Latest Results

By rbergman Latest Reply 2009-04-09 18:38:35 -0500
Started 2009-04-08 14:40:09 -0500

Last Friday Laura went into the Lab to have blood tests done, there was some concern that her diabetes was changing which warranted the tests. Today (Wed, April 8th) I got a call from the doctors office that they had her results.
The did an OGTT (Oral Glucose Tolerance Test). They draw blood to test the glucose, then she drank this orange stuff and they test her 2 hours later to see how it affects her glucose level. She was at 87 (fasting) prior to drinking the stuff and 2 hours later the blood draw showed her glucose level at 348!
She had previously had 2 finger stick type A1C tests done and her results were 5.0 and 5.9 from those tests. The blood draw A1C showed it at 6.2.
They also ordered a TSH and Free T4 and T3 test for her Thyroid condition because they felt with her losing weight her dosage may need to be adjusted.
As of last Friday she has lost a total of 14.8 lbs. since February 6th, which is great because between the Thyroid condition and Diabetes she gained a lot of weight rapidly and was up to 107.6 lbs. She is now at 92.8 lbs and is looking great!
Because the tests were done locally but ordered by her Ped Endo, they were sent to both our PCP and her Endo. It was our PCP that called me with the results today. I asked her what she thought these glucose tests show and she said it isn't her call but she believes Laura is getting closer to being a T1 and further from being a T2 but that since she is not the doctor treating Laura for her Diabetes it isn't her decision on what our next step should be. Yes, I understand all of that so, I in turn called Laura's Ped Endo to see what she thought…she is out of the office until April 13th for Easter. Great…now I have to sit and wonder and worry all weekend that my fear of Laura having to be on insulin is getting closer to becoming a reality.
You know, it is one thing to have a child that has an illness/disease. Laura has 3, all autoimmune diseases, and, we've done our best to deal with each of them and to help her cope with having so many issues, and I think we have done pretty well. The fact that her Diabetes is not a definite Type 2 or Type 1 is very frustrating however. The not knowing if or when she will convert from one type to the other bothers me a lot. She has had to deal with so much already and her worst fear is having to inject, which, we were told that if that happens it will have to be done with syringes first, that nobody goes on the pump right off the bat. She has been poked with needles so much that she tries to fight and keep her hands and arms hidden, or pulls away when they approach her with a needle, even the tiny butterfly needles terrify her. I realize if insulin becomes the answer that we will just have to do it and fight or no fight she is going to have to learn to deal with it and accept it, but in the meantime it just makes me feel more and more like the bad guy. Its easy for a doctor to say…okay this is what must be done, they aren't the ones enforcing the rule though, they don't have to deal with all the "Why Me" questions like we parents do.
I realize I may be jumping the gun here in thinking the worst but I can't help it. It just seems like each hurdle we overcome there are that many more ahead of us to deal with and each one is worse then the last.
I am angry, and I suppose a bit depressed over all that I have to put my child through on a daily basis, all the while keeping a "happy face" on in front of her so she doesn't pick up on my concerns and anger.
I know several of you here are caretakers of Diabetics, and some are parents of younger children and so you know part of what I am going through.
I had to accept the fact that her Thyroid went out and that she would take a pill a day for the rest of her life. I had to accept the fact that she has Diabetes and that we had to do everything we could to help get it under control. I even accepted the fact that she has Addison's Disease and that also means pills for the rest of her life. What I have trouble accepting is the indefinite certainty about which type of Diabetes she actually is. I just want to scream out "LEAVE HER ALONE DAMMIT!" and have all of this just go away. Of course I'm no idiot and I know that will never happen, each disease she has is a lifelong commitment. I also know that I shouldn't whine about it because there are children out there with much worse conditions than what my daughter has, but in the meantime I'm here, ranting and raving and complaining because I can't very well do it in front of her, and other than doctors nobody I know personally knows what to even say to me if I start complaining about it, so, here I am, venting to all of you that I'm scared as hell once again over what is going on with Laura.
Thanks for letting me get it out, it does help some.
P.S. On the upside, my profile picture is of her in her dance uniform which we just received today. I couldn't be more proud of her for what she has accomplished through all of this in just the past 7 months since it all began!

