Is Anyone Else Going Through This?

By summitgirls08 Latest Reply 2009-04-14 13:02:30 -0500
Started 2009-04-11 06:34:59 -0500

Hello everyone…im new here so im not really familiar with how things work…im really happy I found this site though. I have been struggling with diabetes since I was diagnosed in the summer of 2000. Nothing seems to be working for me and i'm really at my witts end…i tried diet, all the pills you can imagine and now i'm on 4 shots a day and, nothing is working…no matter what i eat, my sugar goes up, no matter what i do, my sugar goes up…i haven't had a blood sugar lower than 300 in years…it mostly stays up there and continues up into the 500's…i test 5 times a day and take my shots about 10 to 15 minutes before i eat…that's not working either…my a1c is between 12 and 15 and needless to say, i cannot control that either…any comments, suggestions and help would be put to good use and would be greatly appreciated…if anyone else out there is going through the same thing, it would be nice to hear from you too…any ideas would be great…can't seem to beat this and it is getting in the way of my life with my fiance' and children…i want to do nothing but eat, sleep and drink water like there is no more…please let me know what you think is going on here and maybe what i can try to fix it…i can eat a salad with nothing in it and italian low carb dressing and i spike to high 400's…the only time i can get a "normal" b.s is if i only drink water all day and take my four shots without eating…at that point i get it down to about 120 and feel crappy…i get the shakes, my stomach gets upset and i get cranky…PLEASE HELP…thanks in advance for your time…have a Happy Easter and God bless

15 replies

John Crowley
John CrowleyCA 2009-04-14 10:33:44 -0500 Report

So, it's great that you are seeking information to help you get your diabetes under control. Certainly, most of us would expect your doctor to have been much more aggressive both in the treatment he has prescribed and in getting you educated about your condition.

After nine years it's simply unacceptable for you to feel like you have no way to bring your numbers down.

I would recommend starting by getting an appointment with a Certified Diabetes Educator right away. You should be able to call your doctor's office and get a referral for one in your area.

Next, I would say start keeping very close track of everything you eat--especially carbs--for a while. Keep a journal. Test your blood sugar before you start and 2 hours after you start eating. Also record your insulin dosage and when you took it and when and how long you exercise.

If you'll do those things, then you'll be prepared for meeting with your doctor, your Diabetes Educator, or even getting advice here. But until you really have a good record of the major things that effect your BS, it is hard to help you make the right changes.

kdroberts 2009-04-14 08:58:39 -0500 Report

You don't really give enough information. For instance, hat did you eat yesterday? Everything. What physical activity did you do? How are you keeping your insulin? What type of insulin exactly are they? What tests have you had done? C-peptide, insulin levels, cholesterol and triglycerides, insulin antibodies, thyroid, liver functions, kidney functions, etc?

alwaystryin 2009-04-12 20:24:39 -0500 Report

Short answer seems to be the consensus. You need a Pro to help you on a path. The numbers you talk about are scary, especially over a period of time. Have you had an A1C test?

I started a discussion about the quality factor of Healthcare today. I almost feel discriminated because we are without Insurance.

Find someone somewhere, a clinic ER or something. If you were to go to an ER, with those numbers, in my experience they would admit you and help you!

summitgirls08 2009-04-13 04:21:14 -0500 Report

good morning and thank you for your input…i got my A1C done a few times and it's between 12 and 15…the only thing i was told is that we have to try to get that down a bit…none of the doctors around here seem to feel that my b.s is something to worry about…been to the er a few times and they give me iv, a couple of shots and send me on my way telling me to go see my doctor in the morning…im hoping florida has better doctors than pa…im keepin em crossed for that…thanks so much for your info and replying

cyncyn 2009-04-12 20:13:12 -0500 Report

It sounds like most definitely, you need a new dr.! i went thru this with my mother-in-law. and also ask the dr. for a referral to a dietician. most insurance companies will pay for this also, because it a health issue. the dietician really put a new light on things. and it helps and works. good luck to you.

summitgirls08 2009-04-13 04:17:12 -0500 Report

hello and thanks for your reply…i have been to a few and they both put me on the same diet…i followed it and it failed both times…even if i eat just lettuce and low cal italian dressing my b.s skyrockets…going to try another diet from dr. bernstein that a friend on here told me about…thanks again for the info…

2009-04-11 10:16:01 -0500 Report

You need to see a doctor and get this under control. If you have been dealing with this for 9 years with no success I would suggest a new doctor. Your numbers are scarily high for someone on insulin and eating right.


