Should I see an Endo?

shelbyj1
By shelbyj1 Latest Reply 2014-08-09 18:09:56 -0500
Started 2014-08-05 20:54:01 -0500

I was just diagnosed with Type 2 in early June. I knew I was borderline for a few years, but I didn't take it seriously and here I am.
My question is when should I see an Endo for the diabetes instead of letting by PC treat it. I only have one kidney because my left kidney apparently died when I was a teenager because of repeat infections. I already have protein in my urine. My PC wants to wait and see how I am after some test results come in, but I am afraid to wait because of my kidney. I am having good control with metformin and a strict diet. Am I just worrying too much?

Thanks for any help!


14 replies

Type1Lou
Type1Lou 2014-08-09 17:55:43 -0500 Report

Had I stayed with my original PCP treating my diabetes I truly believe I would no longer be alive today…he didn't know enough about diabetes. After landing in the hospital in 2010 following his advice (that I hadn't felt comfortable with), I requested a referral to an endocrinologist who actually reduced my insulin dosage and re-educated me about carb counting. With only one kidney, I would recommend seeing an endo for your diabetes. They are really the specialists who can help you gain control.

shelbyj1
shelbyj1 2014-08-09 18:09:56 -0500 Report

Thanks Lou. I agree. All my PCP told me was to stay away from white bread and rice and to eat a lot of greens. I researched as soon as I found out and am eating a low carb diet without much protein. I don't eat much protein because of my kidney. I ask my doctor if I could test at least twice a day, but he will only prescribe enough strips to test once a day. I feel I should be able to test as much as I am comfortable with. I am absolutely gonna ask for the referral to an Endo.

Thanks,
Shelby

jigsaw
jigsaw 2014-08-09 08:46:51 -0500 Report

I agree with jayabee, but it just might be a good idea to see an endo also, especially if he specializes in diabetes.

It is generally NOT recommended to take Metformin, if your kidneys are not healthy!!! Most doctors are aware of this. Information from the makers of Metformin state this!
I would certainly question my doctor, and look into it.

My experience has been that endos are generally more adept at treating diabetes then the typical PC. I have seen a couple of endos, in my 20 years of diabetes, and in general, they were way more experienced with diabetes medications, and which medications were most appropriate to prescribe.

shelbyj1
shelbyj1 2014-08-06 03:27:32 -0500 Report

Thank you jayabee52. I am so sorry you are going through dialysis. I just got the results of my blood and urine tests back and I am really confused by the results. My eGRF is above 60, but everything else they tested is abnormal. I am going to insist on seeing a kidney doctor asap. I have not been diabetic long, so I believe there is some underlying issue going on here.

shelbyj1
shelbyj1 2014-08-09 10:19:33 -0500 Report

Thanks jigsaw,

I actually asked my PCP about that. He said that I only couldn't take Metformin if my eGRF was under 45. I don't want to take any chances though. I see my PCP on the 18th and I am going to ask to be refered to an Endo. I hate to change meds because I am doing good on the Metformin, but my kidney health is more important. I hope I can get it all straighten out soon.

Shelby

jayabee52
jayabee52 2014-08-06 17:51:09 -0500 Report

Howdy shelby.
You may certainly use James if you'd like

I believe seeing a Nephrologist would be a wise move. Kidney issues are not just due to diabetes. 49% of the folks in dialysis have diabetes and 49% of the folks in dialysis have hypertension (high BP) so as hypertension rarely has symptoms It could be due to that.

You want to maintain the health of the one kidney that is working as long as possible. The Nephro has tests the PCP doesn't know and maybe can give a better understanding of what is going on in there.

I queried Google re: eGFR 60 and this is what I found on one of the sites ~ http://www.renal.org/information-resources/th...

shelbyj1
shelbyj1 2014-08-06 18:16:09 -0500 Report

Thanks James, I'll take a look at the site. I have normal to low blood pressure the majority of the time, so it's not that. I hope the nephrologist can figure out what is going on. I made an appointment for Sept. 8. Hopefully will get some answers!

Shelby

jayabee52
jayabee52 2014-08-06 02:46:58 -0500 Report

Howdy Shelby
Not only would I recommend an Endo, but if you don't have one already, also a Kidney Dr (Nephrologist) You need to look after your one good kidney. You don't want to have to have your kidney fail you which would necessitate Dialysis (that is if you want to live —- I am on dialysis 3 days a week for 4 hrs a session, so I know)

God's best to you
James

Gabby
GabbyPA 2014-08-06 06:41:00 -0500 Report

I agree with James, that was my first instinct. Even seeing the kidney doctor first. We can live without one, but you want the health of that one you have to be monitored closely.

shelbyj1
shelbyj1 2014-08-06 14:34:09 -0500 Report

Thanks Gabby! I am going to call today I think. I don't have an appointment with my PCP until the 18th and I don't think I want to wait that long. I'm glad I can get my lab results online, then I don't have to wait for appointments to know whats going on.

Harlen
Harlen 2014-08-05 23:17:24 -0500 Report

If I where you I would .
With only one kidney , it's just too beg a risk. It may take time to get into see one.
But that's me

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