Question if diabetes is such a big thing world wide then why so few events for it

diabeticdummy
By diabeticdummy Latest Reply 2014-07-16 14:21:32 -0500
Started 2014-07-13 16:26:16 -0500

OK so i have been reading the news they have auctions, runs, walks, telethons, donation drives, people trying to make difference for like cancer, poor, hungry, homeless, children, women issues, fallen heroes, ETC. the government pumps tons of money at these things and I'm good with all that and we donate what we can to help out but was just sitting here thinking and started googling about diabetes events and things like those listed above for diabetes i don't find a whole lot you can donate all over the place for its research but just doesn't seem to be allot of event type stuff for it maybe I'm wrong and just not seeing it (could be i suck at using computers) or are we a forgotten or are we a disgraced disease just curious so i thought i would get your thoughts on it

Tags: off topic

24 replies

Just Joyce
Just Joyce 2014-07-14 22:13:52 -0500 Report

I think that depends on where you live. In my city they have diabetic support groups as well as walks. I don't participate in either. I am not walking all over the city nor am I going to a support group to listen to people whine and complain about being diabetic.

I just checked my city. They have walks and groups for Juvenile Diabetes and as well as for adults. Our state Health Department had an ad campaign for Diabetes Awareness the entire month of June. The Police Department is training officers to be able to identify residents who may be having a diabetic episode. On Take A Loved One to the Doctor Day, the local radio station does a broadcast from the event and interviews doctors treating all kinds of diseases including diabetes. We had what is called a Day of Hope in my community with health screenings. I served on the committee and made sure there was diabetic screening available. There are even Diabetic Charity Galas and the money goes to research.

I think it is unfair for you to say we are forgotten or disgraced simply because you couldn't find events. You can't sit in your house and hope to find things on a computer simply because not every organization post events on line. You have to get out and get involved to find things out.

If you want a diabetic support group in your area why can't you start one? All it takes is asking your community association (if you have one) to post it in their newsletter asking if anyone is interested in attending to come to a specific location such as a church or community room for the meeting.

Ask your community to have a health fair and volunteer to hand out diabetic information, find out how many diabetics in your community want to get together and walk on some evenings. You can come up with other things to do such as having events for the group and having some fun while doing it. All it takes is one person to step up to the plate and get the ball rolling.

Nick1962
Nick1962 2014-07-14 18:11:33 -0500 Report

Research is a good place for funds, and I think even subsidies for T1’s and the insulin dependent. Great strides have been made in just the last 10 years, and as much as folks bash “Big Pharma”, most of it has come from their research dollars (or grants) and not fundraisers. I don’t think however you’ll wipe diabetes off the planet because food is an addiction these days. Only difference between that and alcohol is you wake up with high numbers rather than a hangover. Abuse either long enough and you’ll suffer.

Jeff82
Jeff82 2014-07-14 15:21:08 -0500 Report

Good points and discussion Nick.
If i had my choice, I think I would use money on research, I think day by day a cure is coming. Maybe not in my/our lifetime, but in the foreseeable future.
You are right, the resources are there for people to learn to manage our disease; educators, nutritionists, etc, but nobody can make people utilize these opportunities. However for the people that do use them or need them, in my opinion, the necessity is endless.
You really brought up a great topic here, great discussion point.

msann
msann 2014-07-14 13:28:51 -0500 Report

hi I have been diabetic 14 yrs I live in south Carolina not a lot of events down here either I guess because we are the south tea,sweets, all have good day! just each person has to take control of themselves and this site helps all of us have a great day

Type1Lou
Type1Lou 2014-07-14 09:05:02 -0500 Report

Both the JDRF (Juvenile Diabetes research Foundation) and the ADA (American Diabetes Association) sponsor various event nationwide. I have been involved in walks sponsored by both, here in Florida and up north (pre-2005). The JDRF is committed to finding a Cure for Type 1 diabetes. They have walks and bike ride fund-raisers and you can check on them at their www.jdrf.org site. The ADA had multiple fund raisers and you can check on them at the following link http://www.diabetes.org/in-my-community/event...

Jeff82
Jeff82 2014-07-13 19:56:20 -0500 Report

Nick, not because it's us, it is a big thing.
"It is estimated that 360 million people are living with diabetes in the world, which is estimated to be 8.5% of the world’s population." (From www.diabetes.co.uk)
For someone like me, who has been type 1 for 31 years, diagnosed at 9 months, I haven't looked for any sympathy ever in my life. I caught a bad break, but that happens. Some people get type 2 for whatever reason, whether they can help it or not.
Point being a diabetic is a diabetic, type 1 or 2, and money should be raised/funded despite stereotypes or sympathies,

Nick1962
Nick1962 2014-07-14 10:51:02 -0500 Report

Don’t disagree at all Jeff, the thing I see standing in the way (stereotypes aside) is where do you throw the money? Prevention? That would be logical, but isn’t this what our school nutrition services are for? Rehabilitation? There again, how much are you willing to throw at folks with no desire to change bad habits. Next logical step is societal awareness, but now you’ve started fighting the food industry and its marketing, and we all know just how well Bloomquist’s ban on oversized sodas went in New York. This is America, and we don’t like being told what we can and can’t do/have.

