help with my son's care????

Mom to Jerrick
By Mom to Jerrick Latest Reply 2009-05-19 06:19:50 -0500
Started 2009-05-13 15:54:27 -0500

I am praying there is going to be someone that can help me. my son is so high, then low. everyone thinks they know everything and they keep telling me, diet and exercise. makes me so angry sometimes!!


15 replies

Mom to Jerrick
Mom to Jerrick 2009-05-18 13:11:55 -0500 Report

Thank you all so much! Once again. Crying. It is so hard to see his little face and know that there is nothing I can do about it. He is 10. Our oldest. He seems to be my "sick kid" if you will. Appendix out by er docs at Primary Childrens Medical Center (air lifted) at about 2 1/2 years. And It just seems that we can't keep this to where he is feeling better. We are going to get him into therapy. Says he wants to stop eating so he does not need shots. He is so smart. And Dr's are so much help! But the emotional side is so much harder. I do put on a happy face, and don't let him see me upset. But he is so angry, and sad right now. ???? And you know, I am thankful that it is not something worse. But I think that the next person to tell him or I that we should be thankful that it's JUST DIABETES, I may just hit them in the head! It does not make it easier for him. You know? Thank you so much for all your help and support. Mandi

Sarguillo
Sarguillo 2009-05-18 13:39:13 -0500 Report

Mandi, Glad to hear more about your son. It can be frustrating. He might be smart, but remember, he needs his shots even though he stops eating. like that is going to work for long. Sooner or later, he will eat. Watch the video sections. They will have some great information for you. Ask away, We will answer anything we can. Good luck. Stay strong.

Mom to Jerrick
Mom to Jerrick 2009-05-18 14:00:29 -0500 Report

Thank you so much! I think I need you and a few others on speed dial! lol! It is hard down here. There are support groups for everything, but this! At least down here. Talking to a few people on how to get one started. These kids really need an outlet. Thank you so much!!

Sarguillo
Sarguillo 2009-05-18 14:12:53 -0500 Report

Ah, diet. Lower carb. Low suger. What does your son like to eat now. Remember, most items can be worked into his diet in the correct poportions. He does need to understand that eating all the candy he wants is now out of the question. Buy some of the sugar free hard candy for him to suck on from time to time. Too much of this has been known to give someone the runs so be carefull. Especially the sugar free chocolate. By the way, no such thing as sugar free, Sugar achols are still a type of sugar. But less sugar and they react differently. also start to read labels. Carbs = sugar, Sugar = carbs.
Try to work into your family diet what your son can eat. It might be better for him is the whole family is eating the same. It wont kill the others. and if your husband must have that burger with the huge bun, tell him to go eat on his own. If you son loves a hamburger, Make him a hambuger. Lust leave off the bun. Or one half of the bun. An open face hamburger. Time for him to lean to use a knife and fork. For a sandwich, Double fiber bread that has been toasted is better than white bread. Or leave off the bread and wrape his sandwich in lettuce. A BLT, place bacon and tommoatoes in a slice green leaf lettuce. Put alittle mayo on the lettuce for taste. Dont over do it. Make sure he eats 3 times a day and doesnt skip meals. That way he doesnt get too hunger and pig out. like I said, what does he like to eat now? Learn to incorporate that into his diet. Most items can now be made with fake sugar. That is about all I can say. Maybe some of the caregivers here on site can give you more ideas. Good luck.

Mom to Jerrick
Mom to Jerrick 2009-05-18 14:24:00 -0500 Report

Our luck, he loves protein foods. Lots of meet. Our kids never even had candy until they had their first b-day cake! Funny how that works. We all love fruits and veggies. I am not a big meet eater. Most Chicken. But we all eat the same, and he is doing good. loves the string cheese. Doc said keep it on hand at all times! So we do. We found some drinks called HONEST ONE. They are only 10g. So they are free for him. But only one a day without a meal. Incorp the other one if he wants in a meal. We are label readers. My husband has Cardiomyapothy (heart failure). So just as things were getting better there my little Jer got this. I think more than anything sometimes it is just overwhelming me. Everything. I pray a lot! And now my husband is doing better he is so strong for us both. Thank you so much for all your help!!!

Sarguillo
Sarguillo 2009-05-18 15:28:56 -0500 Report

Hello, 10g is not bad. Soda, sugar free at all times. Keep a Regular can of soda around in case of lows. You are going to just love to deal with those. And keep hard sugar candy around for those also. If on shots, Look up your local regulations on sharps. items with needles. You are going to need a hard container to keep those and properly dispose of. As far as drinks. Crytal light, its a fake soft drink, kinda like Kool aide. Even Kool aide came out with a sugar free version. They taste better cold. You might even luck out and find cheaper versions. Wal Mart has their own house brand of these type of drinks. Remember, Anything is ok for your son in the correct poportions. No such think as free food, but some foods he can eat more than others and still be under control. Im a Insulin dependant type 2 so our outlooks at this diet thing can be different. Please make an appointment with a nutricionist. They can guide you alot better then a lay person can. back to semi-free foods. Vegtables, as long as they are not roots, are alot free-er than others. starchy roots are carb roots. He can still eat, but in lower portions. Yes, he can still eat french fries, but dont get him the big size fries. Some people like to use the plate method of diet control. Take a plate, Devide it in half. One side, divide it in half again. So you now have a plate with an imaginary lines with 3 portion sizes.
1/4 section is for your proteins. 1/4 section is for your carbs. the last half of the plate if for your vegtables. I like to think of carbs as slices of bread. A slice of bread is 15g of carbs. I try to limit myself to about 130 carbs a day. 30g in the morning, 40 for lunch and 60 for dinner.
That is (in my way of thinking) 2 slices worth of carbs in the am, 3 for lunch and 4 for dinner. As an exchange that is. Now I am a big man. Your son may need less. Hes also T1 so you have to take that into consideration. There are some good books out there. Meet up with other caregivers and swap stories, recipies, lean on each other. Only another caregive of a child can truly know what you are going through. I can imagine, I can empathize but I have never been there. Good luck. You can do it. Keep up your spirits. It will get easier with time and practice. Dont hover ove your child. Remember, he still is a child. Will need to be treated like a child. Needs to think he is a child. Just have to incorporate this aspect into his life. Good luck. You can do it and remember, its not your fault, There was nothing you could have done to prevent this. DOnt beat yourself up over this. Dont ask why, ask, how can you teach him the skills he will need to learn to live a happier, healthier,longer life without complications.

