Not working!

By Blue Latest Reply 2009-05-17 14:11:53 -0500
Started 2009-04-12 13:26:16 -0500

I am really struggling with getting my blood sugar down. My Dr. has put me on 3 seperate meds, and doubled the dose on them all…no help! Now he has me on Lantis (insulin) 21units at night…hasn't helped, and is now upping me to 10 units at night and ten in a.m. I am supposed to increase by 2 units every two days. I am up to 20 units…p.m. and a.m., barely touching it still! Has anyone else had this problem?

33 replies

Lanore 2009-05-12 12:19:04 -0500 Report

Hi I am going thru this right now as well. I take 32 units of lantus at night and I am doing sliding scale plus 6 units of novolog three times a day. Does not seem to be working for me either. Lanore

Blue 2009-05-16 10:29:02 -0500 Report

Hi Lanore, it's so frustrating, huh? I am now looking into natural ways of helping my body, it might work better than all the chemicals they throw at us!! Have a great day! Blue

rascal37055 2009-05-09 12:12:40 -0500 Report

yes i have had the same proplem and none of the insullin works by takeing shots its almost like your body is rejecting it. the dr had to put me on a insullin pump before it would start working

2009-04-26 19:58:58 -0500 Report

Ya know, diabetes just amazes me. Blue you are Type 2 and on oral meds and insulin and still having problems with high BS. I'm Type 1 and take less insulin than you and I go hypo all the time. Just when I get comfortable with diabetes, I read this and I'm so confused again. I keep screaming that I'm NOT diabetic and not Type 1. The doctor's scream back at me and tell me I am. I am flying out of state this week for another opinion. It might be a waste of my time, but at this rate they are still going to be saying I'm a Type 1 that needs no insulin. I'll let you guys know. I hate what everybody has to go through. Just plain old hate it. Blue, I hope your BS comes down. Let us know if they change anything and especially if it works. Hugs friend, Angie

Blue 2009-05-06 23:18:07 -0500 Report

Hi Aru! I'm sorry it has taken so long for me to write back! I have been in one of the worst funks I've had in a very long time!!! I'm feeling alot better now though, I replied to Ali, it is also for you too! Yes, I do hate the diabetes, it requires that I have a more stable life than I do! I would love to be free again to go all day without eating and not worrying about WHAT I eat! 'sigh'! It could be worse for me though! and I'll always keep trying until I get it right! Let me know what the Dr.s say!! Love, Blue

genie86333 2009-05-07 12:51:32 -0500 Report


The reason that she/they take so much more insulin than you do & still have high blood sugar is because of the insulin-resistance that is typical of type 2. You're type 1, which is less likely to be insulin-resistant - which means that only a little bit of insulin has a big effect on you. Unfortunately, it doesn't mean you're not diabetic. If your doctors are so sure you're type 1, they've probably done the appropriate tests.

Also, a possibility, if you're recently diagnosed, is that you may be in the "honeymoon" stage - still making a bit of your own insulin from time to time. Eventually that will stop too & then you might find yourself having less lows.

ali eletre
ali eletre 2009-04-26 18:25:47 -0500 Report

my blood sugger is 520 and i am taking 40 units morrinng & 30 units at night & i sufferd from the shots because i am taking it since one month .. after i take the shot i feel very tired & dasy but i am tryng to get used to it for my benifet .. so you are not alone in this setuation .. try to accept your diabetic and live with it
aly eletre

Blue 2009-05-06 23:14:09 -0500 Report

Thankyou Ali! I am now on 30 units of ins. at night, and again in the morning, it is finally starting to bring it down. I often wonder as well, if a different type of insulin would work better! Alot of the new meds that come out are pushed on us by the Dr.s and sometimes they are really worthless! I wonder if maybe the older ones would work better? Blue

