Dibeitic fears

lipsie
By lipsie Latest Reply 2009-04-11 14:36:22 -0500
Started 2009-03-30 08:40:27 -0500

First, please forgive my spelling on the topic! Just sitting thinking, yeah that occasionanally occurs, but I was wondering What has been, is, or you are going through, FEAR with Diabeties. I instance, amputation, going on insilin verses oral medication, all the fun things that come with this. Any thougts here? Or maybe someone is/has been through it already who would like to share please. Thank ya all! Sheila


34 replies

Two painful feet
Two painful feet 2009-04-03 17:05:45 -0500 Report

When I was diagnosed a diabetic, I already had polio neropathy and gastroparesis(paralized stomach). My fear is that these conditions will get worse now that I'm a diabetic. My left leg is mostly paralized from the polio, now I'm loseing the ability to use my good leg. The neropathy has gotten worse this past year. I don't know if it is the polio or diabetis that has speeded up the nuropathy. I'm so confused and worried about this problem. I use a powerchair but would still like to walk with my crutches to get to the bathroom. Some times it feels like I can't feel the bottom of my right foot. The nuropathy pain goes up to my knee and on bad days of pain I can't stand on my good leg. I contracted polio at 18months 1948. So I have been disabled my whole life. But to lose the ability to stand and short walk scares me. I realize (I know that is spelled wrong- I have what is called polio foggy brain)that my problems are nothing compared to many others. Just wanted to to voice my fears.
Your Friend
JoAnna

lipsie
lipsie 2009-04-03 17:17:12 -0500 Report

Mrs. JoAnn You are a fabulous woman I must say. I think a lot of you. I like how you handle things even though its rough times…your a great woman! Sheila

Debi Ann
Debi Ann 2009-04-01 09:47:10 -0500 Report

Lipsie,
Yes, I have some of the same fears. I am now using pills and insulin. Insulin was my answer from having those dangerous highs. My diabetes is finally in an acceptable range. Accept when I have an infection, etc. I would like to invite you as one of my friends. Hope to talk soon.
Debi Ann

Judimar
Judimar 2009-04-03 11:39:07 -0500 Report

My biggest fear was injecting myself. When the doctor put me on Byetta I wanted to cry because I just could not bear the thought of those injections. However since I am currently taking the Byetta I faced that fear. I still remember how I had to literally coax myself to take that first shot.

I don't have many other fears concerning diabetes. It is something I have to live with. I have no other choice. Perhaps having not one but two parents who dealt with this disease has helped me with this.

lipsie
lipsie 2009-04-03 13:50:47 -0500 Report

Understandable…my finace..omg is so terrified of shot BUT mind you can not give me shots..cuz he has to. It all comes to place. And its great to have a support system at that..good to hear you're better w/ those shots. Sheila

lipsie
lipsie 2009-04-03 13:46:52 -0500 Report

Debi Ann: Please do invite me as your friend … would LOVE to talk too! Yeah, it's all a change of life for us eh? *sigh* Makes us stronger though!!! Love yas Sheila

Sally
Sally 2009-04-01 08:27:02 -0500 Report

I have lots of fears, but my biggest one right now is that my brother who also has type 2 is not taking care of it. He was diagnosed almost ten years ago and was put on meds then. He took them only a week and quit. He has not been to the dr since. He eats sweets all the time and feels like crap all the time, but is in such denial about his condition. He suffers from leg pain and numbness and his mood swings are horrible. When I was diagnosed two years ago, I thought maybe we could fight this together and I bought him a meter just like mine and tried to help him, but again it was short lived. I am afraid of what is happening to him. If I try to talk to him about his health, he just gets mad. I am afraid of losing him to this illness. I feel like I have lost part of him already, he is not the same person he was, this beast of a disease has altered his personality and his energy levels. I am afraid for my own health, but I know I am doing everything I can, and will continue to do what I can. But watching him go down with this is heartbreaking. My dad started out as a type 2 and went to type1 before he died, and I suspect my brother may be a type 1 now as well. He hasn't checked his sugar in over a year. I have been praying, because I don't know what else I can do.

Sarguillo
Sarguillo 2009-04-01 11:42:23 -0500 Report

Sally, I feel for your concern about your brother. only he can deal with this. All your wanting to help will not make him deal with his issues. Have you thought of an intervention in his behalf? Tell him that you love him. Inform him that he may loose "His eyesight, his pecker, his extrimities, int that order" as was told to my by my doctor. Pray for him.

Sally
Sally 2009-04-03 11:09:42 -0500 Report

Yes, my mom and I have tried to have an intervention with him, but he just says "I know" when I tell him all the horrible things that could happen to him and most certainly will, if he doesn't change. He is definitely depressed and he just keeps right on working and eating the stuff he isn't supposed to. So all anyone can do is pray for him. He is my only sybling, and I just can't believe he is so careless about his lifestyle. He has never smoked or been a drinker, and I have tried to tell him that not taking care of his diabetes is worse. Thanks for your concern and prayers. It is good to have people to vent to on here.