Of that 8.5% number, only half are probably willing to change their habits, and as a T1 you represent a minority share (less than 10%) of that 8.5%. As I showed in another post http://www.diabeticconnect.com/diabetes-discu...
, when you compare those percentages with the other things like cancer, the various addictions, and other life threatening and communicable diseases, we diabetics are way down the list of importance because we can pretty much manage on our own.

I really agree that something needs to be done. Obviously we need to stop stuffing food into people’s faces, but how? Food police? What I do see happening is insurance companies will start charging higher premiums for those “non-compliant” diabetics just like they charge smokers. I’m really open to suggestions here.

Nick1962
Nick1962 2014-07-13 18:55:30 -0500 Report

My opinion only, but it's a "big thing" because we have it. It's not terminal, or often times even life threatening and most of us "play well alone" with it that we don't need looking after. Plus as Steve points out, no one's going to bat for the guy/girl living on Coke and Doritos, and that is a big perception of diabetics.

haoleboy
haoleboy 2014-07-13 19:14:43 -0500 Report

There has been a bit more recognition given diabetes but it has come, unfortunately, with the increase in obesity, and from the alarming increase in children developing 'adult onset' diabetes.
When I was growing up I remember it being referred to as "sugar diabetes" which certainly didn't help.
One of the reasons I am a vocal advocate of healthy nutrition (through my personal interactions, my blog and on Facebook … friend me: https://www.facebook.com/kitekid) …is an attempt to educate people about the risks of eating the typical "American Diet" i.e. metabolic syndrome of which type 2 diabetes is a major part. Also … although I am still educating myself on this … trying to educate people about the differences between Type 1 and Type 2 (which are almost always lumped together)

diabeticdummy
diabeticdummy 2014-07-13 19:54:45 -0500 Report

isn't a shame it's that way i don't fit any of those categories of a diabetic honestly i didn't even know what it was till i got it no family history not overweight huh hope it gets better for future diabetics i just see people on here that can not afford diabetic simple test strips and that is sad no group they can turn to for help just doesn't seem fair in today's world

Just Joyce
Just Joyce 2014-07-16 13:51:11 -0500 Report

It is sad that people can't afford their supplies. However, people do not take advantage of resources that can help them.

When I could not afford strips, I contacted Bayer and got some that lasted until I saved enough to buy more. Meters are free strips are expensive. Some of the manufacturers have coupons on their websites and some pharmaceutical companies have programs that will help people who cannot afford their medications. All they have to do is look for the company and call them.

People always complain about not have groups or organizations that will help people yet none of the complainers are willing to step up to the plate to start an organization that will help people. All that is needed is a 501c3 and office space. Someone who can write a grant and manage the funds.

As soon as we get our Community Office building up and running this year, I am going to look into having free diabetic education classes for everyone. A neighboring community does it but only for seniors. We are going to have a health fair next year.

No it isn't fair but life isn't fair. I think if people stopped being reactive and become proactive, diabetes aid will change.

haoleboy
haoleboy 2014-07-13 17:20:05 -0500 Report

Nothing sexy about a bunch of fat people that got sick by just sitting around eating Twinkies.

Gabby
GabbyPA 2014-07-13 19:20:09 -0500 Report

Yep, until the stigma goes away, it will always be kind of viewed that way. Kind of like HIV. You get pity if you got it though a blood transfusion, but you don't if you were promiscuous.

Just Joyce
Just Joyce 2014-07-16 13:57:22 -0500 Report

You are absolutely correct Gabby. The perception of diabetes is that only over weight people get it. The same is true with high blood pressure. Even worse are the diabetics who feel the need to hide it. There really is no such thing as a secret when it comes to a chronic disease. The minute you get sick at a family gathering, at work or in public, your secret is out. Hiding it to me means you are ashamed you have the problem. This means you have stigmatized yourself. The more awareness there is minus attaching a stereotype or stigma, the better educated people will become.

treyvon11
treyvon11 2014-07-14 09:54:04 -0500 Report

I never heard that before I know hear in New York there is a lot going on for people with HIV it has nothing to do with how you got it miss
gabby

Just Joyce
Just Joyce 2014-07-16 14:06:57 -0500 Report

treyvon, I agree with you. Here in Baltimore there is help for people with HIV and it has nothing to do with how you got it. It is clear that those of us who are either involved in our communities or who are aware of what is going on would know this.

Unfortunately there really is more compassion for children born with it and people who get it through blood transfusions. That is simply how society views certain illnesses.

People of all ages with cancer get far more compassion than an adult with diabetes regardless of their weight. The media has people believing that diabetes only happens to overweight people which is not true at all. Every time the media does a story on diabetes, the show street scenes and only focus on the overweight person who may not be diabetic but the skinny person with them or around them could very well be diabetic. It is all on how society perceives the disease to be.

Gabby
GabbyPA 2014-07-15 07:20:03 -0500 Report

Events tend to do better for an issue that evokes compassion. When diabetes is looked at as a fat person's disease that you brought onto yourself, it's hard to find compassion in that. That is why the juvenile diabetes has far more events. You have compassion for kids who have this horrible disease. It is all about perception, not always based on facts.

Just Joyce
Just Joyce 2014-07-16 14:00:30 -0500 Report

I agree with you to a point Gabby, when you refer to diabetes as a horrible disease, that adds a stigma to it. People fear diabetes because of what is said. The disease is only horrible for you if you choose to view it in that manner. As a PA I am surprised you would say that.