Clinical Studies: Become a Hero

By TRKnight2007 Latest Reply 2015-06-27 03:18:09 -0500
Started 2008-06-09 10:58:27 -0500

We launched a new feature this afternoon - - Clinical Trials. I would love for you all to try it out and give us some feedback.

Clinical trials are a critical part of the research process that help find better treatments and ways to prevent, detect, and treat diseases like diabetes. Unfortunately, it seems that not many people understand how clinical trials work and there doesn't seem to be a clear path to find out about which trials are recruiting or how to qualify.

This is our first step in taking out the guesswork. We hope that we can use the power of the Community to bring about improvements in diabetes management, as well as speed up research for treatments.

Let me know if you have any comments. Thanks.


16 replies

johio 2015-06-27 03:18:09 -0500 Report

Although it was not about diabetes or diabetic care, I recently finished my paticipation in a clinical trial. I actually figured it for a no-brainer when invited. I've never hesitated to use baking soda-sodium bicarb for indigestion. The trial was for possible use of it medically in kidney disease. Something about changing ph levels in body/system of kidney patients. I figured I couldn't lose if I was taking the therapeutic dose and it helped or didn;t help the way the docs thought it might work, I've helped myself and my family as well as other patients. If it doesn't work, or I took the placebo, I still hope the docs have learned something about the disease progression and if their theories have any future use. What could be better than a new use for an "old" product?

Turtle 2009-09-15 22:56:15 -0500 Report

Hi, I just saw this post. I have given my information a couple of times for this endevor. I am willing depending on the situation. I am going to die some day any way so that part does not scare me. If I can do something to help myself and/or others, I am willing to try.

Pauline B
Pauline B 2009-06-11 10:08:32 -0500 Report

Not all Clinical Studies involve drugs. I have been a participant in the Type 2 trial called Look AHEAD that has been going on for 6 years. There's another 5 to go. Purpose was to see if sustained weight loss absolutely prevented heart disease from developing in Type 2 diabetics. There are over 5000 subjects from all over US divided into 2 groups. One group had to lose 10% weight through diet and exercise (I lost over 20%) and the other group attended lectures and otherwise didn't do much else. Statistics are regularly gathered and analyzed and reported. NIH mostly(government)paid for study but we had Slimfat and Ross Labs vouchers, too. We get lots of attention from the staff to motivate us to keep the weight off, but the best is the new wardrobe and increased energy.

Medical community guessed that weight loss would prevent heart disease but there was no adjudicated proof, and they knew that with weight loss there was development of osteoporosis, and gallbladder disease, so we are followed for these conditions, too.

GabbyPA 2009-06-11 08:35:57 -0500 Report

I had signed up, and also has a sign up and I think so does

I will be honest, right now I was looking for the $$ of it. The economy is tough and I know a lot of people do it just for that reason. I was looking for trials just last month. I tried to qualify for a diabetes one and when I didn't qualify, they tried to get me into a cholesterol one. My levels had improved so much, they couldn't use me there either.

I participated in one back in the 1990's at the Miami University for diabetes. One of the meds tested was metformin. It also had a diet and exercise group and of course the placebo group. That study was for several years and I enjoyed participating. I got involved at the time because my dad had just been diagnosed with type 2. I wanted to help.

I will say that now a days though, the trials sound more like a collection for a genetic data base. There are a lot of privacy issues today that I did not worry about before.
I am not for the electronic health care and blanket access to my private records. There were too many connections to the tests being linked to me, my address and my social security number. At least in the last two that I interviewed to be in. The were also run by big Pharma companies. Not research by Universities or Hospitals or independent labs.

So yes, I agree. It is a vital part of helping people. But research your trials before you let them start messing. I was very disheartened.

lipsie 2009-06-11 09:25:37 -0500 Report

Thank you for your input Gabby…I would have never known what to watch for really. Thanks! Sheila

lipsie 2009-06-11 08:07:59 -0500 Report

Oh yeah I would do it too! If I could help others for the future…heck yeah…finally do something right for once. Sheila

2009-06-06 22:17:03 -0500 Report

If I could do a trial, I would, in a heartbeat. If I can do anything to help the doctors or researchers learn something, I'll be there! Let me know where and when! When I went to the Clinical Trials page, I entered my info and such, and it brought me back to the original info page.

G Thomas
G Thomas 2009-06-06 21:53:58 -0500 Report

I was going to do this. Trouble is the Clinic is in St.Cloud which is 62 miles from me. And they wanted me there everyday the first week then once/twice a week after that. I qualified for the study. They really want people that numbers flip flop all over the place and lately mine does. The reason I called in the first place was that over the radio they advertised that they wanted to use a once a week medicine. That caught my attention.

Jonathan - 13553
Jonathan - 13553 2008-06-10 03:13:49 -0500 Report

I think it is a great idea to have this here. I was part of the trial for one of the early CGMs from Minimed about 8-10 years ago, though my endo, and we spent a lot of time talking about it and what I liked (the concept) and did not like (needing my doctor for access to the information, the very thick "electrode", the complete non-waterproof nature of it, among other things), and some of those things were reflected in the later designs.

I've asked about other trials in which I might be able to participate, but he could only point me to the ones in which he was involved. I think this is a great way to help the future — actually, our future and our children's future.

Ginetteb 2008-06-10 02:10:03 -0500 Report

Tony, maybe I'm too old, but from your article and don't understand the instructions, but when I clicked on "Clinical" on "Trial" and the other 2, all it does is take me back to Discussions.

Please give us the e-mail address to punch in. I sure am curious as to what we have to do in order to be a "hero" as you put it.

Dancehawk 2008-06-09 14:57:57 -0500 Report

Im game let us know what to do.
If it helps others from going through what we deal with, or maybe help educate and prevent, I ll do it.

TRKnight2007 2008-06-10 01:51:57 -0500 Report


Within Diabetes Services, you can click on "Clinical Trials". Once you are in, just follow the path. I'd like to know if it's self-explanatory or if there are other things we should do to make it easier or more informative.


Anonymous 2008-06-09 12:33:28 -0500 Report

Im not sure If I would honestly do that..When I became a firefighter I knew I could get killed.I dont think I would put my life on the line so the drug company that sold the meds could profit..Just my view…

John Crowley
John CrowleyCA 2008-06-09 13:10:36 -0500 Report

I completely see your point. However, I also wonder where we would be today if no one was ever willing to try a new treatment for the first time.

Also, not all studies involve new medications. Some simply address new therapy regimens or test an established medication as a new treatment option for a different disease.

Anyway, I would never try to talk anyone into participating in a study they didn't feel good about. But sometimes, clinical trials can provide access to new treatments and to opportunities to earn money that wouldn't be available any other way.

Colin Pye
Colin Pye 2009-09-15 18:29:13 -0500 Report

While there are risks, and the drug company could make profits, my own selfish motivations include helping my own conditions, extending my own life, and that whole dumb "helping others to live better lives" thing too.

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