JDRF

sweetdiabetic
By sweetdiabetic Latest Reply 2014-07-12 21:25:31 -0500
Started 2014-07-10 15:47:42 -0500

Does anyone back the JDRF? If so, why? Have you received any benefits from doing so? I just want to know how fellow diabetics view this organization.

I feel no obligation to donate any money to them. All of the companies I get my supplies from them already donate millions to them (novo nordisk, accu-check, etc). With all of the donations the JDRF indirectly receives from me and all the profits these companies make off of me and fellow diabetics, how could I believe that they are trying to find a cure? My guess is they've already found a cure and are keeping it under wraps. There is no money for them in a cure or if we die, so they keep us right in the middle, making billions a year.

Am I the only one that feels this way?


16 replies

Nick1962
Nick1962 2014-07-12 19:33:06 -0500 Report

No, I’m another who disagrees. JRDF has specific goals which may not be to your individual liking. I’m not a conspiracy theorist, but being previously in healthcare and as the spouse of someone in a major pharmaceutical company, I also tend to get a little crazy when folks start bashing healthcare and “Big Pharma” Don’t worry, I’m not ready to go off yet, but most have no clue what “Big Pharma” even does.

Let’s look at this realistically. 8.3 percent of the U.S. population has diabetes. Of these, less than half are treated and/or are only “statistically” diagnosed based on other health factors (in other words, they don’t even know they have it). In 2010, about 1.9 million people ages 20 or older were diagnosed with diabetes. That’s a little over .5% of the total population who are actively using pharmaceuticals. That number has significantly increased over the past 4 years, but looking at overall U.S. health, considering heart disease, AIDS, mental health issues, age related conditions, birth control, obesity, addictions, and all the other things “Big Pharma” sells to, and when you spread that.5% across the multitude of pharmaceutical companies, major and minor, diabetes cure or management isn’t even pocket change profits.

Another perspective, let’s say there were a cure. A possibility for sure. When was the last time you heard of (or had to be vaccinated against) Polio? Globally there are under a thousand cases today versus hundreds of thousands in 1950. For many of us T2’s (the most common type), diabetes was an idiot light on the dashboard of our bodies – a sign we’re running things potentially damaging and need to get it in check. Considering the amount of T2’s who are “non-compliant”, a cure would be merely a morning after pill and they would continue the lifestyle, and suffer some other form of health issue. Diabetes or not, you can’t live on 64 oz. sodas and biggie fries. Thinking positive, let’s say we wiped out all diabetes, T1 and T2. Hallelujah! But what’s next? Our poor social and lifestyle habits aren’t likely to be cured along with it. Chances are heart disease will rise dramatically as well as new forms of cancer. Heck, we finally get polio beat and then in 1980, AIDS shows up. Until having to get tested for Chikungunya this year, I’d never heard of it.

Trust me, JRDF, the ADA, “Big Pharma”, and the health industry aren’t using you as a cash cow. Quite frankly, since diabetics can live long and fruitful lives while managing their care on their own, we diabetics aren’t really at the head of the line when it comes to those needing urgent care or consideration. As a T1, you represent about 10% of the diabetic community. On average, what does a T1 (or insulin dependent) spend on his/her condition daily? Numbers I’ve seen say about $10-$15/day or less. For all of you T1’s and ID’s, that’s about $15 billion per year. My wife’s “big pharma” company had $122 billion in sales last year – and that’s just ONE company. The remaining 90% of us T2’s is where the money’s at, but don’t forget, we’re cheaper and half don’t give a damn about their condition. End of the day, as a T1, to the medical and pharmaceutical company, you are a tiny, tiny fish in a colossal pond teeming with fish that can be easily caught by hand.

I am in no way minimizing your condition. It’s real and I hope it gets cured, or at least minimized within your lifetime. I see many positive steps in that direction.

haoleboy
haoleboy 2014-07-11 19:21:13 -0500 Report

Beyond James' excellent point of the profitability of the monetary value of the cure …
To me the flaw with these sorts of conspiracy theories is that they are dependent upon people being much better at "keeping secrets" than history has shown.
Consider how many entities would have been involved in developing and testing this super secret miracle cure. human nature has shown that someone would have spilled the beans.
Mark Felt … need I say more

sweetdiabetic
sweetdiabetic 2014-07-12 13:21:15 -0500 Report

Yeah you do need to say more.

James has no valid point of profitability and monetary value of a cure. Even if it was seen as profitable as selling insulin, it wouldn't have the residual effect, nor the same price elasticity because there would all of the sudden be substitute items. That's just scratching the surface of the economics of this situation.

