Leigh Marsden
By Leigh Marsden Latest Reply 2009-05-14 21:02:59 -0500
Started 2009-05-13 00:03:32 -0500

My rheumatologist just diagnosed me as having severe Fibromyalgia. She put me on a medication just introduced from Europe called SAVELLA she put me on 50mgs 2xaday. Has anyone ever heard of this medication?
Any help would be appreciated…
Your Friend, Leigh

4 replies

cakeybakes 2009-05-14 21:02:59 -0500 Report

Good luck with the fibro! I have it, too and it's NOT fun. Luckily, mine is not very severe, but it really puts a damper on things. I tried Lyrica a few years ago. I didn't notice a difference, but I do know someone who takes it for hers and it helps A LOT.

patti 2009-05-14 16:33:28 -0500 Report

Hi Leigh,
Sorry to hear about the fibro. My daughter (just turned18) has had fibro since she was 3-4 diagnosed when she was 6. It took many years for them to get her dx. She took meds when she was younger but since the age of 12 she stopped them. She is still in pain but she wanted to do it on her own. She is quite amazing, works a full time job and goes to college full time. She still has her "bad" days and I can see it in her eyes. It breaks my heart at times but I have to let her make her own choices with it. She doesnt want to be deopendent on meds…at least not yet. There are many different meds out there that Dr.s use. Just make sure you have a Doc that you can communicate with. Amanda sees her primary care and they get along really well. He listens and answers all her questions, sometimes spending an hour with her. He is wonderful. She suffers from restless leg syndrome, bladder spasms, and migraines all are associated with fibro. Along with the constant pain. I do hope this medication works for you. With fibro they are not sure what causes it, or if depression was there first or the pain, and that caused the depression. I do know that stress can increase the pain. I know what you have been going through. My prayers are with you and your family through-out these trying times. Please let me know how this med works .
Huggs Patti

lipsie 2009-05-13 01:53:28 -0500 Report

Hey Leigh, sorry to hear the news. My good friend has this and it sucks. Now she's never mentioned that medicine so I doubt she's used it so I can not help you any just wanted to wish you the best and hope you find out whatcha need. *Hugs* Love yassssssss Sheila

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