I NEED to talk to the doctor!

By BeckyJ Latest Reply 2009-03-26 12:14:21 -0500
Started 2009-03-11 14:22:32 -0500

As some of you may know I've been having a lot of problems with my BG's lately. I've been trying to talk with my Endo for the last week and can't get in touch with him. I'm dealing with his nurses instead. Don't get me wrong I'm not saying that they aren't great but I'm really stressing out. Last week I got some lab results from a urine sample my family doctor took. I got a call from the family doc a few hours after the test saying the lab was concerned. Since I was unable to reach the Endo's office she made some adjustments to my insulin and had me call the Endo's office in the morning. Well I've been adjusting my insulin with them but am now back to 465. I'm also having some pain in my side that could be a sign that I'm having another bout of Gastritis. When I talked with the nurse this morning she said she would talk with my Endo and have him call me back to let me know what to do. I asked if I should go to the Family doc to have her check me out or maybe even the ER and she told me no. Since the main problem is with my BG's they think I should wait to see what the Endo wants to do. Well I'm still waiting and no answer yet. Since last wednesday we have added an additional 15 units Novolog with each meal and 17 units on my Lantus. I have a history of dropping low and am concerned I may crash. The family doc's nurse suggested I wait for the Endo to call back as well so I'm stuck waiting for him to decide. Does anyone else have this problem with getting their doc's to call back? I'm starting to feel like they aren't even listening to me anymore. I have been running high (as High as 600) for close to a month now and all they suggest is adding more insulin. I had one low of 62 when I didn't eat enought lunch on Friday but beyond that I've pretty much been in the 250-420 range. I am so frustrated!

44 replies

Bailey - 33038
Bailey - 33038 2009-03-26 03:35:27 -0500 Report

I know exactly how you feel about getting MDs to really HEAR what you are saying. Over a year ago I went to my MD with some major health concerns especially since I am Diabetic and Bipolar. This combination is like a tag team - one trigers the other. My MD just kept increasing my iron and I was taking 975mg up until a month ago. I went to a new MD and she is taking some of my concerns seriously. I can't afford to keep changing MD's. Have you gone to a Gastroenterologist? I don't have a stomach and was having pain in that general area. The Gastroenterologist said it was soft muscle spasms and prescribed medication that has been a life saver. I use to pass out from the pain. Now it subsides within 10min. Hang in there. I know it's frustrating. My favorite way to reduce stress is to have a spa pedicure. It is sooo relaxing and is especially beneficial to Diabetics. Helps the circulation in your feet and legs along with keeping your feet free from calluses and dry skin. Hang in there. We all feel your pain.

BeckyJ 2009-03-26 12:14:21 -0500 Report

Thanks for the advice and sympathy. I currently do not have a Gastro but both my parents do. Based on the results of this last test…the Gastric Emptying Test we will know where to proceed with the stomach pain. Since it is so unpredictable, sometimes going away for weeks at a time my PCP has been hesitant to send me on to another doc. I have a host of other illnessess including Bi-polar and PCOS. Becuase of these the one consult I had with a Gastro (not the one my parents see) suggested the pain may be psychosematic(sorry my spelling sucks!lol) or hormone related…stupid huh!Another suggestion was that it was just a side effect from GERD…Even though I am on Prilosec twice daily and take prescription strength anti-nausea meds. I am lately starting to feel like a bit of a hypochodriac since they can't seem to find anything seriously wrong. I at least know that I now have the Endo's PA on my side and my PCP is fantastic. I have been tested for so many things and they all come up negative. My Dad has Pancreatitis and Crohn's so these were the first to be ruled out. Along with viral/bacterial infections. For now I live on pain meds and Tigan and hope that they find an answer soon. Today especially is a very bad day. Will not get test results back until tomorrow or Monday so I just have to deal until we know more. Thanks for the kinds thoughts. Blessed Be!

zobel 2009-03-22 19:25:35 -0500 Report

dont stress, better control takes time. take control make small changes in diet/doses & keep notes. dr's & nurses work from books, you are not a book you are different from everybody else, so you have to write your own book on your body to make progress. BTW i binge eat, miss lunch, exert more or less energy than planned, numbers go up & down.. its a full time job and not fully predictable, so BE HAPPY that you do as well as you do. and strive to do better.