If we don't ask these questions, who will? Besides, it's no secret that people have been cured. Google it.

People are spilling the beans as we speak. It's just very convenient to view these people as crazy conspiracy theorists.

haoleboy
haoleboy 2014-07-12 13:52:09 -0500 Report

that would be an "inconvenient truth" in your book?
As a diabetic what would be my benefit for denying that there is a cure … wait … don't tell me … I have been bought off by big pharma and the ADA. LOL!
Apparently you have done the "research" so how 'bout you save this old disabled diabetic the effort and bandwidth and share this proof of which you seemed to have special knowledge.
Or do I have to know the secret handshake?

sweetdiabetic
sweetdiabetic 2014-07-12 14:01:34 -0500 Report

Maybe you are bought off. I don't know you. But I have presented you with the facts behind the economics of this. Insulin has the lowest price elasticity of any product in the world. There are no substitutes.

You haven't provided me with on fact. Maybe you're fine accepting that you will never be cured, but I'm not. And you don't need to make fun of people looking for answers.

haoleboy
haoleboy 2014-07-12 14:28:58 -0500 Report

As a type 2 I am not waiting for a cure … I am working hard on reversing it. I realize that is not an option for you. I am sympathetic to your issue as I have a niece that I love very much that has been type 1 virtually all her life (she's now 40).
I am not a supporter of big pharma. I understand that their main motivation is profit (in fact publicly held corporations are mandated by law to "maximize shareholder value"), Also not a fan of the diabetes "establishment" and have been vocally critical of the ADA's recommendations concerning type 2 management. So we are pretty much on the same side on this (other than the hidden cure)
While I can't give you facts that something does not exist., you have merely provided a theory as to a possible motive, not facts proving the existence of a cure and the ensuing cover up.

… and I was not making fun of you son … I was merely attempting to inject a little humor into a serious subject.
I encourage you to continue to question everything, refuse to accept the easy answers and pursue the truth.
… and I applaud your passion.

jayabee52
jayabee52 2014-07-12 13:39:41 -0500 Report

SD They CLAIM to have been cured. that is not saying that they are actually cured. Conspiracy theorists? I doubt it.
More like people wanting to make money claiming cure, shilling for those willing to pay for testimony to back up some new book or program which claims to cure diabetes.

jayabee52
jayabee52 2014-07-11 20:30:33 -0500 Report

actually had to look up the Mark Felt reference. I had heard of Deep Throat, but never had learned his identity. And on younger folks who didn't grow up "in the day" the whole reference might have been over their heads.

haoleboy
haoleboy 2014-07-11 20:43:21 -0500 Report

that is why god invented Google

jayabee52
jayabee52 2014-07-11 20:46:31 -0500 Report

Aw Steve here i thought that was Al Gore! LoL!

I believe he thought that he was God but that was just a wild rumor.

jayabee52
jayabee52 2014-07-11 02:36:09 -0500 Report

No I do not feel that way SD. I feel that such an organization is worthwhile. I check any organization out with the BBB and Charity Navigator ~ http://www.charitynavigator.org/ and make sure funds go where they say they are going.

If they have found a cure they would make more money selling the cure than keeping it under wraps.

I choose to be not to be so cynical myself, but I do check out any organization to be sure it has a good rating. As Ronald Reagan said: "Trust but verify"

I pray this helps you

James

sweetdiabetic
sweetdiabetic 2014-07-11 19:04:59 -0500 Report

Thanks for the reply JB.
Maybe you're right…

It is very hard to not be cynical in regards to this issue. Of course I've researched them on BBB, but I've personally worked for companies that have A+ ratings that were purely self-interested companies. I have no doubt that the funds are going to where they say they are going- into research for diabetic products/supplies.

As for them making more money off of selling a cure, that is ridiculous. Insulin is the least elastic product in the world- meaning that no matter how much the price is adjusted the demand will stay the same. That being said, the residual income for these products is unmatchable. And its guaranteed forever. Big pharma companies have no incentive to donate to a company actively searching for a cure, but they do have an incentive to fund a company that is an authority on research and will say they have the best products. They WILL go out of business if a cure is released.

All I'm saying is that maybe we should be verifying more and trusting these companies less. And we shouldn't blindly trust these companies after doing 5 minutes of research on their business credibility.

jayabee52
jayabee52 2014-07-11 20:21:38 -0500 Report

I don't want to get in a dispute over this. I happen to believe that the folks who make a cure will be able to get quite wealthy selling it as BigPharma will seek to cash in on whatever it is which is involved in a cure.

You can hold to a opposite view and we'll still be OK.

and please consider Steve's excellent point above about keeping secrets.