Bad Interaction With Diabetes Community

By BreC Latest Reply 2014-11-15 17:38:25 -0600
Started 2014-11-11 09:02:29 -0600

When I started having to use insulin I searched for websites where I could connect with others who are going through the same issues I am. I have had a pleasant interaction with everyone here but not so much with another site. Rather than help, the people at the site preceded to tell me that everything I was doing was wrong from the foods I eat to testing at the wrong times. I was told not to trust or follow anything from the ADA. When I disagreed with them, I was banned from the site. Please be cautious about who you interact with and do what is best for you and your help. I am not one to be pushed around and have reported the site to the ADA and hope something can be done about these bogus sites that claim to be there to help. Thank God I didn't use my real name or give personal info to the site.

25 replies

Littlesister56 2014-11-15 17:38:25 -0600 Report

What I have learned over the yrs is that everyone is an individual and what might work for me might not work for you. Some things we read should be consider just a guide line. Proper testing gives you an idea of what is helpful or not. There is also a lot of angry people out there and everyone wants you to listen to their advice, etc. Personally I also found the ADA pushing more carbs then I can handle, but so was the one page diet sheet my internist handed me yrs ago. My Endos staff was real helpful but also pointed out its not always the same for all of us. You have to find what works for you and maybe there is so many angry people due to their frustration as it isn't always easy to keep everything together day after day. I also find a lot of things are taken out of context since you are reading what someone says rather then hearing how they say something. I would have to think whoever was in control of that site you mentioned, is a control freak, who needs that.

RosalieM 2014-11-15 13:07:26 -0600 Report

sorry I don't know what that other site is and have never visited it. However in my 20 years of dealing with diabetes, I found that the ADA can not be trusted to give correct information. I called them and ask them to point me to the body of scientific evidence behind what they tell diabetics they should eat. They told me they didn't do any research. I ask them how they came up with the diet instructions. They said they got their information from the American Dietetic Assocition and they gave me their number. I called them and ask the same question and got the same answer no research has been done. Diabetics who
test their blood are the real experts on what to eat. I take insulin, if I can help you I will. The ADA is an association of doctors who treat diabetics. Doctors know very little about how to self manage diabetes, they just diagnose and drug. All the diabetes educators follow the ADA. Doctors know little to nothing about diet and nutritition. Their recommendation for carbohydrates is way to high. They say 6 to 11 servings of carbs per day. If I ate anything near that
much carbohydrate I would have sugar coming out of my ears.

valentine lady
valentine lady 2014-11-14 21:56:57 -0600 Report

Hi. BreC,
Just a thought, but, if you feel uncomfordable in a person's home
you probably don't go back. Right? why shouldn't that same for
this situation ??? Why wait to be kicked out to "just leave" and go
back to where you are comfortable? It's just a thought…

Type1Lou 2014-11-13 14:04:58 -0600 Report

I had joined another diabetes site on Facebook and responded to a post about marshmallows. I suggested that marshmallows are mostly sugar and that the carbs in them need to be considered by a PWD. I got my head handed to me about my comment and decided the site wasn't something I wanted to waste my time on. I don't remember which of the numerous Facebook diabetes sites it was, otherwise, I would name it.

Just Joyce
Just Joyce 2014-11-13 12:26:14 -0600 Report

As accordianman each group has their own personality. Face it you didn't fit in with the group so they got rid of you. It appears they had no interest in you at all for some reason. The reality is that there isn't a thing you can do about it except move on. If the group is not an affiliation of or supported by the ADA, reporting them to the ADA was a waste of time. They are not going to act on it. All you did was waste your time reporting them. If they didn't invite you to join or asked for a fee, they didn't do anything wrong. Cut your loses and move on.

You said they didn't help you and the group was bogus. Just because they didn't help you doesn't mean they are bogus. Another reality is that not one person who is not paid to help people are not obligated to help anyone. People help people because they want to help.

I will help people to a point and then I kick them to the curb. If all the person wants is approval, to have me hold their hand through everything, are unwilling to help themselves or constantly complains, or needs continuous help, I am not going to waste time on them.

There are hundreds of groups on the internet and not every group is going to accept you and you are not going to fit into every group. Does that make them bogus? No. Are you saying they are bogus because they didn't help you or because they kicked you out of the group?

Common Sense prevails here. If this was a real life group and you joined and realized that the people didn't like you, didn't help you or asked you to leave, wouldn't you know before it got to the point of them asking you to leave that you didn't fit in with the group?