lipsie 2009-03-22 14:55:35 -0500 Report

I am VERY happy to hear you have that direct contact now that you do need regarding your sugar! That is just great, took a bit, but you made it. Yeah, you have some other issues ahead unfortunately but you seem quite strong and you definately have a strong team HERE to support you however we can, you know that right? Please if there is ANYTHING I could do let me know. I may be new to things but I am willing to learn, help, have af friendly ear, I have free long distance if ya ever even just want to chat..Okay?? Take care! Sheila

BeckyJ 2009-03-22 14:16:22 -0500 Report

I finally got the PA at the Endo office to talk with me. She even gave me her personal e-mail to send in my BG readings and any concerning symptoms. We have been adjusting my insulin levels daily…even when the Endo's office is closed. On Wednesday I'm going in for a gastric emptying test to see if I have Gastroparesis. I'm a little skeptical about this because I have had this unexplained side pain for so long and no one has ever even suspected this condition. The pain I have is on my left side below my ribs and is rigid and very tender to touch. It comes and goes and in the past the only diagnosis was "atypical gastritis" ths was from both my PCP as well as an ER Doc. I have been tested for pancreatitis and crohn's as my Dad has both of these conditions with no results. My sugars are FINALLY back to norm…I haven't gone above 180 since Thursday. I'm just hoping they can find some answer. I'm tired of living on pain meds,(I can only take Loritab 5's, anything stronger causes a strange reaction) I don't sleep well on them and that causes me to lean torn going manic with my bi-polar. I just want some answers. But I do feel better that I now have the PA on my side. STILL have not spoken with the Endo but on April 21st he will definately get an earful from me. lol. Thanks to everyone for all your helpful advice and concern. It has made this all a lot easier to deal with.

jsd2005 2009-03-21 21:47:07 -0500 Report

My recommendation, is to go to the nearest ED. don't wait for these guys to get back to you. This is ridiculous and you're health is at stake.

Frustrated mom
Frustrated mom 2009-03-18 15:52:59 -0500 Report

Becky, have you tried to make an appointment to go and talk to your Dr? If you are not getting any answers, then maybe it is time to change Dr's. I know I have delt with Dr's who think they do not have to make calls to their patients, and then I have known Dr's that bend over backwards for their patients. My son has an endo team that we deal with, and to me , are alot more helpful than the Dr himself.. I wish you the best, and my prayers are with you..

jsd2005 2009-03-15 08:17:16 -0500 Report

How are you feeling? My recommendation would be to go to the nearest ED. You can't run a sugar like this for very long without major problems. Make yourself feel better and get some help today. Don't wait for them. That is truly ridiculous. I wouldn't suggest increasing your insulin until you have some solid answers of what to do from your doctor.

BeckyJ 2009-03-15 10:17:18 -0500 Report

Well the adjustments seem to be working. I'm down to 140 this morning. Still having some flank pain but have Loritab for that. I have a phobia about hospitals because of several incidents where my allergies were overlooked. I am allergic to Morphine, Codine, Phenergan and most adhesives…like the tape they use for IV's. I will only go to the hospital if absolutely necessary. It's a big deal that I was even considering going in before.

2009-03-13 20:33:36 -0500 Report

Becky, I think that's CRAP that your insurance company won't cover the cost of a pump because you aren't Type 1!! It shouldn't matter if you are a Type 1,2,3 980 or WHATEVER!!! The doc can provide PROOF that your overall health would improve greatly, then they should cough up the cash!! I would get even squeekier now, and ask the doc to do something for you concerning the insurance company! Time for the doc to go to bat for YOU against the big bad insurance company monster!!

As you can tell, I'm an activist for ALL diabetics! If the care is needed, then the care should be administered.

Hugs, and you keep on fighting!

BeckyJ 2009-03-14 20:18:05 -0500 Report

Since I am waiting on a Disability determantion I currently only have General Assistance Medical coverage from the state. It covers most of my medications and office visits but not much else. (only covers 3 test strips a day…1 if I were not on insulin)IF I am finally approved for Disability I will still have to be approved for the pump. While I was still working the Insurance that my employer provided did cover the cost of the pump to ANY diabetic as long as it was prescribed by the doc. I had to stop working last June because of some severe lows that landed me in the hospital and was even in a coma for 2 days. For some reason Disability doesn't believe that the problems I've been having with my Diabetes and Bi-polar are enough to keep me from working even with 4 doctors telling me It's unsafe. My hearing is still in the works though and I am just praying it comes through soon.

