Worried, Confused and Stressed, Oh my

lovelifelive
By lovelifelive Latest Reply 2014-12-10 12:15:39 -0600
Started 2014-11-28 21:49:57 -0600

Hello All, this is my first post and I just joined today. Right now I'm feeling pretty bad. To tell you little about myself, type 2 diabetes runs in my family. All of my Aunts on my moms side have the disease. My mom also had gestational diabetes. I also had gestational diabetes 9 years ago. And I have been overweight for the last 16 years with maintaining BMI of about 30- 41 %. I'm now at 41%. In June I was had a physical and A1C came back 7.4 - I was prescribed Metformin 500 mg twice daily. However, I didn't start taking it until September, but never consistent. My Creatinine level was also .80 - Fast forward, I lost my job in June and have been extremely stressed and haven't changed any eating habits. Although my eating habits have remained the same for years. I had A1C tested on November 19th and urine came back positive for microalbuminurea (kidney malfunction, could be earlier stage of kidney failure or kidney disease). It was 162.4… So I have to do a 24 hour urine collection on which I will turn in tomorrow. Glucose levels went from 7.4 to 9.0 since this June. So my diabetes has worsened! I'm so fearful right now about my kidneys and possibly not being able to have another child. I'm praying for the best right now. Will see my doc tom, hopefully she will explain my situation better and review my abdominal and pelvic ultra sound. The doctor has now prescribed Janumet XR 50 mg/1000 mg twice daily, which is a metformin combination. I'm really concerned of my increases in A1C/Creatinine. It seems very weird to me and has me thinking maybe the Metformin has caused things to rise? I have decided to become semi-vegetarian starting tomorrow. And start exercising, low carbohydrates, water only, no alcohol (red wine occasionally). I'm not going to take any pills and hope I can reverse whatever is going on with my body. I hate pills. I also have a renal ultrasound scheduled. I'm 28. So afraid.


19 replies

valentine lady
valentine lady 2014-12-10 12:15:39 -0600 Report

Hi lovelifelive,
After reading all you had to say I say take a deep breath and rethink some of these decesions you have made. Your doig good now, however it's in the future I'm most concerned about. When I first became a type 2 diabetic like yourself I pretty much treatef it like you. I ended up on insulin. Anyway, through listening to my Dr. , etc I''ve chsnged my life around. Just lately I've had some trouble,ever so little, but trouble. I have that straightened out andback on track agaain.I wish you good luck in your ventures but ddo encourage you to take your medication. Happy Holidays to you and your family. VL

valentine lady
valentine lady 2014-12-10 12:04:26 -0600 Report

Hi lovelifelive,
After reading all you had to say I say take a deep breath and rethink some of these decesions you have made. Your doing good now, however it's in the future I'm most concerned about. When I first became a type 2 diabetic like
yourself I pretty much treatef it like you. I ended up on insulin. Anyway, through listening to my Dr. , etc I''ve chsnged my life around. Just lately I've had some trouble, ever so little, but trouble. I have that straightened out andback on track agaain.I wish you good luck in your ventures but ddo encourage you to take your mefication. Happy Holidays to you and your family. VL

Dr Gary
Dr GaryCA 2014-12-01 16:07:58 -0600 Report

Hi lovelifelive,

I am so glad you found your way to Diabetic Connect. Welcome, my friend!

It sounds like you are doing your research to understand your potential medication options as well as what you can do to modify your diet and lifestyle. Knowledge is power!

I really encourage you to work closely with your doctor and also talk with a nutritionist. Team up with your healthcare providers. And this is an important time to get support so I hope you will stay in touch with us. Keep us posted on how you're doing.

Gary

lovelifelive
lovelifelive 2014-11-30 20:46:35 -0600 Report

I've decided I will try to lower sugars with diet & exercise for 30 days. If I see progress, I will use the RX. Plan to see a nutritionist soon as well.

