Newly diagnosed

By efaley922 Latest Reply 2014-10-08 09:03:24 -0500
Started 2014-10-03 14:10:46 -0500


I was just diagnosed with type 1 a little over three weeks ago! I am 23 years old and everyone around me keeps telling me that it is crazy this diagnosis came at this age! I have been lucky that my blood sugars have been in the 100s consistently since I began insulin shots! I am wondering now what tips anyone else has for eating carbs, exercising or any other great knowledge! The hardest part for me is that I have to check my blood sugar 5 or more times a day and then give myself the insulin shot! I would love to connect with any other diabetics out there and just be able to share our experiences!
Have a great day!
- Erin

Tags: type 1

11 replies

ari's mom
ari's mom 2014-10-08 00:38:09 -0500 Report

It's really wonderful that you BGL's are staying so wonderful!!! Do you know if you're in the "honeymoon period" right now, if not when that happens you may not have to take much or even any insulin during that period. My daughter, who is now 7, was diagnosed last September with T1D so we are relatively new to the disease as well, I'm just glad to have that first year under our belt and look forward to many more years of learning, because this disease is a definitely a HUGE learning experience, as you'll soon find it, it constantly is changing. We've changed insulin doses so much it's not funny, and just when we think we've got it under control something throws it for a loop again. Her glucose levels are like a roller coaster, but everyone's different, so don't let that scare you. Anyways, one bit of advice I would give you is to hook up with your local JDRF. I don't know if you had to stay any amount of time in the hospital after your diagnosis with DKA, but when my daughter was diagnosed we spent 3 days in a Children's hospital, which was wonderful. While we were there they gave us a bag from the JDRF, I think it's called the Bag of Hope or something like that. Idk if your hospital/doctor gave you one of these but if not they are chop full of diabetes goodies, they have one for adults and one for children but you have to request it while newly diagnosed (within a few weeks or months not sure of your diagnosis), if you've not already got one you can request one from the JDRF website. There is also tons of good information on the disease itself, research they're conducting, and ways for you to become active in advocating for diabetes awareness.

Another bit of information I'd like to add is to be patient with people with some of the remarks you are going to get. Some of the things we've gotten since my daughter was diagnosed are:
*Have you tried giving her more cinnamon, I hear that if you have diabetes and eat cinnamon you don't have to take insulin.
*I heard cucumbers cures diabetes.
*Okra water is supposed to be good for diabetes.
*Maybe she'll grow out of it.
*Did she eat a lot of candy?
*Well she don't look like a diabetic.
*Is it okay that she's eating that? (Because apparently T1D aren't supposed to have carbs or sugar according to some people LOL)
And to add to these you'll get people with horror stories about their grandparent, aunt, uncle or some other family member who had some sort of tragic experience with diabetes. At first some of these things I let really get to me, especially when it was in front of my daughter, giving her false hope, but after the initial shock was over I realized one major thing, the majority of the public are still unaware of what T1D truly is. Now instead of letting it get to me I have taught my daughter that regardless of what someone tells us diabetes is forever and to only listen to me and her doctors and when someone approaches us with something crazy we educated them to the best of our ability, because the more people that learn about the disease the less you'll get these off the wall comments.

efaley922 2014-10-06 01:37:51 -0500 Report

Thank you everyone for all the great responses! I will look into the book for sure! I can already feel the support on here!

Type1Lou 2014-10-03 18:28:00 -0500 Report

I was diagnosed Type 1 at age 27, in 1976. The key to better control for me was reducing my daily carb intake to 120 grams per day. I started doing that about 10 years ago. My last A1c was 6.6. I started using an insulin pump back in 2011 after years doing MDI (Multiple Daily Injections) of Lantus and Novolog. I'm kicking myself for having resisted pumping for years. I love the flexibility and control it gives me. I test 8 times a day and do not use a CGM because of the cost which is not covered by my insurance…otherwise, I would. I strongly recommend gary Scheiner's book "Think Like a Pancreas: a practical guide to managing diabetes with insulin" It's my go-to manual, chock full of info that helped me better understand what I need to do to better manage my diabetes. Welcome to the site and don't hesitate to ask any questions. There is a wealth of experience and knowledge here.

kimfing 2014-10-03 16:04:43 -0500 Report

Welcome. U have come to a great place. I was dx last yr t1 @ 45! Imagine my surprise :-)

Luckily i am married to a t1 who has been one for a very long time. So i already was educated. I suggest you have your Dr refer u to an educator and dietician. Are u seeing an endocronolgist? I would suggest that also. We attend support meetings. Check out your local hospital for maybe some info in that.

I test my bs up to 7 times or more per day. Eevrone is different when it comes yo how our body handles carbs. I had to cut out all white and bleached flour. All my grains have to be whole grains or my bs is out of sorts. I do not eat anything instant unless it is sf pudding. My Dr said anything instant think instant raise in bs. Learn how to read labels. Invest in a food scale. I weigh and measure everything that contains carbs that way i know how much insulin to give.

You might want to keep a log of bs and food and make sure to test post meal so u know how ur body reacted to the food u ate. This will be useful for your healthcare team.

Check out all the tabs on this web site lots of great info.

We are all here to help.

Good luck

kimfing 2014-10-03 16:06:32 -0500 Report

Oh ya, i also bought the book calorie king. It is my D carb bible. U can download but i won't pay for the app. :-)

Silicone eyes
Silicone eyes 2014-10-03 16:08:40 -0500 Report

two thumbs up, extremely helpful book

ari's mom
ari's mom 2014-10-08 00:14:13 -0500 Report

My 7yr old daughter, who was diagnosed 13 months ago as T1D got the Calorie King book from the JDRF in a newly diagnosed backpack they give out at the hospitals that was full of goodies, but I have to admit that was the most useful thing that came in the kit. Another really helpful tool we have is a book that came in it, I think the name is Life with Diabetes or something like that with the Pink Panther on it.

kimfing 2014-10-08 09:03:24 -0500 Report

Yep. I got one from jdrf in a newly dx t1 kit. Didn't get the pink panther book. I got the Mary Tyler Moore book which was great.

Good luck with you daughter.

jayabee52 2014-10-03 15:59:03 -0500 Report

Howdy Erin
Unfortunately you got your T1 due to an autoimmune reaction, which can happen to anyone at any age, so I don't think it strange at all.

One of the pieces of advice i would have is to keep your intake of carbs low, particularly "simple" carbs (see ~ Often those folks on insulin injections think, "I can eat that high carb thing and cover for it later with insulin."

That is a way to pack on lbs of fat since the insulin DOES cover it, but it covers it by opening up one's fat cells for storage of the glucose for later use (which is the function of body fat)

Don't be afraid to ask questions here as IMHO, the only stupid or foolish question is a HONEST question which is NOT asked!
God's best to you, Erin


Silicone eyes
Silicone eyes 2014-10-03 15:55:37 -0500 Report

Hey Erin, I got mine when I was 15. The single best thing I can say to do is kept very comfortable with carb counting. It took me years to switch to a pump, and when I did, I found that my carb counting had been terrible. Being type 1 means alot of things, but if you strip it down to basics, all you are really doing is accounting for the carbs that you eat that your pancreas would have done for you normally. Look into a pump down the road, I doubt that newly diagnosed you will be able to get one for I think 2 years. Keeping a good journal/log helps too. Food type and amounts, time, insulin dose, BS readings. Don't flip out over 1 number, but look for patterns, it will help a lot to see what works and what needs tweaked. Two other tips, live life, have fun, and the other, ask questions.

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