Goodbye honeymoon?

littleladyliza
By littleladyliza Latest Reply 2014-09-23 14:19:53 -0500
Started 2014-09-20 21:01:30 -0500

Newly diagnosed in June as a type 1 at 26 years old. It came as a total shock to me. My endo says I'm still making some insulin but it's not going to last much longer. About a week after I was diagnosed and started lantus (8units), I started going low. I've had to gradually cut down units because I was getting such bad lows. Im now down to 5 units (was at 4 but bs got too high). I eat pretty well and keep my carbs down but I have really bad spikes (around 200) when I eat 30-35 carbs at a meal (which is what my educator recommended). However a few hours after I eat I'm back down to 80-100. I was told I will need to start using humolog soon, but Im still a little fuzzy on when. My endo said when I'm seeing 200 before a meal is when I should start with a couple units, but I'm wondering if I heard her wrong. I unfortunately do not have health insurance until October 1st. I'm just curious about other people's honeymoon periods and how they knew they were over, and when they started taking the fast acting insulin. Thanks in advance for any information or insight you all may have!


11 replies

littleladyliza
littleladyliza 2014-09-20 22:42:31 -0500 Report

Thank you! I do think I need the humalog…I do have it already because we knew I was losing my health insurance for a short period and didn't know when the honeymoon would end. I'm just afraid of starting it without a doctor telling me to I guess.

kimfing
kimfing 2014-09-21 10:24:33 -0500 Report

I would wait to see Dr or educator as they will figure out your ratio. I would recommend logging all food n carbs u eat and all blood sugar readings so u can go in armed with all the info. It will help them figure out your carb to insulin ratio

littleladyliza
littleladyliza 2014-09-20 22:36:46 -0500 Report

Once you find the right dosage you will feel so much better I'm sure!

Barry Mckenzie
Barry Mckenzie 2014-09-22 23:12:59 -0500 Report

I see you wrote here ""Once you find the right dosage" …Then we will feel better. but can i ask you how can i found right dosage from anywhere ?

Why i did ask here ?? Because you did not give me surety to acquire a right dosage. Do you have any direction to get a right dosage ??

littleladyliza
littleladyliza 2014-09-23 07:59:02 -0500 Report

Well I have read and have been told that by trial and error you will be able to find a dose that is suitable for you to keep relatively good control of your blood glucose. I don't know if there is really such thing as the perfect dose, but one that will help you to keep your glucose level in a safe range.

kimfing
kimfing 2014-09-20 22:17:44 -0500 Report

Hello. I was dx April 2013. Started off on levemere which is like lantus. Started at 5 u then last may went to 7. I started humalog shortly after starting the long lasting because like you, i would have the highs post meal on the same amount of carbs or less and was dropping too much weight. My Dr was concerned and i explained to her what was happening and that's when i decided to do humalog, low carb ratio w meals. Bs were wonderful. Felt much better.i believe my honeymoon stage is over shortly after started using insulin pump this past June. My basal went from 4 units per day now to almost 10. Carb ratio went from 1:20 to 1:10 for breakfast and lunch and 1:12 for dinner. At my last apt end of august my Dr agreed that honeymoon might finally be over. It is different for everyone. I hear it could last days or years.

I believe if u feel u need meal time insulin, you should ask to be put on it. Be your own advocate. My Dr is awesome that way. I was nervous she wouldn't recommend the pump since i didn't use much insulin. Her response was, the pump is only a way of administering insulin and if i wanted to be on it, she would highly recommend it.

Good luck, we are all here for you

ms mae
ms mae 2014-09-20 21:27:48 -0500 Report

Yes.. BUT i do now how you feel it is a very scarey thing i bottomed out one time 53 and its not a good feeling which was prior to insulin.. I was taking oral meds then.. I can't really say i feel better yet i am still trying to get to the right amount of insulin to get my numbers near where they belong but lantus has never gave me anywhere near close to the low numbers

ms mae
ms mae 2014-09-20 21:13:33 -0500 Report

I am new to Lantus insulin am now up to 22 units and so far so good.. I started at 10 and gradually have gone up since.. I am at 22 now but still seeing high blood sugar numbers. I was instructed to increase 2 untils daily until i get to numbers being around 150 upon waking up in the morning.

littleladyliza
littleladyliza 2014-09-20 21:20:19 -0500 Report

Do you feel much better now that you're taking it? I know I felt worlds better when I started the lantus…that is until I started seeing the 60s!

TooSweet60
TooSweet60 2014-09-23 14:19:53 -0500 Report

Have you had any swelling of feet or legs? I started at 25u made me low down to 10u to high, back to 25 then 30, then swelling got everyday and more, He raised my lasix to 40 mg 2 times day.
If I breathe food Its like I gain a pound but i was 158-160 when started month and week ago now if I eat I shoot to 164-165 then down its like breate food and i flucuate within a 5 pound range. I had failed back surgery and hard for me to walk alot when I do sugar goes down. I take 22u at this time ( past 10 days) still swell somewhat, Sugars 124-300. Does it ever level out? Does swelling stop. I cant just switch to another insulin on a program for uninsured, I cant afford too. I like Lantus but the swelling uggh and the numbers but my A1c in a month and a week from 14.9 to 10.4 to 8.2. The swelling worries me but doc ups insulin, nd lasix and dont seem worried. I take Glyburide and Metformin as well largest doses you can take, my carbs are like 15 a meal x3 and snacksx2 3-5. I felt great until the swelling. Cannot find any good info on this

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