Sandi C
Sandi C 2009-04-22 12:20:25 -0500 Report

Yes I have had this problem, and at one point which was the final straw , I was at 100 units at night and 100 AM of lantus. I was finally pit on the pump and trained in using it and now my readings are almost where they should be and I feel great. Sounds like your body is not taking to what you are doing. I got sick and tired of the trial and error bit and you feel bad all the time. Get a different DR. that will listen to you. I have a great diabetic team. Good luck

Blue 2009-04-23 12:34:11 -0500 Report

Thankyou so much Sandi! I will definetly be looking for a new Dr. not only because of the lack of interest with my diabetes, but the lack of interest in me at all! It's so hard to find a Dr. who doesn't want to play god or feel that they are above you! Have a great day! Blue

Sarguillo 2009-04-23 12:49:59 -0500 Report

a good doctor that listens to you is like finding a gold mine. I went through 5 doctors and about 10 years out of my 12 years as a diabetic without being under a doctors care because I counldnt find a doctor I not only respected but one who listened to me and let me be a part of my treatment. I found one. Or I should say, he found me. He was part of my Medical team at the hospital that I am a memeber at and I was not under the care of any doctor. I kept getting letters from him urging me to come in and see him. Because of the other doctors that I had bad expierences with, I put him off. He kept after me for about a year before I finally, just to shut him up, went in to see him. First thing I noticed was a cut out of him, a life size picture of him in the lobby. I was thinking, he must be full of himself. Then i notice the grafetti all over his picture and it was all positive. People were leaving notes to anyone who would see this cut out saying that he was a great doctor. I had my visit with him and he came in and sat down with me and just talked. No folders for him to look at while he talked to me, witout looking, no, he had empty hands. sat across from me and talked to me while looking at me. I wasnt a folder for him, I was a person. We just talked. Discussed what other doctors had advised. He asked what did I think worked and what didnt work. He then sugjected that I take a blood work pannel. Said he didnt care what it showed, not to worry what it would accuse, just he needed to know where we were staring at. He then offered 2 different treatments. told me the pros and cons of each and let me choose which one I wanted to follow. scheduled my appointment for my blood work. And a return appointment, which I kept and eveyone after that. Funny, He asked me to do a Diabetic refresher course and see a nurticionist. He then turned my care over to a nurse that is on his team. This was for the next 3 months while they watched my numbers very closly. I was emailing them on a weekly basis to them. They informed me I gradguated out of their course last month. I am now under only his care. But not really. since I a taking care of me. I contact him to schedule my next blood tests. I contact him if I need anything, knowing that he will reply. I contact him via email. Its a system that seems to be working. Also, I get my blood work results via email. I always expect an email within a day after from him with comments on what the tests show. This is a doctor that I cherish. Like I said, like finding a gold mine.

Blue 2009-04-25 21:43:29 -0500 Report

Thankyou so much Sarg!! You are so right, and I am so very tired of seeing a Dr. who doesn't like me, much less wants to actually DISCUSS anything with me! I will keep looking though!! Blue

pop2 2009-04-14 12:41:04 -0500 Report

Yes my bs is hard to control so my dr has put me on a slideing, scale I take 70/30 humulin in the am and again in the pm about 35 units of last about 12 hours but between meals I take any where from 7 to 12 units of regular humulin insulin because different foods do spike my bs I test 4 to 5 times a day
to keep better control I can run highs from 200 to 300 if I don't watch and test, but I run in the lower 100s by choice of foods I eat. potatoes and bread is some of the foods I can not eat very much of .With exercise I have not had to use much reguar insulin.But until
I got it in range it would spike.all the time.

cyncyn 2009-04-14 11:14:38 -0500 Report

everyone has pretty much said it all. diet and testing is so important. go thru this on a daily basis with mother-in-law! she has got to where, she don't know when her BS changes. her body has got used to the High feeling! not good. she thinks, that she can eat want ever, because she on medication. she thinks this conteracts the food. her dr. says, she's gonna do what she's gonna do! he not much help! at least you all take this serious!