9 replies

2009-04-09 18:38:35 -0500 Report

Hey Robin, and I love Laura's pic in her dance uniform! She is a beautiful little girl. I think she's doing wonderful considering all that's happened in the last few months. I know to you it seems like one thing after another, but it will get better. I think about you both daily and pray for great results. Talk to you soon and keep your chin up! Hugs friend, Ang

Two painful feet
Two painful feet 2009-04-08 23:40:08 -0500 Report

Robin, My heart feels so much love for you and your daughter. She is very pretty and looks radiant in her dance uniform. Please tell tell her how proud Iam of her for being strong and sticking to her diet and losing the weight. Because of her determination I will try to stick to my eating plan better. If this sweet little girl can do it so can I. I will pray for you to be able to have a calm spirit during this wait for answer. But from all your different posts I see that you are a very strong person and I know that you will be able to take care of her what ever comes.

Your Friend

Richard157 2009-04-08 16:00:42 -0500 Report

Robin, I started a thread on "Double Diabetes" weeks ago and you responded saying that Laura was progressing towards being a double diabetic. If she reaches that stage she will still be officially be a Type 2 but with a Type 1 characteristic. Many Type 2's eventually need insulin even if they are not double diabetics. Many of them use insulin pumps too and heve wonderful control. I am a double diabetic with great control.

Type 2 meds to control the insulin resistance plus insulin to control the Type 1 may become Laura's treatment. I have been doing that since 1999. I take both Avandia for insulin resistance and insulin (for 63 years). It is so routine with me I don't even think about it. You and Laura won't either after the two of you adjust. You know how healthy I am despite my double diabetes. I know Laura has the added complications of Addison's and thyroid problems but I am betting she will have a long and wonderful life. Just look at her now, fantastic! She will just keep doing better as adjustments take hold.

Good luck to both of you!


rbergman 2009-04-08 21:48:16 -0500 Report

Thank you Richard, you have it explained it perfectly and I understand Double Diabetes so much more from your explanation than anything the doctors have told me. Yes, I know if insulin is the answer we will have to just buckle down and deal with it, I'm just frustrated once again that when it seems we have everything under control someone throws a monkey wrench into the works and screws it all up.
Thanks again,

Judimar 2009-04-08 15:45:38 -0500 Report


I wish I were there so I could put my arms around you and hug you. You are such a strong lady! Do you know that? I can certainly see where Laura gets her strength and bravery from. She is so very beautiful, inside and out.

I can understand your frustrations with not knowing more. You want to help her but you're just not sure what to say or do. You want to prepare her for what is to come but once again you are not sure what to say or do. I wish there was a support group or a counselor she could speak with. You feel so very helpless and I can understand that feeling.

Please know that we are here for you and you are free to vent all you want whether in a private message or in a discussion post. I wish there is more I can do then tell you that you and Laura are in my thoughts and prayers. You are both so strong and brave.



rbergman 2009-04-08 21:51:20 -0500 Report

Thanks Judi,
I appreciate it, with the crazy weather we've had lately, the critters that needed extra care because of the blizzards and Laura's normal routine being uprooted once again it just seems like too much sometimes. We'll deal with this change, whatever it may be, just as we have with all the others and lets just hope this is it for a long long time and we can all get back to some sort of normal soon.

MeiMei 2009-04-08 14:50:50 -0500 Report

Why on earth would they do a glucose tolerance test on someone already diagnosed with diabetes? That is done to diagnose diabetes not determine what type it is. Of course the results are going to be abnormal. I wouldn't sweat it though. You have a lot to be proud of. She has done will with her weight loss. Wish I could say the same.

rbergman 2009-04-08 21:56:32 -0500 Report

I can explain this pretty quick, when Laura was first seen for possible diabetes in Jan by a doctor in Denver, CO he said she was a pre-diabetic and thats why she had an occasional abnormal blood sugar reading with my meter. When we relocated that appointment was already preset so I explained to him that would be our last visit with him and that we found a Ped Endo closer to home.
February 6th was the first appointment with the new doctor, but a late appointment, so, since she was not fasting they couldn't do the OGTT and again, took the readings from my meter and put her on the oral medication. When she was to go back on March 20th, it was an early morning appt. and they were going to do the test then, but, the day before they called and had to move her appt. to late afternoon, so again, the test couldn't be done. So, while there they wrote the orders and sent them with me to have the test done at the local hospital here. Just a lot of circumstances that prevented the test from being done for awhile, and, for awhile the oral meds were working and they didn't want us to incur the cost of yet another test, but when her numbers started climbing a couple weeks prior to the 20th they decided on the 20th it was time to do the test.