DiabetesDiva
DiabetesDiva 2009-04-03 13:22:41 -0500 Report

I am sorry about your broher and his depression. Have you ever seen the show "Intervention" on A & E? There was an episode about a young men with type1, who was depressed and did not take care of his diabetes. An actual professional helped with the intervention. Sometimes we tend to tune our family out. Good luck to you and your family.

Kate

lipsie
lipsie 2009-04-03 13:34:57 -0500 Report

Oh Sally, How I do relate w/ you here…maybe not as much but I also have a brother that does not check his sugars or see a doctor even. It's quite painful to watch them do this. See, mine travels a lot so I don't see him so often…though I do often wonder if he's alive..its been over ONE year since we've last talked or seen one another..he dunno I'm in NY even…you care so much, it shows Sally..I will Pray for you all…love yas..Sheila

Sally
Sally 2009-04-04 11:58:45 -0500 Report

Thank you guys so much for your concern and prayers. It is truly a worry and a constant burden for my family. My brother lives with my mom and my dad passed away a few years ago. So the three of us is all that is left of immediate family. My mom called me just a bit ago and told me he went to Dairy Queen last night and came home with a large drink cup, which she thinks had a strawberry milk shake in it. We are planning another "intervention" type conversation with him tomorrow. Thanks again everyone for your prayers.

Sally
Sally 2009-04-11 14:36:22 -0500 Report

Update: The talk didn'at go as well as we had hoped. He did agree to check his sugar more often and to get back on a diet. But he refuses to see a doctor. So, I guess I will keep praying. Thanks to all who expressed thier concern.
Sally

MeiMei
MeiMei 2009-03-31 10:15:45 -0500 Report

My biggest fears (yes fears, plural) are the side effects of diabetes. Being type 1 I have a few more than most occurring sooner than most. Things like loss of eye sight and kidney disease are foremost in my mind. I was a public health nurse on an Indian Reservation for several years where diabetes ran rampant. Amputations and renal dialysis were common place. I try not to think of these things and just live one day at a time, but it is always there in the background. All my life was spent trying to convince others of preventing diabetes and look what happened—although it is not my fault that my body decided to eat itself, I was really dismayed when I was first diagnosed.

lipsie
lipsie 2009-04-03 13:31:02 -0500 Report

Yeah, I can only imagine what you are saying..feeling rather…And I do see your point and why you would feel such a way. I dunno, weird things happen for some reason though. Love ya. Sheila

lipsie
lipsie 2009-03-31 09:08:24 -0500 Report

First off thank you all for answering, I really get to wondering about everyone else and if I am similar or a odd ball and just want to get to know you too. Anyhow, MY biggest fear would be would have to be not making it to the age of where I would be a grandmother, cause I know my 14yr plans to adopt someday and I dream of that. And at that too, being able to help with the little ones yanno, play w/ them. The other was already mentioned but its of my children developing this as well. Righ now I do no have care of them so I can not help guide them to eat healthy foods.My daughter in particular worries me I guess. She is little Sheila ALL the way, SCAREY though, but true…even in health, her emotions…she should be involved w/ mental health like she was before I lost her but she is not and is facing issues very hard, but also something of a thyroid issue, same as I, I dunno…plus she is a plus size girl, always has been. So let me shuddup here, lol her name is Kristen…just felt the need to share that and now I am crying, omg…thank you all, rally thank syou!Q SHheila

Gabby
GabbyPA 2009-03-31 08:43:19 -0500 Report

One of my biggest fears is loosing my independence. I have neurapothay in my feet and I love to hike and be outdoors. I still do that, but it has changed. Kind of sucks sometimes. I guess I don't fear so much like I did in the beginning. Having it has just become part of my lifestyle and I try not to make a big deal out of it most of the time. Every once in a while I get that "limitation" thing happening and I get frustrated, but I just have to learn to work around it. Sometimes I think it is more age than disease. LOL

lipsie
lipsie 2009-03-31 09:00:53 -0500 Report

LOL, I love ya…yeah I know the neuropathy thing…I have it in my feet,legs, and I am confused on this one but I have caropotunel…had surgery once, going back this month coming probably for more surgery..they say its also a form of neuropathy…I just dunno…anyhow, yeah I have a hella time getting around thanks to it myself but I am still out there, just not like befoere unfortunately..but that was a great one Gabby! Thanks. Sheila

