By Oryon Latest Reply 2009-09-12 15:14:48 -0500
Started 2009-04-05 19:48:53 -0500

I was recently put on metformin and found out I'm allergic to it! Needless to say I stopped taking it, after consulting with my doctor, but now he's telling me I have to wait until my next appointment (which is the end of July) before he is willing to try putting me on something else. My BS readings are between 250-400 all the time and I constantly feel sick. I have tried making appointments with other endos but there are no openings any sooner than what I already have for the doctors my insurance covers. I'm at a loss.. I don't know what to do!

30 replies

Oryon 2009-09-01 18:48:22 -0500 Report

Sorry I havn't been on here in a while.. have been dealing with a lot lately. I appreciate everyones advice and concern. I finally got put back on insulin and am in the process of getting things worked out with dosing. But I just found out I'm expecting and am now all over the place again. Hopefully things will get worked out soon, even though the dosing will be constantly changing.

tladybug77 2009-09-01 20:20:41 -0500 Report

I went to my ob he suggested I go to my endo and we work together so we did and I never had any problems and felt the best I have ever felt, but just keep close tabs on yourself, when I was carrying my daughter her pancreas started working for both of us so we had to adjust for that. Congratulations

jeffery innis
jeffery innis 2009-09-12 15:14:48 -0500 Report

congrats. oryon on your exspecting …& hope u get everything under control …diebetis is a crazy thing to deal with ..i was doing great 4 yrs. & now im all over the place among a host of other problems that have come up . starting to depress me & that sucks..but u need to realize ur not only taking care of ur self but two of u …so be healthy & wise …prayers ur way!

jeffery innis
jeffery innis 2009-08-24 13:46:39 -0500 Report

yes i agree with mary u need to go to the hosp. & have them check u out & also see who's on there staff that r taking new patents…the hosp. is who refered me to my doc's & im happy with them…but u need to take care of this ..asap!!

Pat Roth
Pat Roth 2009-08-24 14:10:41 -0500 Report

How have you come out? It is now Aug, 24, so HOPE that you have gotten some decent care by this time!! Best Wishes and Hugs, Pat roth

P2putt 2009-07-12 09:00:53 -0500 Report

I just found this Discussion. It is now July. Have you seen any Doc's yet? I hope you have received the care you needed for a very long time. Please let us know. Best to you.:o) Pete

alwaystryin 2009-04-07 12:13:37 -0500 Report

I concur with opinions to get seen now! The last visit my Wife made to the ER, she was admitted because of a possible problem with a foot ulcer, her BGL's were also averaging in the high 300's while waiting for a bed (16 hour ordeal!)

Oryon 2009-04-07 09:30:13 -0500 Report

So I took some peoples advice and called my doctor back and spoke directly with him. He told me the same thing the nurse did… just watch what I eat and he will see me in July. I guess it's time to get to the ER. I know they will treat me while I'm there but what happens once I go home?

kdroberts 2009-04-07 09:45:53 -0500 Report

Actually, they might not. If your blood sugar is 250 or so they will probably send you home and tell you to see your doctor. If you are around the 400 mark they will probably give you some insulin and send you home. If you're lucky they might give you a prescription for insulin and some basic ideas of how to use it. You have to remember, the ER's job is to make sure you're not going to die, once it's done that they will pass you off. Blood sugars at 250-400 are most likely not going to kill you there and then so they most likely won't do a great deal for you.

John Crowley
John Crowley 2009-04-07 10:33:51 -0500 Report

Here's my two cents for what it's worth. I think you should check for ketones. (You can buy Ketostix at the pharmacy.) If you are spilling ketones in your urine, then you definitely need to be seen right away if you have no way to bring down your blood sugar.

If you're not spilling ketones, then I think you'd be better off pursuing kdroberts advice up above about calling your Endo's office every day to see if they've had a cancellation. Most likely you'll be able to see him in the next few days. The ER doc will only treat your immediate danger. So, to get a long-term solution, it will have to be from the endo.

My son feels so awful when he runs high. I can't imagine how you must feel if you're running 300+ all the time.

Whatever you decide, I hope you get feeling better soon.

kdroberts 2009-04-07 10:43:32 -0500 Report

The ketones idea is an interesting one. Are you for sure a type 2 or is there any question that you may be type 1 or even a type 2 with minimal insulin production? It's unlikely that a type 2 would start producing ketones at the levels you are at but not impossible, if you have low or no insulin production then that chance does increase a lot. The ketostix mentioned are cheap and easy to get so it would be worth while testing to be sure. If you are spilling ketones then the ER will definitely do something for you.

Oryon 2009-04-07 12:22:26 -0500 Report

I have checked for keytones and am negative. As for what type of diabetes I have.. that's a tricky one. Every doctor is now telling me that I'm a 1 1/2… producing some insulin but not enough and what I am producing my body isn't able to use. Although I have yet to find a doctor that can fully explain this to me and what exactly it means as far as treatment is concerned.

kdroberts 2009-04-07 12:28:20 -0500 Report

If that's the case you do need to be more careful. Type 1.5 will show the same insulin antibodies that type 1 does but it can take years for the pancreas to shut down compared to maybe days fr a type 1. It may be that you are a type 2 that has no or limited insulin production, especially if you are also insulin resistant like toy say. Either way, the treatment is very similar and so are the risks, insulin is going to be your best bet and until you get some you will have problems. Keep calling the doctor for cancellations!