Blue 2009-04-14 11:29:42 -0500 Report

Hi Cyn, my mother is the same way, eats what she wants, although her meds seem to keep her blood sugars level! Even her ac1 is good! HOWEVER! She's about 5'2" and weighs 360lbs!!!! She doesn't move around much, is lazy, doesn't like herself and causes trouble for others around her. This also gives me more incintive to get my act together!!! Plus, I'm only 46! I'm too young and loving life too much to destroy myself! Have a great day Cyn! Blue

edgmon 2009-04-14 06:28:31 -0500 Report

my nurse did the same thing and had me up to 130 units of lantus and 20 units of novolog 3X a day. my sugar kept getting worse. it seems it was too much and my liver had gone into overdrive. my dr took over and had me go to a nutritionist/diabetes educator who took me off everything except novolog. she told me it takes 2-6 weeks of control to get the liver to quit over-releasing glucose. we adjusted my diet but mainly my eating times. added glucotrol after 4 weeks and only use novolog when i splurge. we may add some lantus back at night - 20 units or so. my liver still kicks in around 4am and when it does it wakes me up - something about it triggers adrenaline release in some people. keep up the good work and eat those carbs at the right times in the right amounts. nutritionists are wonderful resources.

Blue 2009-04-14 11:04:11 -0500 Report

Debbie! Thankyou! It is nice to know that I'm not the only one who goes through this, it's also a great incintive to get my diet right!!!! I hope that one day we can all get off most of, if not all, the meds!! Blue

sunshine52 2009-04-14 01:53:25 -0500 Report

Blue, yes, I've had this problem for years, tried all the insulins, byeta, metformins, actos, glucophage - you name it, I've tried it. The only thing insulin did was put 50lbs onto my 5'2" frame and gave me obesity complications. Now, I have kidney disease and they still don't know what to do to get my blood sugars down. I'm on a VERY strict diet and Janumet 1000/50 which is keeping it stable but at around 250. They have now found that I have insulin receptor antibodies and insulin antibodies. What's the next step?? Who knows? I would love to have a blood sugar reading of under 200 for the first time in years - I would rejoice and sing hallelujah!!!!!! Hang on in there Blue, we're not all textbook! Read my website if you like and find out more about what I'm doing to combat the depression.
Take care, and really stick to a cave mans diet - it might help a bit and especially because you are on insulin, which can put weight on you faster than you can eat a piece of toast!

Blue 2009-04-14 11:02:25 -0500 Report

Hi Sunshine! Thankyou for writing and for the info!! I hope you are doing okay! I will keep you in my prayers! Love, Blue

2009-04-13 20:51:48 -0500 Report

Hey Blue,

I'm on an insulin pump, I get insulin every hour, everyday. If I eat wrong, doesn't matter that I get something every hour, if I eat too much, it overpowers the insulin, and my sugars go berserk!! Just TRY to get your eating in line, cause that is the key to this nasty disease!

Blue 2009-04-13 14:50:31 -0500 Report

A very big THANKYOU to all of you! I enjoy your truthfulness and support…way cool! I will be working on the diet thing, I really am tired of the meds! LOVE! Blue

Sarguillo 2009-04-13 12:43:57 -0500 Report

Getting diet under control is important. My dr stated me off with 10 units at night and told me to increase by 2 units evey 2 days untill I stabelized. It took me a month and I was shooting 38 untis a night before I stabelized. I do beleive they want your body to get accostomed to the insulin. So it might take a while. Good luck.

Avera 2009-04-12 22:33:27 -0500 Report


I agree with the postings concerning diet.

What you wrote about concerning your insulin and upping the dose every two days is the same way I was instructed to do so when I first started taking it according to my doctor's instructions. So, I am sure that what you are doing concerning the medicine is right if your doctor told you to do it that way.

BUT…if you keep eating the wrong way, Nothing much is really going to work. With every medication, both oral kinds and insulin, there is only a certain amount one can take without it being dangerous. Your doctor knows this and is always the person to instruct you concerning this.

It is very true, we are ALL different concerning what we can eat and what sends our numbers sky high.