lovelifelive
lovelifelive 2014-11-29 14:26:52 -0600 Report

So I went to the doctor, and honestly I'm still undecided about whether I will take the RX or not. Apparently my creatinine levels were .62 NOT 1.64 - So I haven't entered into kidney disease or failure, however, because my microalbuminurea results were positive, I am leaking protein in the urine, so its like I'm pre-kidney failure/disease…if that makes since. By controlling my BS I can potentially avoid further issues. NOW here's where the medication dilemma takes place, I asked the doctor why have my BS levels increased, if I have been taking metformin. She says "ultimately the only way to decrease sugars is by diet and exercise, even if you are taking medications". Okay so I ask if medication was necessary if I changed my diet and exercise? She says "no you will always need medication, and because you are already diabetic, your pancreas is already damaged". Yet my ultrasound results were normal for my pancreas and kidneys'. liver my status was "undetermined" and I was tested today for liver functioning through blood test, as well as possible "hepatic steatosis". Renal ultrasound was cancelled. And Apparently microalbuminurea is not fully confirmed until after my 24 hr urine sample is examined. My dilemma is, if diet/exercise are the controlling factors, why is medication a must? I feel like since being diagnosed and taking metformin I have worsened! Inside I feel like "sometimes" doctors push you to take medications and diagnosis are more text book, then individualized. My AC1 will be tested again on February 28, 2015. I would like to see if diet/exercise alone could bring BS down. The thought of all the side effects of medications just scare me. I have always been the type of person not to take medications, even pain killers. I also got a referral to a nutritionist and podiatrist. When I told the doctor I was thinking of going vegetarian, she said why, you need protein. If you do just make sure your getting protein if you do. I also asked what vitamins should I take. She said "none", that our bodies give us the victims needed and if my diet is changed to healthier, my body will receive what's needed. I've been taking prenatal gummies for a few months now in preparation for conception. Now I'm confused about that too. I think I will speak to my gyn. What now?

RosalieM
RosalieM 2014-12-01 12:56:36 -0600 Report

I have started a discussion on a simple way to get started on a diabetic friendly diet. It will take all the guess work out of
it. I have lost 55 lbs and have kept it off for many years. I have been a type two diabetic for 30 years with no complications.
Grandma Rose

Glucerna
Glucerna 2014-11-30 20:17:06 -0600 Report

I'm glad you were able to talk more with your doctor, and that you're thinking through the various options available to you. I think you'll learn a lot by working with the nutritionist, and she can help you devise a healthy meal plan that you feel good about. Are you testing your blood sugar? That will help you see which foods work better for you. ~Lynn @Glucerna

Glucerna
Glucerna 2014-11-29 12:21:08 -0600 Report

You're facing a lot right now, and I'm glad you joined our group and are working closely with your doctor. Ask your doctor for a referral to a registered dietitian, who will be able to help you make changes to your usual eating habits to manage diabetes and any kidney issues. You may also find diabetes education classes help you learn more about diabetes and how to manage it. You have great ideas for changes to make! ~Lynn @Glucerna

vensa
vensa 2014-11-29 11:57:22 -0600 Report

Hello,

Let me start by saying, I’m not a veteran in managing diabetes (like few friends on this community who’ve successfully managed for many decades). I’ve something common with you and hence can empathize and take the liberty to share my thoughts. Please take these inputs with a pinch of salt! And correct me as I’m continuously learning. ☺

Like you, I’m also a type-2 with for the past 9 years (I’m 40 yrs now). I’ve never accepted I’m a diabetic and so far lived my life in denial. I occasionally skipped meds due to laziness (but didn’t hate or doubt them), no physical exercise whatsoever (except for golf), absolutely not following any diet recommendations and binge on high carb high calorie food. With a stressful Sales job in a hi-tech company with frequent cross-continent travels added to my woes. Good thing I was off alcohol, smoking and red meat for a very long time. Fast forward to recent months…
In summer my tests had traces of Microalbumin and a follow-up test in autumn confirmed Microalbuminuria (Incipient Diabetic Nephropathy). It was like a bolt from the blue. Spoke to my wife and quickly got me in control to formulate the next steps. I realized, there is no point in living in the past; all that I’ve is my future and more importantly my PRESENT. So the steps were broken down and simplified. I realized it is my sedentary lifestyle lead to Obesity, that in turn lead to DM2 and uncontrolled BG levels has now lead to early stages of CKD. If I do not take control, I could progress the stages of CKD and also risk having other complications.
Started reading up the net for journals, published medical advice and everything related to Diabetes, Microalbuminuria, Obesity and the comorbidities. Joined this community and few others.