summitgirls08 2009-04-11 14:05:08 -0500 Report

yeah, im thinking i need a new doc…i hope there's one out in florida that nips this in the butt…i wasn't really worried until i found out what all this can do and be doing to me, my body and my life…thanks a million for the reply…

Blue 2009-04-12 19:41:01 -0500 Report

WOW! I just wrote about nothing working for me too, but I really feel for you! Yes, most definetely see another Doctor! I will be changing dr.s again as soon as I can find one I am comfortable with and who will LISTEN to me when I tell them something isn't working. I am currently at a high dose of insulin and it is barely touching my blood sugars. I know though, that it's time to crack down on myself and start altering my eating habits…stat! It won't be easy because nothing in my life is consistent or stable right now, but I'll figure it out! I hope you are able to get some good help…very soon!! Blue

rbergman 2009-04-11 08:21:33 -0500 Report

Okay, first let me address the issue of you getting the shakes and feeling crappy at a 120 reading. The reason for this is because you have been running high for so long, extremely high even, that a "normal" level would feel like a low for you. I too have experienced this as my numbers never get below 200 and I've had medication and diet changes as well, occasionally I do get down in the low-mid 100s and I get the shakes and the low feeling too because my system has adjusted as best it can to the highs for so long that a normal tricks it into thinking I'm low.
Now for my questions to you…
What type of doctor do you see for your diabetes? What is this doctor saying about your numbers continually being out of control although it seems you are eating right and taking your meds as prescribed? I also see you have been through the pill routine then switched to the insulin routine…have you ever taken both at the same time, or I should say take both medications for your diabetes on a daily basis? I have learned myself from others on this site that one or the other doesn't seem to work for them, however a combination of both types of medicaiton does work, that's why I ask if you have ever been on both types at the same time yourself?
What type of insulin are you on now? Is it a fast acting or a slower time released type of insulin? Are you on more than 1 type of insulin? Have you ever been told to "self adjust" the dosages you take according to what your levels are when you test with your meter?
I'm sorry, I know these are a lot of questions but it does help us all understand your situation a little better as there may be advice that can be given based on the answers.
My other question is, have you ever considered changing doctors or getting a second opinion on treatment or for the reasons why whatever medication you take doesn't seem to work for you? 2000 was a long time ago and if your numbers haven't ever gotten under control in 9 years there is obviously a problem and maybe a second opinion would yield answers as to why that you aren't getting with your current doctor. Several of us have changed doctors at some point for lesser reasons but 9 years of out of control numbers on medications is just as bad as 9 years of not treating at all, please, if you haven't already, find another doctor and get copies of your records from your current doctor and let them see if they can figure out why whatever your current doctor has tried doesn't seem to work.


summitgirls08 2009-04-11 14:03:28 -0500 Report

thank you for explaining the low feeling at a high number…i see an endocronologist for my diabetes and yes he told me to self adjust…im at 40 units of fast acting insulin 3 times a day and 40 units of long lasting at bedtime…i have tried 2 doctors so far and nothing has changed…yes, i was on pills and shots and that didn't work either…the only way i can seem to keep it down is to drink water, take my shots and not eat…as soon as i eat i get a spike and it doesn't matter what it is…neither of the doctors seem to mind my numbers being up high for so long…they act like it's no big deal so i figured it wasn't that bad…we are in the middle of moving to florida so im hoping there is a better doctor that will take care of this out there…thanks so much for all the information…it's greatly appreciated…

Desdemona 2009-04-14 08:46:47 -0500 Report

One thing's for certain- you can't keep on like you are. Your kidneys have to be screaming for mercy,girl!
I know you feel like you're dying when you BG gets close to normal levels. That's because your body can't utilize the food you consume, and it thinks it's starving. You need to get somewhere asap- NOT an ER, because they are only set up to treat the immediate problem. Their function is to patch you up and get you out the door. They are good at that, but they're useless for long term solutions. Get on the phone to your GP today-and tell them what's going on. Tell them you want a referral to a different endo and don't take no for an answer.
You don't need to play around with this. It's serious- and I'm concerned about you. OK?

Davelenn 2009-04-11 06:40:27 -0500 Report

I am getting ready to go to work, but would love to talk to you about this more. Please e-mail me and I will talk to a coworker and see her suggestions, as she is a type 2 diabetic as well.