Sarguillo
Sarguillo 2009-05-18 15:35:04 -0500 Report

and when you get a chance, ask other care givers, how they handled birthdays, over nights, parties, school, Holloween, Christmas, All those things that you are going to need to know how to handle.

maryka48
maryka48 2009-05-19 06:19:50 -0500 Report

Hi Mandi,

You might want to look under the American Diabetes website, when my son was hospitalized they told us at the hospital about a summer camp for kids with diabetes, I have register my son to go in my area, only kids with diabetes go to this camp so it may be something good for your son to get to know that there are other kids out there just like him and he may have a different out look about it, my son has had several melt downs regarding his diabetes, I just try to be positive for him it's hard hang in there it will get better…

Mary Kay

maryka48
maryka48 2009-05-18 07:01:17 -0500 Report

my son was diagnosed the end of march with diabetes, it has been a struggle and yes very stressful, I myself am diabetic so that helps, my son just turned 15 and has a hard time dealing with it, he has experience the high quite frequently his drs have adjusted his insulin and have also added metformin 2 times daily and actos 1 time daily it has seemed to help somewhat it is hard for children to adjust and to understand the importance of being educated about it, my son recently began talking to a girl in our town who is also diabetic and it has helped him alot knowing there is someone else his age dealing with being diabetic,if you need any support or questions answered this is the place to be, everyone here is helpful with question you need answered and just for support as well, hang in there it will get better…

Mary Kay

Farmgirl IA
Farmgirl IA 2009-05-14 13:21:36 -0500 Report

Don't mean to sound like the others but from experience of being a diabetic myself for the past 17 years and having issues with my numbers being high and then low. The only thing I found is not so much the exercise (although important) but the diet potion of it! I know as an adult that exercise keeps my A1C level down. but not eating a bunch of carbs helps keep my numbers more level.I seriously have to keep track of everything I eat in a days time to help me keep the numbers down. I can't take advantage of assuming I am doing it right without writing things down. And when I have a bad day I look at what I ate that might of thrown my numbers to the heavens! There is a website out there that is www.fitday.com. An awesome sight that is free and you are able to put everything eaten in you can add foods and much more. It has a pie chart of what you are taking in. I have found it to be a great tool for me in helping me keep track of everything. I hope I didn't frustrate you any further. Have a blessed day!

John Crowley
John CrowleyCA 2009-05-14 10:58:50 -0500 Report

If you can provide a little more information about your son's age and condition, I think we could provide more helpful advice.

If your son is young, I completely understand the stress and worry of trying to get things under control in the beginning. It's a whole new lifestyle to watch everything he eats and manage his medications.

I'm happy to share ideas as I can. But LadyDi is right on the mark, that your most important source of information needs to be your doctor.

Sarguillo
Sarguillo 2009-05-13 16:19:09 -0500 Report

How old is Jerrick? School age? Is there a nurse at school who can help monitor during the day? Pre-school age? Just found out and are you now going out of your mind? first off, its not your fault. Is Jerrick old enough to help with his care? What have the doctors recomended as a treatment? Are we on pump? Doing shots? I have to assume since he seems younger, A Type 1. What have you been doing? What would you like to do? Please dont let the downs get you down. Its can be overwhelming at times. Keep up your chin and put up a good front. Jerrick needs to see a strong and supportive person in you at this time of his need.

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-05-13 16:04:07 -0500 Report

It is so sad when anyone, much less a child, has to deal with an illness. You don't mention the age of your son or provide much information. As much as all of us would like to answer your plea for help, we're not professionals and really have no information to go on. If your son is diabetic and you are monitoring his blood sugar readings, then I presume he is under a doctor's care. I hope you have a good relationship with him and that he is providing you and your son the appropriate guidance and information, as he really needs to be your primary source. What are his thoughts on this? Is he aware? How often does your son see him? It may that his medications are not working properly, of course, or they may need to be changed altogether. Sometimes it takes a little experimenting to get everything the way it needs to be. He does certainly need to be diligent about his diet and exercise as well. We all just have to find what seems to work best for us as an individual. There is no overall magic solution, unfortunately. I hope you can get him on track soon. Good luck.

Sarguillo
Sarguillo 2009-05-13 16:01:48 -0500 Report

Hello, Dont try to do it all by yourself. FInd help if needed. More information about yourself and your son. What are you trying to do? What do you need help with. There are quite a few caregivers here on this site and they are all wonderfull people who would love to share with you. You are not alone.