Next steps: Get more active! But how much activity is enough or required to manage these conditions? I started to research on this and I understood walking a minimum of 10,000 steps a day is necessary for a person to stay healthy. Anything beyond that is a bonus! From what I've read - for T1DM, walking after meals can cut post-meal blood sugar spikes in half. for T2DM, every additional 2,600 steps taken a day is associated with a 0.2% lower A1c. But I was not sure if I had the motivation to walk and to make it a routine, which I always considered one the most boring activity. To tackle this psychological thought, I made small investments and picked up an activity tracker - Withings Pulse (similar to Fitbit / Jawbone). This helped to log the steps I could take daily and provided the motivation to compete with others across the world on a weekly basis. The mobile app is very good to track the trends and also integrates with various other fitness devices.
Then invested in a Smart body analyzer to track the weight and body fat. One of the things that could happen during weight loss regime is losing more of muscle and not fat if proteins are ignored. (I know you’ll have this question, Kidney disease and Proteins? – I had the same question fielded to my doctor, and her response was for incipient diabetic nephropathy low carb-high protein–low sodium diet is recommended and safe. She added Research is still inconclusive on this protein diet topic and asked me not to ignore proteins).
I started to jog 1-2 miles a day and enjoyed it. I loaded Runkeeper mobile app to track the distance, calories etc. Then winter set in, so enrolled in a nearby gym and joined their group fitness classes doing variety of activities every day including Pilates, Yoga, aerobics etc.
Also loaded MyFitnessPal mobile app to log the diet, it’s a fantastic app and I’d highly recommend it. It can tell you how much macronutirents (carbs, proteins, fat) and micronutrients you had in your meal, then summarize them for daily / weekly consumption against the goals you’ve set. You could also consider buying a kitchen nutritional scale to count carbs more accurately (I’ve not yet and it is in my to-do list).
Next is to “Test-Test-Test”, pick up a glucometer and test in pairs before and after meal to understand how the food has affected the BG levels and helps to modify next meal. For me it also auto-corrects the diet and exercise - if BG is high in the morning, it kind of determines my day starting from the breakfast I’ll have. I’ve also loaded a mobile app DM Pacer for logging the blood sugar readings, fantastic user interface and can tell me trends for the week, month etc. You can create a PDF report by a click and email directly to the doctor (I did that last month and my doc was very pleased).

Results so far after 3 months, my BMI is now 28.7 (dropped from 35.0), which means I've moved into "Overweight" category from Obesity (Obesity is >BMI 30.0). As a result of this my BG levels dropped from uncontrollable levels to normal (my doctor recommended normal range: fasting BG level 81-103 mg/dl and 2-hr post meal 90-135 mg/dl - yes it is tight but with comorbidity we do not have a choice!). Now I’m looking forward to meet my doc during Christmas time for the next scheduled follow-up to share the progress made, to plan the next steps and to manage all the medical conditions. Have a nice day!

Ilovecarbs
Ilovecarbs 2014-12-10 05:13:43 -0600 Report

Vensa, Wow! You are doing great. From what you told us, you are really working hard. You must feel sooo much better. I was told about my type 2 diabetes back in June. I've been working on my diet and taking meds and reading everything I can about this frustrating disease. I know I need to get an exercise plan in motion.

I'm really writing to tell you to just keep going! You're doing great!

lovelifelive
lovelifelive 2014-11-29 08:52:29 -0600 Report

Thanks everyone for the advice and encouragement. I'm headed out to my doctors appointment now. Fyi I decided with vegetarian because from what I read if I intact have kidney issues, apparently I need to be on a "low protein" diet. Meat has creatinine in it and it high in protein. I have so many questions for my doctor, granted I don't like pills, but I'm fearful they cause issues, especially if you already have kidney issues. I will update you guys soon. Thanks so very much for the support.

Gabby
GabbyPA 2014-11-29 08:41:26 -0600 Report

Take a long deep breath......ok,
When you have so much going on, it's hard to know where to start sometimes. What I did was pick a couple of things to start with and focused really hard on those. Maybe taking your meds regularly and counting carbs. Those two things will help a lot with other issues. Then as you get good at doing those things, add one or two more things to the list to tackle. James can offer you great advice on kidney issues if it turns out you have to work on that part.

The other thing that will really help is keeping an open dialogue with your doctor and be involved in treatments. That relationship is what really can help you get the direction you need.

