Hi friends. With MUCH THOUGHT, I decided to post "My Story" after reading some other discussions that left me sitting here thinking about life in general.
When I was diagnosed with Type 1 on December 01, 2008, I said okay that's fine, it can be treated. I felt that way then and still do. Of course I started reading about T1 verses T2 and they are very similar. You just treat the two differently. I bet if we took a vote, none of us would chose one over the other, I wouldn't.
My close friends on DC know this and I had decided to keep it private, however, I don't think I need to now. This has been the week from hell for me. I have not been "well" since I was diagnosed with T1 in December. I was still sleeping approximately 18 out of 24 hours a day. I had major insulin problems, I was allergic to every type insulin ever made. I would bottom out with 1mg of insulin. This is why I ask "Can you be misdiagnosed with diabetes?" I lost a ton of weight in December and have been loosing more and more since. I'm 82 pounds at 5'9" tall. I have ALWAYS had a huge appetite, but could not keep any food. They blamed that on the strong vitamins I was taking and said it would turn around. It never did. I went to my Endo on Monday, found out I weighed 82 pounds, could barely get my blood pressure it was so low and ketones were back. Guess what, other diseases cause ketones to go crazy that I didn't know.
This is what I'm 100% sure of at this point. 100% positive for Type 1 Diabetes. End of debate, no doubt. C-Peptide test showed 0% insulin production once again. 100% for Addison's Disease. (They say you do NOT inherit Addison's, my mother has dealt with Addison's for over 40 years.) This time, Ketones were present because of Addison's, not diabetes. 100% positive for Crohn’s disease. I have a bile spill which will require surgery. I also have stage 2 colon cancer. And there are more, these are the ones they are trying to do something with first.
I am an extremely positive person, but I tell you, I'm having my moments. This is a true nightmare that won't go away. I wish you would remember me in your prayers. I have a long road and a lot of hard choices to make. I hope I pick the right ones. I plan on fighting, I still don't feel terrible but I definitely don't feel good either. I will keep you posted when I can. I will ask Jocelyn, Diane, Judy and Joyce to keep you posted if I can't use my computer.
DC is a wonderful site. It's sad a few bad apples show up here or any other place you go. Just ignore them and move on. If you're new here, you will find out very fast how many great people are on DC. If not for my friends on DC pushing me, I probably wouldn't have gone to my Endo appointment on Monday. I was tired of hospitals and doctors and tests. It's a good thing I did, this all came on in a couple of months.
Please listen to your body. I screamed for months I wasn't just having "growing pains of T1", I knew it, could feel it, you know your body, so please, please, listen to it and find a doctor or 100 doctor's that will listen to you.
All I want is to go home, see my cocker spaniels, and of course to get better if it's in my cards.
Love n Hugs, Angie
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