Diabetic Autonomic Neuropathy

By bdl0715 Latest Reply 2014-07-13 09:48:15 -0500
Started 2014-07-12 18:59:09 -0500

I haven't been online for quite some time.

Back in January, I started having trouble with dizziness. I started falling and being lightheaded. In February, I fainted while getting up and woke up laying on the floor. I went to the ER and spend some time in the hospital and was diagnosed with diabetic autonomic neuropathy. Apparently, middle ear, which is a nerve has been damaged by diabetes and my ears can no longer communicate with each other and with my brain. My brain does not know if I am in balance or not, and that is why I am dizzy and lightheaded. I have trouble even watching tv or reading because most of the time, it looks like the room is spinning around me.

I am not suppose to drive, or be left alone, but neither are options for me.

I applied for social security disability in early March and was told it would be 5 months before I hear anything and that is usually a denial. Getting final approval generally takes about 18 months. I got my approval letter last week, in only 4 months.

This is something I had never heard of or imagined that diabetes would affect my balance. I am now learning to get along with my new normal. Keep your numbers in check people. It's not fun!

Has anyone else experienced this or know someone that has had it?


6 replies

Type1Lou 2014-07-13 09:46:15 -0500 Report

Interesting. I've never heard of this diagnosis. Several years back, I was told I had positional vertigo because of dizziness when changing positions. It comes and goes and doesn't recur all that frequently. I've also lost most of the hearing in my right ear. Yet another reason/incentive to try and maintain BG control! Thanks for sharing!

haoleboy 2014-07-12 20:38:19 -0500 Report

Certainly does not sound like fun … appreciate you sharing as it is a great cautionary tale to those not keeping a tight rein on our numbers.
I have to ask … are you saying that you are still driving?


bdl0715 2014-07-12 21:35:37 -0500 Report

I drive very small distances. I know I shouldn't be, but I have no choice. Also, my vision seems ok driving and I have not fainted in 4 months. The small things are what's a problem, like reading. I can't read a book very well, but using the computer or tv is not so bad now.