Recognizing and treating diabetic autonomic neuropathy

testalot
By testalot Latest Reply 2014-09-15 14:03:43 -0500
Started 2014-09-11 16:30:09 -0500

After reading this article a shiver ran through me…then I broke down. I just cant take it anymore. I should clarify that I got adult onset diabetes (T1) about 6 years ago and every year since things have just gotten more and more out of control. Now I'm dealing with severe neuropathy, erectile dysfunction, and constant diarrhea. I've just had it and reading this article only drove home the graveness of my situation. There is just no quality of life left. I lie down for 10 minutes then have to stand…I stand for to long I have to sit. I dont know what else to say or do anymore. I was hospitalized last January for ketoacidosis and spent a lovely 7 days in ICU. It wrecked my teeth, destroyed my bowels and now it seems all of my struggles are simply leading to a sudden end. This disease has friggin won. Thats all I can say.


8 replies

Grandmama16
Grandmama16 2014-09-15 14:03:43 -0500 Report

Thank you for your comments. Sure hoping grandson reduces beer consumption. He doesn't realize how lucky he is. I wish I could show him some of the stories here. Praying you will feel better.

jayabee52
jayabee52 2014-09-11 20:38:59 -0500 Report

Howdy Testalot
Yes, things seem bleak for you at the moment, but don't let this turkey of a disease get you down.

You undoubtedly know that of everyone who is born 100% pass away eventually. IMHO quality of life is what you make of it.

I could be singing the blues myself since I have T2, am needing dialysis, have a prostrate restriction which keeps me from urinating fully and I have to wear diapers to contain the dribbles which come when my attention is elsewhere (like now when I am typing) have burning neuropathy which just won't quit and is painful to even take one step, I have lower back pain, as well as osteo arthritis of my right hip and knee.

However I cannot hold a candle to my 2nd wife and what she laughingly referred to as her "medical challenges". She started off with total blindness at age 14 due to retitinitis pigmentosa, then later on she developed Lupis, an autoimmune disease which attacks one's body as if it were an invader. So she had regular flare ups causing joint pain, also she was a heart patient, had diabetes (T1, I suspect) had COPD, Kidney disease for which she needed dialysis, had fibroids so bad that they had to completely take out her sexual organs, and other medical challenges that I have likely forgotten over the years. Yet she was the sweetest, most loving most funloving person I had ever met. I couldn't help but fall in love with her. If anyone didn't have reason to have quality of life, it was her, yet she had quality of life very much because she didn't let her medical challenges keep her down. She'd get "down" every so often, but she didn't stay down for long. and I am honored to have had a part in her life.

I encourage you to find some positives and enjoy some of them. Get some humorous movies or comedians to help you laugh.

God's best to you
James

testalot
testalot 2014-09-12 01:13:41 -0500 Report

It seems silly for me to complain knowing how many other's suffer from this nightmare. I to am having bladder issues (at nigh mostly)
But I digress…
I'd like to thank you for putting things into a tangible perspective. I just lost it for a few hours.

God's blessing's to you and yours as well
Dave

jayabee52
jayabee52 2014-09-15 01:32:00 -0500 Report

Dave, we all have times when we lose it and that is understandable. It is also why I come to DC and hang here.
I get to see others and their difficulties and often I think I'd rather be me than them, and also to be able to help others deal with their troubles when they feel the need to vent.

I know that when others need to vent you will provide a listening ear and a few words of comfort to them as we all "pay it forward".

Blessings!
James

Gabby
GabbyPA 2014-09-11 18:46:26 -0500 Report

What article did you read?

I am so sorry to hear that it has taken over so wildly. I would hope that you could get some control and at least feel that you are making some kind of progress. Even a little toe hold on things can make a world of difference. Maybe with some support here, you can see the light at the end of that tunnel?
I hope you are at least feeling well today.

jayabee52
jayabee52 2014-09-11 19:45:01 -0500 Report

Perhaps this is the study to which Testalot referred (taken from his discussion title) ~ http://www.ccjm.org/content/68/11/928.full.pd...

Grandmama16
Grandmama16 2014-09-13 14:46:53 -0500 Report

Been reading this…Yipes. I'm so sorry this has happened to you, Dave. When were you diagnosed? My grandson developed type 1 at age 17 due to almost dying from meningitis, not sure which kind. He's 24 and a mighty buff dude, exercises but probably doesn't eat right. Hopefully he doesn't rely too much on fast foods and beer. His baby girl is due any minute. Can this condition reduce his chance to conceive. There's a question. I'm not going to ask him. Grandma keeps mouth shut.

testalot
testalot 2014-09-14 17:58:10 -0500 Report

your grandson sounds young and strong and god willing will always remain so. This disease (as I am discovering) is very unpredictable. Diet exercise and due vigilance are surely a good way for a young guy like him to maintain good health. I hope his daughter is healthy and strong. I dont think he has much to worry about in the conceiving department. At any rate I wish him the best, with his new arrival and health and it was nice talking with you. Oh…tell him to go easy on the beer! lol