Feeling overwhelmed, confused, angry and worried are natural things. Getting a handle on things helps those feelings go away and when you start to have little victories, your confidence will grow.

sandyfrazzini
sandyfrazzini 2014-11-29 07:28:04 -0600 Report

Hello and welcome. James and Heidi are right you do need to start taking your meds regularly. I also agree that cutting carbs will help lower your numbers and help you lose weight which will also help lower your numbers. I am a type 1 and have been for 32 years now 8 years on an insulin pump. I am just starting to try and lower the amount of carbs in my diet and trying to start exercising. Remember it's not easy and it will not happen over night, but you did not get where you are over night either. You have to start somewhere, I think your first good step was starting here, because so many people on this site really do care and can offer so very good suggestions. It will be hard but anything worth doing usually is. Once you reach your goal you will be so happy and proud, then you can share what worked for you with others.
The best of luck to you, and remember we are all here to help support you.

lilleyheidi
lilleyheidi 2014-11-29 02:56:32 -0600 Report

Hi, and welcome. Sounds like you have a lot going on right now. I'm not a doctor and I can't tell you what to do, but I do have a really strong suggestion, and that is to do what your doc has recommended for you. Take your medication. Like James said, if your really wanting to get pregnant again, you need to get on top of this disease now.
There is nothing wrong with a vegetarian diet, but just make sure your keeping your carbs low, and your proteins and fats up high enough, I know a lot of vegetarians especially new ones who aren't getting enough protein and get too many carbs. Be careful, carbs are not a diabetics best friend as they turn to sugar so fast. You might ask your doctor to refer you to a registered dietician who can help you get started on a healthy diabetic/vegetarian meal plan. I've been meeting with my dietician for 4 months now,, am on a low carb diet and have lost close to 50lbs now.
Keep close track of your numbers on your meter (if you don't have one, get one soon).
Another thing, take one thing at a time, and master it, or you may get overwhelmed and give up (if your anything like me).
Good luck on your journey, HUGS, Heidi

jayabee52
jayabee52 2014-11-28 23:54:16 -0600 Report

Howdy Lovelifelive
WELCOME to DC.
Unless you wish to have your diabetes and your kidney disease worsen, you need to take the medication your Dr Rx'd for you as well as gettting serious about changing your lifestyle. And if you are REALLY serious about having another child you need to get on top of your diabetes and your kidney disease.

I have type 2 also and I have burning neuropathy in my legs from knees to toes and tingling neuro from elbows to fingertips on both sides of my body. The burning neuro really makes my life a pain. I also have Kidney disease for which I need dialysis 3 days per week at 4 hrs per treatment. I just got home from a treatment tonight about an hour ago.

If you need help learning how to eat for diabetes just ask me or just ask generally. I have been here on this site for over 5 yrs and have fielded a lot of questions from the newly Dx'd. There is also a Kidney friendly meal plan and I can help you with that.

I see you have a weight problem. So did I over 3 years ago. I learned how to eat properly for my T 2 and I lost 65 lbs over the course of 5 mo back in 2011. If you are interested in what I did, (some would say it is radical) just ask and I will send you the link to my meal plan. I have been on it for 3 + yrs and it is now a lifestyle for me. My fiancee` also has T 2 and follows a plan similar to my own and she has dropped about 70 lbs so far.

Praying for improved and improving health for you and for all

James

lovelifelive
lovelifelive 2014-11-29 08:54:16 -0600 Report

Yes I would like the link. Also did you Dr. Suggest low protein for kidney issues?

jayabee52
jayabee52 2014-11-29 16:51:01 -0600 Report

Actually he did not suggest low protein. He believed that my high protein low carb meal plan was doing good for me. Now that I am ojn dialysis it is even more important to eat meat to keep my health up. Folks are unable to get the complete amino acids needed to promote a complete protein using vegetable sources, they have claimed they can do it (usually radical Vegans), but I have not yet seen proof that it can successfully be done. With every blood test taken for the Kidney Dr I would ask about the protein levels I was eating and was I hurting my kidneys? He said no, keep on doing what you're doing, I was following this meal plan ~ http://www.diabeticconnect.com/diabetes-discu...

please do me the kindness of once you've read it, of posting your reaction to this plan on the discussion there. It would be much appreciated.. .

Next Discussion: Pre Diabetic »