Don't dispair,,,there are still some awsome things you are going to be able to eat. YOU and only YOU can determine just what kinds of low carb foods will please you. You have to put out a little extra effort, because most of the time, we have to make our own low carb sweet stuff. But once you get into the habit, you are home free. Don't look at it as a chore, but as an exciting way to find some really great new foods to satisfy yourself.

Not all low carb foods are diet foods. Actually some of the lowest are high in calories, but again, it is up to YOU to discover what YOU like and what will keep your weight in check.

Just to give you an example of something awesome you can eat that will NOT spike MY numbers and has almost no carbs at all, I will tell you what I made for myself today.

I bought a can of Rediwhip whip cream in the can.

I got a covered plastic bowl and squirted the whole can in the bowl in a circular motion and then I filled in the middle. Then I froze it for 4 hours. When it was done, I had a giant bowl of soft serve ice cream. Mine was vanilla, but they make those cans in chocolate also. There was enough for 4 people to eat in that bowl and the whole bowl only had 13g of carbs. YES, it did have a lot of calories, BUT, it was Easter and I needed a low carb treat.

Sorry for writing so much, but I just wanted to let you know that yes, it does take some extra effort to eat correctly, but it is well worth it.


lois hutchins
lois hutchins 2009-04-13 16:12:22 -0500 Report

Hey Avera
I'ma gonna try that! Sounds delish!!
I will have to do small bowls at a time or I will eat the whole thing in one sitting!!! darn it…lol
I'm watchin calories too.

SkipT 2009-04-12 17:23:47 -0500 Report

You have to get your diet under control. Diabetes is different for everyone, but the one thing we all have in common is that we have to control our intake of carbs. You have to retrain you taste buds. Believe me, I would love to eat bread, but it raises my numbers, so I haven't eaten bread in over 2 years. I have learned that I can actually enjoy other foods. I eat lots of salads, and believe me you can have a field day coming up with different combinations of stuff to put in and on a salad. Here is a website that will give you some wonderful low carb recipes:

You can take control. Remember you have to do it one meal at a time. If you slip, well you just start over again at the next meal. That is how we do it.

I eat to live…I don't live to eat.

Blue 2009-04-12 19:29:28 -0500 Report

Thankyou Skip! I will be printing some of these recipes! Blue

Dancehawk 2009-05-16 21:26:39 -0500 Report

Hi Blue, I use the frozen veggies a lot, we use a bag as the main meal to build around for the two of us, I might add beans or a little meat, I found using oatmeal crackers instead of bread really helps keep my numbers down about 98.
Write down everything you eat then take it meal by meal see what you can switch out, you will be surprised to see your numbers go down.
Toss in 30 min walk each day too!


Blue 2009-05-17 14:11:53 -0500 Report

Thankyou very much Catherine! Oatmeal cakes! That sounds really neat! I have been struggling over the bread thing and I do try to stay away from it as much as possible. I'll be trying those! Have a great day! Marie

SkipT 2009-04-12 14:03:46 -0500 Report

What are you eating?

Blue 2009-04-12 14:43:23 -0500 Report

Hi Skip! Good question! My diet sucks truthfully! However, I'm wondering why other people can eat worse than I do and their medications work for them? I do know that changing my diet would help alot though. Blue

bigjrm45 2009-04-12 14:49:45 -0500 Report

what you eat has a big efect on your BG,taking meds is a small part of your health and your diet is a big part .

kdroberts 2009-04-13 07:34:41 -0500 Report

"I'm wondering why other people can eat worse than I do and their medications work for them?"

Simple. It doesn't. They may tell you it does or you (and they) may assume it does but in reality they are not going to be doing any better than you. It's unfortunate but the majority of diabetics, especially type 2, don't check blood sugars, go to the doctor a once a year, blindly take pills or insulin, eat what they want and assume they are fine. It's only when complications set in that they start to take things seriously.

The only way you can beat diabetes long term is to start with diet and exercise because those will stay with you for the rest of your life and are the hardest things to keep up with. You need to find something that will work for you long term though. Then you add in medications if you need them.

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