Can you help?

By JacqueC1987Brittletype1 Latest Reply 2014-08-01 23:43:50 -0500
Started 2014-07-12 22:50:42 -0500

Hello I'm a type 1 brittle diabetic. I am 27years old and having many problems. Since the age of seven I've been on a strict regulation of my meals and blood sugar. I've never been over weight but since my teen years my bloodsugar went out of control. I have also seen specialists since finding out i was a diabetic. I've always been fond of rollerblading and taking walks as well. Never snuck sweets either because i could see how important watching my meals was. Currently i am 27 have uncontrollable bloodsugar swings from 21 to 580 daily. I also have memory loss and seizures as well. I've asked the last 3 specialist for an insulin pump yet my insurance was not ever willing to cover one. I am still fighting to get one. I have 2 Children and a husband as well whom i love and care for so much. As of lately i haven't been able to do much. i am also appealling my SSD case for the the time but it seems to never go right. Can anyone help me out?

15 replies

JacqueC1987Brittletype1 2014-08-01 23:43:03 -0500 Report

Does anyone else feel agravated about someone they are with like when we went running today i must have gotten low n he didn't notice so once we were home i was high cuz my body made sugar but he doesn't believe me ;-/ i never gave myself a shot or ate

Stuart1966 2014-07-17 20:13:25 -0500 Report

Let's start with the EASY pieces, ok?

What IYE would you define as this magical "control" prey tell? A magic wand is used, what does you "under control" look like when the video of your daily life is played back for you or anyone else for that matter?

As someone with 20 years experience, I bet you have insane experience(s) you have forgotten, dismiss/deny and insights that would make "paper experts" weep in humility.

Let's start with the easy… what is your belief as to a significant source for your daily BG whiplash routine??? What's your perspective where it's coming from?

JacqueC1987Brittletype1 2014-07-20 17:14:11 -0500 Report

Oh and BTW I would love to see you in response to my Husband who helps care for me every day any hour. So from now on keep you're opinions about something you are not entailed of off my page

JacqueC1987Brittletype1 2014-07-20 16:56:40 -0500 Report

First off, lets start off with this. My daily routine and habits are quite demanding and no part of an imaginary world. Everything that I fight every day is not because I sneak sugary foods or drinks nor because I do not find testing very important to do. Also may I add that I am sure nobody is fond of syringes or injections but btw there are reasons I am refered to as a BRITTLE TYPE ONE JUVENILE DIABETIC. Somehow I doubt that you are aware of nor have any clue what that pertains of. If in fact you do however, please make sure from now on that you keep you're idiotic opinions to yourself , because. believe me i have enough to deal with and you really aren't even worth this response

Type1Lou 2014-07-15 15:35:12 -0500 Report

Hi JacqueC! My contact at Medtronic has offered to put you in touch with their team to help navigate through the pump approval process. I've sent you a "friend" request so I can either give you his e-mail address or, if you would prefer he contact you directly, you can give me your e-mail address in a private message to me. They are in a position to help you get a pump. Let me know?

Type1Lou 2014-07-13 09:27:47 -0500 Report

What reason(s) were given for denying you a pump? It seems like you would be an ideal candidate. If no reasons were offered, did you pursue the question with your doctor and insurer? Until you know, you may not be able to "meet" their requirements. How often per day do you test your BG? This is often one of the criteria. Hoping you can get the help you need to get under control.

JacqueC1987Brittletype1 2014-07-13 15:48:46 -0500 Report

From the US on medicaid sunshine health

Type1Lou 2014-07-14 07:59:04 -0500 Report

I haven't had any experience with Medicaid but just enrolled in a Medicare Advantage PPO at the beginning of June. They are the ones I hassled with for 2 weeks about my test strips. I have been using a Medtronic Minimed Revel 523 pump since 2011. It has given me better control with less insulin overall and fewer hypoglycemic episodes. Have you contacted any potential pump manufacturer to get their take on this? I will check with my Medtronic contact to see if he can supply any insight.

JacqueC1987Brittletype1 2014-07-13 14:57:19 -0500 Report

I test at least 8 times a day. yes i asked the doctors and they all agree that i need a pump, insurance wasn't willing to help

Type1Lou 2014-07-13 15:13:12 -0500 Report

Did you pursue this with the insurer? What are the reasons they are basing their denial upon? In your shoes, I would first call the insurer to see if you can get a straight answer from them. Is it a state or federal plan or is it a private insurer? Are you in the United States or elsewhere? Different qualifying criteria might apply. I just successfully battled with my insurer for 2 weeks to get the number of test strips I use covered. I also test 8 times daily. I would escalate my inquiry until I got an answer that made sense to me. Then you will be in a better position to pursue pumping or not.

hantuni 2014-07-13 02:13:10 -0500 Report

Hey I had very similar problems, although never over weight I did always crave/sneak sweets ect so a different battle but a similar story! … About 5 years ago I moved out of home and sugars were uncontrollable, down to bad living n understanding, I had the same seizures and memory loss and still suffer with memory problems now,

I've looked in to this but can't find any information on it! Very frustrating! And your the first diabetic I've know to have the same issue.

I fixed mine by going on a pump, I've never fitted since I'm currently 25 n got the pump the December I was 23. So a good year and a half.

I'm English so it's a lot easier to get the help needed to be put on a pump but I would keep up your fight to get one as it certainly helped me.

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