I interact with all kinds of people both online and in the real world. I can tell by a conversation if the person is what they say they are. If not I move on. I don't call them bogus or report them, I just take them out of the equation and move on. I certainly don't need anyone to tell me to be cautious. I think the best thing to do is learn from the experience and let it go.

BreC 2014-11-12 08:31:38 -0600 Report

I just thank God that I am a little smarter than they are. I had the good sense to get out before things went to far. My purpose for this post was to help everyone be aware. Just Joyce is right, I don't want to be in a legal situation so I will not name the site. I have given the info to the proper people and they are taking it from there.

Just Joyce
Just Joyce 2014-11-13 12:28:35 -0600 Report

They are not going to do a thing if the group is not a part of the ADA, through affiliation or funding. They are going to look at it as you being upset and pay no attention to it. If they are not affiliated or funded by the ADA, they are simply going to tell the ADA to stay out of their business.

The only way the ADA is going to take action is if they say they are a group approved or supported by the ADA. By the way, I pay very little attention to what the ADA says or does.

Dr Gary
Dr GaryCA 2014-11-12 08:27:06 -0600 Report

Hey BreC! I am glad you are here. We always keep it positive on Diabetic Connect! I hope you will keep the connection going. Gary

2014-11-11 22:20:29 -0600 Report

Yes I have noticed most forums have their own
This one is the warm
And friendly, but not
Too technological. Another site is more
In your face, and seem
to know everything, and
Are Carb and keto crazy.
I guess I use the one I
Need when I need it.

Pegsy 2014-11-11 20:59:36 -0600 Report

I also had a very bad experience with another site. I wonder if it was the same one. Some of the people on the site really stressed me out with their constant corrections and criticism. If their plan wasn't working for you, you just had to be doing something wrong and the scrutiny was unbearable for me. If I expressed my disappointment that their plan wasn't working for me I was chastised and told I was being dramatic. That was the last straw for me. I finally left the site and completely restructured my eating plan. I am doing much better now and have a lot less stress in my life because I am not trying to measure up to someone else's standard. I am learning what works for me and finding that what works for one doesn't necessarily work for everyone.

Just Joyce
Just Joyce 2014-11-13 12:42:40 -0600 Report

Pegsy I think people forget that their diabetes belongs to them. Someone else's plan is not going to work for you. Diabetes is different for each person. I think James (Jayabee52) and a few other people here have great plans that works for them. I know they won't work for me.

Someone asked for my meal plan. I didn't give it to them because unless they want to eliminate all fruits with a pit, banana's, pears, all variety of nuts and various other foods that I am allergic to, the meal plan would be useless to them.

The problem came because you were trying to use a plan that was not YOUR plan so those using the plan and it was working for them couldn't see that it wasn't working for you. They were right and you were wrong in their eyes and the reality is you were wrong in thinking a plan not meant for or designed by you would work. I am not saying that in a manner to upset of offend you but you can't expect what others are doing is going to work for you. This is why it is very important to find out what is or isn't going to work for you. The best way to do that is to try different things.

Look at it this way, if you see several women in a dress and you went and tried on the dress and it didn't look right for you would you buy the dress?

I am so glad that you have a plan that is working for you. When it is your own plan you can always modify it to meet your needs. Good luck.

Pegsy 2014-11-13 15:41:47 -0600 Report

Obviously their plan was not the plan for me. I was brand new to diabetes and desperate for information and a plan that worked and that I could easily follow. That website was my first exposure to diabetes education. At the time their plan seemed right because I didn't know any better. I've learned a lot since then. Some of what I learned there is still useful to me…but not much.

jayabee52 2014-11-11 17:22:53 -0600 Report

Howdy Bre

I'm glad you're here with us!

Could you share with us the website where you had such a bad interaction?

Of course sometimes ppl come to DC whose meal plans or lifestyle needs a bit of tweaking. And then there are some ppl who have seemingly unusual practices or beliefs. But I can usually hold my own with them. If they insist on pushing their beliefs on us I will call them on it. Usually at minimum we can just agree to disagree on that issue at question.

And truth told, I am not a big fan of ADA and their high carb recommendations.

I eat a meal plan which is signifigantly lower in carbs than ADA recommends and am doing well on it.