Sarguillo 2009-04-06 12:24:41 -0500 Report

walk or run to your nearest ER. Tell them you have a cronic codition and that your BS are out of whack. Our conditons can and do change so rapidly that it can and will cause other side effects to happen that can take our lives. No, dont wait, go deal with ths now. And if I were you, I would refuse to see that Doc ever again. Hope there are others that you can go see.

roger 2009-04-06 08:47:46 -0500 Report

see if your insurance has a nurce line they seem to point me in the right path to get things done

kdroberts 2009-04-06 07:01:54 -0500 Report

You will be able to get an appointment with an endo sooner than you think. Yes, they book up well in advance but they don't schedule all the available slots and people cancel. if you call every day and say you have an appointment on X but are wondering if anything has opened up sooner. It may take a few times but I've never had a problem getting one within a week doing that. Just be prepared though, they may have an opening that day or the next day that you will have to decide quickly if you can do.

Your doctor really does need to buck up his act though. 250-400 is not what you leave until the next scheduled appointment.

janetrobe 2009-04-05 23:26:42 -0500 Report

I could not take metformin either. I agree you need to go to the ER. Do you have a primary care Doctor? Some will get you in faster and usually give you meds to help you now. Take care.

rbergman 2009-04-05 20:53:54 -0500 Report

Not that it is particularly important at this point but I was wondering about you being allergic to Metformin. Can I ask what type of allergy you have to it. I have just not heard of anyone saying they were allergic to it before and was curious. Many of us have had stomach issues while on Metformin but they do fade out over time once your system gets used to taking it. Would you care to explain the allergy you have to it please?

Oryon 2009-04-06 12:44:55 -0500 Report

I had the stomach issues from Metformin that I have heard everyone else talk about as well. The diarrhea and nausea. But my tounge swelled up and made it difficult to breathe. I was also passing out and had zero strength.. couldn't even pick up my 2 year old daughter.

dyanne 2009-04-06 23:36:12 -0500 Report

Hi I could not take metformin either it made my heart skip beats, I was put in the hospital. You need to get help now !!! You need to insist on speaking to the dr. himself and dont take no for an answer. Let them know that this is a definete emergency !!!! They will have to squeeze you in. I cant beleive they told you July that is terrible. Please let me know what happens. I wish you all the best.

Antique-Dave 2009-04-05 20:36:03 -0500 Report

I would recommend talking with your insurance provider and see if there is anyone else within driving distance that is a member of the PPO.

Tell them you need to find someone today not July. Mention to them that getting in right away to see someone is going to be cheaper for them then paying for a trip to the emergency room and a hospital stay.

Regardless of if I'm talking to someone at a credit card company or anywhere else, if the person that I talk with doesn't help I ask them for their employee ID Number. I just causally mention that I want to be able to provide it to their supervisor when they investigate why I didn't get the help I needed and in the case of the Insurance company maybe mention that it's also for my attorney when we file the lawsuit.

Then tell them why don't I talk with your supervisor now anyways maybe they'll have an idea that will help me.

They tape all of their calls, so I just talk to them like we are discussing the weather. I try to go from the least confrontational approach to the most but I keep moving up the ladder of supervision until I find someone that is helpful.

Document your contacts with them, if you have to go outside of your PPO to get help it'll cost more but you need to get the help right away,

maxcats 2009-04-05 22:03:23 -0500 Report

You really know what you're talking about! I never think of being that aggressive and probably getting good results. I've never called my insurance co. for help but it certainly makes sense. Telling them that helping you will be cheaper makes all the sense in the world and I'm sure they see things that way too when they get these calls. Thanks for the insight and suggestion.

Antique-Dave 2009-04-06 06:35:43 -0500 Report

I really got lucky last week when I called the insurance company, the person I talked with confided that they were Diabetic as well, talk about helpful, I was prepared for the worst and got the best.

maryka48 2009-04-05 20:31:04 -0500 Report

my son was diagnoed last week with diabetes, he was drinking alot all day on sunday, i decided to check his blood sugars since I am diabetic, he started at 375 and continued to go up… when I took him to the walkin monday morning he was at 521…they put him in the hospital
they put him on 2 different kinds of insulin, MY Advice go to the walkin at your local hospital , I am sure they will do something about it…Good Luck, keep us posted

maxcats 2009-04-05 21:57:38 -0500 Report

I agree with Maryka48, go to a hospital emergency room ASAP. They will have to do something and do it right away. If you don't like their attitude, push them to let them know you are desperate. If that, for some incredible reason doesn't work, go to another hospital. But I feel SURE that any hospital will take you very seriously.

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