Out of control

By adavilee Latest Reply 2014-12-01 10:47:45 -0600
Started 2014-11-29 23:08:34 -0600

I've been diabetic since the birth of my son (9 years ago). It was uncontrolled up until last year when I decided to take my health seriously. I went from a 11 A1c to a 5.5 A1c in 4 months. I was doing great and feeling great. This past July my health took a bad turn. I suddenly felt sick and landed in the hospital after 3 weeks of not being able to walk due to edema all over my body and pain in all my bones. I was being treated for lymes disease and constantly told I was "alright". I kept getting worse and long story short it turns out I was diagnosed with Lefgroms syndrome which is a type of sarcoidosis. Since then I've been taking prednisone and methotrexate. I have blown up and since gained 30 plus pounds. Of course my diabetes is out of control. I don't know what my a1c is at the moment but I know I don't feel great. These extra pounds are very inconvenient. Now I know what I should be doing but it's so hard mentally to take that big step. My self esteem and motivation is on an all time low. At this point I would love some motivational advice. Please help thank you.

3 replies

haynes_valerie@yahoo.com 2014-12-01 10:47:45 -0600 Report

Good Monday, adavilee I do understand how it is to have everything turn bad for you and not sure where to go, but just think of it this way it could have been worse. I know that's easy said than done, I just came back from the doctors for my post opt from have a fistula put in for dialysis, and they said it stop working. This is the second one they put in since last Thursday because the first one stop working after I got in recovery, so I do understand being down and out. Now they are trying to figure out what's the next go around. I too am tired and frustrated with all these complications with being a diabetic. So if at ANYTIME you want to vent I'm here for you. Stay Blessed and Be Encouraged.

GabbyPA 2014-12-01 07:22:12 -0600 Report

What are they asking you to do that is so hard? Maybe you could just take on one of their suggestions for now. Pick one that seems the least scary or one that you feel you could accomplish. That little victory can feed your soul and help you on that climb.

For your levels, the predinzone is a problem and causes levels to rise. I don't know about the methotrexate. I tried to look up Lefgroms syndrome but could not find anything, but did find a little on sarcoidosis. The lungs are very delicate and a friend of mine has a rare fungus growing in hers. She's also a type 2 diabetic and has to do a trade off of predinzone to keep the fungus at bay but it also raises her levels. Though she is still able to keep them under 150 most of the time through careful diet and she walks a lot.

One thing I did read about sarcoidosis is that there is nothing you can do to prevent it. So don't beat yourself up about it. Here is a little information on it. I am not sure its specifically what you have, but it might give you some clues. http://www.webmd.com/lung/understanding-sarcoidosis-treatment

Dig deep and find that determination that helped you get on the right path before. That person is still there, she just kind of went of a vacation. Time for her to come home.

jayabee52 2014-11-30 23:18:57 -0600 Report

Howdy Ada
I am sorry to learn of your difficulty.

Yes with predinsone and methotrexate your BG (blood glusose) levels are going to be crazy. My late wife had lupis and had to use those meds as well and they messed with her BG levels too.

I looked up Lofgrens syndrome and found this ~ http://arthritis.ygoy.com/2011/06/30/what-is-... . It is interesting that the article has as its parting word: "Although the above mentioned symptoms can look frightening, Löfgren syndrome is self-limiting and only a benign but, not a malignant condition. In most people, the symptoms alleviate within a period of 6-24 months. Only in a few cases though, the symptoms might take a longer time to improve."

I know that it is probably not what you want to hear right now when you are being plagued by it, but I believe it was Winston Churchill who said: "When you are going through hell —- keep going" Stick with trying to manage your diabetes as best you can. Know that there are reasons you are having trouble controlling it, but as the parting word of the article said, it will eventually go away and then you may well be able to get your BG back under control.

Praying for improving health

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