tabby9146
tabby9146 2009-03-30 18:08:15 -0500 Report

I have lots of fears, but I don't think about them much now. I did in the beginning, but I won't let them get me down. My biggest fears are heart disease, and losing my eyesight many years from now, or developing kidney problems or neuropathy! Well, I guess I don't have just one or two big fears, but lots! Actually, the greatest fear is my children developing it later in life. My birth father and both of his parents are type2 and me, so they are at high risk! My daughter is overweight, though she doesn't look it at only 7 years old. i am trying hard to cut way down on her sugar. She loves most of the sugar free things I eat. My hubby keeps bringing things into the house that tempt her, that she loves and I wish he would stop!! I have pleaded with him, but it does no good. I have explained to her that daddy can choose to eat what he wants, and ruin his health if he wants to, but I will not let her do that. He drinks soda everyday and has me make that very very sweet iced tea, things like that. I have told her that she won't be in good health when she is grown unless he eats more like I do. I fear getting on insulin someday. RIght now, I am not on any medication. I just got off Metformin a few weeks ago because I lost 25-27 lbs. Doing really well so far. I check my BS twice a day and I still stick to the right foods and exercise.

lipsie
lipsie 2009-03-31 08:57:08 -0500 Report

First, let me congradulate you on your weight loss, wow..and getting off the oral meds, and sounds like you are doing excellent w/ the healthy foods dept., it must be hard having another in the house eatting different, not so w/ you but w/ your little on..so yeah that's gotta be rough, and yeah neuropathy is no fun, I have have it ahh for MANY years so I understand that fear…as well ss the others..I too worry of them..but you have it right, don't dwell on it, good point. Just wish I could listen to that, lol. Take care and thanks. Sheila

dortly
dortly 2009-03-30 13:18:53 -0500 Report

not having insurance each vial of insulin is over $130 and i dont have a good job,and i'm not eligable for state aid.

lipsie
lipsie 2009-03-31 08:50:28 -0500 Report

Ulgh, that is scarey, I am sorry you are going thru this…I don't know what that feels like so I can't relate but just imagine and omg…really,good luck, I will be routing for you. Sheila

Sarguillo
Sarguillo 2009-03-30 12:30:08 -0500 Report

My biggest fear is that I will get depressed and not take care of myself again. As a male, the loss of use of my extremities is a big consern.

lipsie
lipsie 2009-03-31 08:48:51 -0500 Report

Yeah, I totally undestand ya there, I deal with depression already, even prior to this and my fiance may kill me but he is having those ahem issues so its difficult but we'll get thru it, and so will you, chin up! Sheila

datzme
datzme 2009-03-30 12:21:29 -0500 Report

My worst fears are my eyesight being lost and all of the bad bad things that can happen if you just let this go. I don't want to be on more meds taking oral ones now 2x daily and having to be good to myself more. Change was fear to me when I was first told that I had this . But accepting has been ok . I am not going to say great because there is nothing great about having diabetes. But mom always said things could be worse so that's my motto now. So keeping positive helps wonders =)

lipsie
lipsie 2009-04-03 13:28:39 -0500 Report

talk about bad eye sight…I missed writting you!! Sorry there, I completly agree with you though…what a awful feeling or thought rather that is. Sheila

Mom and boys
Mom and boys 2009-03-30 10:20:04 -0500 Report

Like JessEli I was gestational(2x)so shots don't scare me. My fears - heart problems and kidneys. Could be it is because I watched my parents battle these issues. But then again I found out about the T2 about 20 years before they did (they were in their 60's when dignosed). So I pray their complications were from all the years of extra sugar.

lipsie
lipsie 2009-03-31 07:16:25 -0500 Report

Yeah, that's reasonable, but like you said you are well ahead in this and we can only hope that like you said you can beat this with the prior knowledge. Good luck! Sheila

Anonymous
Anonymous 2009-03-30 10:05:57 -0500 Report

I so desperately need to rid myself of this curse and I know it will not be in my lifetime. I'm already too old.

lipsie
lipsie 2009-03-31 07:13:10 -0500 Report

I REALLY feel for you, you sound as if you given up on things and I wish it was not that way though I have to admit I can understand those feelings. Just remember we all are here for you to help however we can. Please take care. Sheila

JessEli
JessEli 2009-03-30 09:07:47 -0500 Report

I had gestational diabetes yesra ago and was recently diagnosed with Type 2. My biggest fears are "when will lows hit?" because with my job, it is very difficult to eat on a schedule. Also, what happens if I can't control this on my own- right now I am just controlling it with diet and exercise and no meds though the doctor is leaning that way. Another is will my son develop this? I'm trying to teach him to eat right and exercise regularly…

Also, I find myself dreading family dinners where carbs are pretty much the norm in my family. I hate the idea of explaining myself over and over when asked why I'm not eating more potatoes or more rolls… trivial things right now. but I am still adjusting to the diabetic lifestyle.

Jessica

lipsie
lipsie 2009-03-31 07:11:36 -0500 Report

Totally understandable fears yea. Its a greaet thing you are aware of the possibilities though, and you can lead you young one or onoe in the right direstion. But yeah, I can see why you would feel this way. I am sorry you have so much on you, if only I oculd help in someway I would, good luck. Sheila