Praying God's best to you Bre


RosalieM 2014-11-15 13:27:02 -0600 Report

I agee, the ADA has way too high carb recommendations. Their plan is to get you to a steady level of blood sugar. Way to high. Then you are to be drugged until you meet their A1c goal. Heart disease and nerve damage are the result. I choose to have a low carb diet and stay off the drugs.
I take 20 units of long acting insulin as I don't make enough insulin for even my low carb diet. I told my Dr. I wanted the insulin. I have no coomplications and feel wonderful after 20 years since diagnoses. I turned down all the drugs my doctor wanted me to take and the fast acting insulin too. The drugs all (except metformin) cause weight gain and heart disease. They have warnings on the lablel. I am angry at the ADA too as people are suffering more than necessary and even dieing because of them.

BreC 2014-11-11 18:21:33 -0600 Report

I had rather not name the site. I am glad that I listened to that little angel on my shoulder that kept telling me "something is off Bre" . Yes Bre, Brenda, is my real name. Just want to tell everyone to be cautious specially on the internet. I consider myself to be a little smarter than them by not letting them get to me. I can be a spitfire when needed.. LOL

Pegsy 2014-11-11 21:02:34 -0600 Report

I wish you would reconsider. People need to be warned before they get drawn into a bad situation without realizing it.

Just Joyce
Just Joyce 2014-11-11 21:21:44 -0600 Report

If she slams that site on another forum and someone finds out she could be sued. In my opinion, I think if you know you are in a bad situation in the real world, you would have enough sense to know it online.

Just Joyce
Just Joyce 2014-11-11 21:21:02 -0600 Report

If she slams that site on another forum and someone finds out she could be sued. In my opinion, I think if you know you are in a bad situation in the real world, you would have enough sense to know it online.

Just Joyce
Just Joyce 2014-11-11 21:20:51 -0600 Report

If she slams that site on another forum and someone finds out she could be sued. In my opinion, I think if you know you are in a bad situation in the real world, you would have enough sense to know it online.

Just Joyce
Just Joyce 2014-11-11 21:19:51 -0600 Report

If she slams that site on another forum and someone finds out she could be sued. In my opinion, I think if you know you are in a bad situation in the real world, you would have enough sense to know it online.

Just Joyce
Just Joyce 2014-11-11 21:19:45 -0600 Report

If she slams that site on another forum and someone finds out she could be sued. In my opinion, I think if you know you are in a bad situation in the real world, you would have enough sense to know it online.

suecsdy 2014-11-11 09:43:01 -0600 Report

So far this is the only place I have been to for diabetic input. Everyone here has been very positive and helpful with their advice. At first though, I was reading so much about diabetes and side effects that I was about convinced it will kill me one way or the other and on a bad day it still gets me down. I keep telling myself to just hang in there and it will get better.

roxanne bohnnow
roxanne bohnnow 2014-11-11 14:05:13 -0600 Report

Getting better is a state of mind that we all should have. I take this as if it were a game that I play each and every day. If you are using your log book here on this site, you will have noticed that the color changes with the lowering of your BG reading. Using this and my food log turns into the game of what's best for me when it comes to managing my diabetes. How many days in a row can I keep my color at orange or better yet green. I end up with at least one day a week where the color is in the red. My bad. Just remember that we are all human and we do cheat when it comes to that sweet treat, so don't let it get you down, turn it into a learning game. This time of year seems to be the hardest times for me to stick to a low carb intake. I love pies of all types, and the smell of home made breads baking waft through the whole area. So I am baking my own breads and making my own pies while having control of how much sugars go into these foods. I am also very picky as to the flour that I am using as well. I end up using a mix of different flours to come up with the best breads and pie crusts. Contrary to what most people believe pie crust does not need to be thick. I use my mini cupcake maker to make small pies which gives me more control as to serving size. Three little pies = 3 bites. Just enough to take care of my sweet tooth and still let me enjoy my favorite pies.

jayabee52 2014-11-11 17:31:19 -0600 Report

Howdy Roxanne

I like how you are making a game of managing your BG (blood glucoose) levels. .

May I make a suggestion regarding the pies? I believe that pie crusts are unnecessary. Just pour the filling into the pie pan and bake it like that.

My thing is controlling my BG through what I eat and don't eat and I have discontinued eating ANYTHING which is made from grain products. I have been doing well on it for 3 + yrs. I don't miss breads at all. For me they are unnecessary.

Praying God's best to you

RosalieM 2014-11-15 13:35:29 -0600 Report

I made a science out of my blood sugar. I became a mad scientist in the kitchen. I really learned a lot and am still learning. Now I teach it. My diabetes support group is due in a few minutes. Most of them are using resistant starch fiber so I am always looking forward to hearing their stories.

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