones, so I went to the ER they told me it was basicly gas and told me to see my dr for a follow up. Went to see my dr who pressed on my adominal area which caused severe pain. She sent me to get an ultra sound the next day. They didn't let me leave. I was in the hospital for 5 days with IVs and nothing to eat or drink for the first 4 to clean out everything. After I had it I heard about alot of people that almost died from it. I should have known that I would get diabeties sooner or later. I was told I had it 3 years later. Good Luck with your battle.

LindaRuth
LindaRuth 2009-05-24 15:20:09 -0500 Report

I too am a diabetic due to Pancreatis. I was perfectly healthy one minute and the next I was deathly ill. Thanks to the emergency room staff and my doctors I was diagnosed with Pancreatitis quickly and started on heavy doses of IV antibiotics. After about 3 weeks in the hospital I went to surgery and they removed my gall bladder which was the cause of my disease. I am now back to normal except for diabetes which is under control and cysts that are on the pancrease that I worry may become cancerous but I will deal with that if and when it happens. I also have low energy and pains in places that are a mystery as to why and where the pain comes from but I deal with that as well as I can and hope for the best. I am thankful just to be alive as it could have turned out much worse than it was. Out of the blue your life becomes turned upside down.
I wish you well and will keep you in my thoughts and prayers. I do understand how frustrating it can make you feel.

Judimar
Judimar 2009-05-23 19:15:05 -0500 Report

Hi Mandie,

I had a very dear friend, Lorrie, who went through something similiar. She was healthy one minute and the next she was very sick. I met her shortly after she became ill. She went through a lot of surgeries… she never found out what caused the pancreatitis. She had one doctor accuse of her being a closet alcoholic. The thing is she never drank alcohol because she didn't like the taste of it. She suffered chronic pain as well.

I am sure you are not alone and that there are others out there who can relate to your story. I hope you find some here :) Even though I haven't gone through what you have, I want to be here to support you. Feel free to contact me anytime.

*hugs*

Judi

MANDIE2262
MANDIE2262 2009-05-23 22:54:20 -0500 Report

I had to do a lot of research myself to try to find out some things and still haven't found much. The doctor's just don't seem to know alot about it and most people that have had it don't live long. And the biggest cause IS years of alcohol abuse. But I may have had 2 or 3 drinks in my entire life before this happened to me. Now I have very bad chronic pain. I hurt so bad all the time. People look at me like I'm crazy because I'm so young but I feel so horrible. I have no energy at all. I used to work 60-70 hours a week. Now I can't really work at all. Some days I can manage ok but most days I barely even feel like moving. I tried to continue working after the doctor released me but I finally quit my job about 2 and a half years ago. I was on medical leave more than I was at work. I feel like people think I'm making stuff up because there's like a whole list of things wrong now and I used to be pretty healthy. It's just frustrating…very, very frustrating. I try not to complain because it could be much worse.

Judimar
Judimar 2009-05-24 02:40:06 -0500 Report

Mandie,

Your story sounds very similiar to Lorrie's. I wish there were more I could do to help you. I believe every word you say because it sounds almost exactly what happened with my beautiful friend. I am certain you are very very very frustrated. I wish there were more I can do then give you a shoulder to lean on. I wish Lorrie was still around for you to talk with. Please know you are in my thoughts and prayers.

*hugs*

Judi

the5thone
the5thone 2009-05-24 04:19:01 -0500 Report

My girl firend had this just last week. They said the same thing to us aboout what cause's this. Gallblader, drinking, not enough fluids. So they put her in the hospital with IV's. So while she was in there she didnt get any water and, or any food of any kind. They said they needed to starve her intell it settled down. After a few days it did that and then she slowly got better. Only the problem with her was she didnt have her gallblader at the time. Also they said its from drinking for a long time. But she nevers drinks. If she does then its only a couple drinks every 5-6 months. Oh!, shes also an oral diabetic.

MANDIE2262
MANDIE2262 2009-05-24 12:46:27 -0500 Report

Thanks Judi. Just knowing that I'm not crazy and at least someone understands that I'm not making this stuff up makes me feel a little better. I wish your freind was still around too. I'll bet she was a wonderful lady.

Judimar
Judimar 2009-05-24 13:44:57 -0500 Report

Yes she was indeed. She was a woman of faith and prayer. The one regret I have is she never was able to find the child she had given away when she was young. She searched for her for years but was never able to find her. She wanted her daughter to know her medical background in case she ever suffered like Lorrie did. Putting her child up for adoption was undoubtedly the hardest thing Lorrie had to do and it was one of her biggest regrets.

I am certain you are a wonderful person as well Mandie. I hope and pray that something more can be done for people suffering from pancreatitis soon.

*hugs*

Judi

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