2009-03-14 20:39:28 -0500 Report

Good luck Becky. I hope everything turns out great for you. I was looking at shoes online and about to order some then I remembered I was low on test strips. No new shoes, but I got some test strips that cost MORE than the shoes I wanted LOL. Best to you hun, hang in there! Angie

BeckyJ 2009-03-13 18:57:45 -0500 Report

Got a little more info today. CBC came back with no signs of infection so we're gonna run some more tests. PA suspects Gastroparesis. She gave me her e-mail address so that I can e-mail her directly with my BG's and any syptoms that pop-up. Got a little more aggressive with the insulin and AMAZINGLY I'm down to 159. YEAH!!! She would really like for me to go on the pump but Medikan doesn't cover unless I'm Type I and I can't afford out of pocket. Bummer. Hopefully having the e-mail link will help. Found out that the nurse had not even spoken with the Doc's about my numbers until last week. This has been going on for 6 Weeks! She now has a letter of reprimand in her file. Poor baby…lol.

daniel velazco
daniel velazco 2009-03-13 19:30:15 -0500 Report

Becky I'm glad that the Doc is getting a heads up with your condition. Now you will be able to get your numbers under control. Take care4,

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-03-13 20:45:02 -0500 Report

"Poor baby" my foot! I'm glad you wrote a letter of complaint. Things like that happen way too often - more often than we even realize. If people don't say something it continues and others receive the sae crappy treatment, which, by the way, could be life threatening. Good for you. Glad your numbers are down and the doctor is on the case now.

2009-03-13 20:48:15 -0500 Report

I wouldn't reprimand her, I'd fire her, she could have caused you your life!

Debe Pendice
Debe Pendice 2009-03-14 19:54:12 -0500 Report

I too got everything done to start on a pump. My insurance won't cover it, and I don't have the money to pay out of poket either…Debe

lipsie 2009-03-13 02:48:23 -0500 Report

Great to hear Becky! I am so glad you stood up to this. I need to follow you in your footsteps for my life! lol Good job, keep us updated. Sheila

2009-03-12 22:24:58 -0500 Report

Good for you Becky!!! Sometimes the REALLY squeeky wheel gets the well needed grease!!! I remember when my Endo and I were new to each other, and he was treating the numbers, and not me! I complained to my internal P.A. and she sent him a 'nasty gram', and that all turned around!! This is great news!! Hugs!!!

BeckyJ 2009-03-12 20:13:50 -0500 Report

Well I finally got an appt with the PA at the Endo office tomorrow at 9AM. The nurse called me this morning to let me know the Dr wanted me to get checked for an infection. I told her my fasting was 342 and she ssked if I could go into my family doc or the immediate care dept of the clinic. I called the family doc and she told me to come in immediately. She was soooo mad at the Endo she personally called to set up an appt. Even with her calling they weren't able to get me in to see him so we settled for the PA. Ran another urine sample (had some bacteria and blood) and CBC. She then called in a prescription of antibiotic to the pharmacy just to be safe, started this afternoon. Will be waiting to see what kind of infection I've got. Since it's my little brothers birthday we did a little shopping and ran by his house to give him his presents. While we were there I stupidly took my lunch injection without checking my BG's first. I've been running high for so long I didn't even think. 71! I had some french fries and OJ and was able to get it back up to 120. Will be asking the PA tomorrow about sliding scale and hopefully this all means I'm on the mend. Definately learned that I have to make myself heard.

2009-03-12 20:46:43 -0500 Report

Way to go Becky! I'm glad you didn't take that person at their word when you originially called that nut! LOL, I learned too to make sure I test before the insulin because I run low a lot. We live and learn and hopefully learn from it! This is trial and error! I think I've been making mostly errors, but at least I'm learning! Thinking of you friend! I'll be gone for a few days. Trying to get there since yesterday, two bad days :( I'll check on you! Hugs Angie

olbeck 2009-03-12 13:16:52 -0500 Report

i am insulin dependent,but insulin sensitive.my doctor has to go up on my lantus 3 units every other day if i am running that high,then use a sliding scale on the r insulin,i am never allowed more than 4 units of r insulin and yes stress worring about it ,makes it worse.

Ginetteb 2009-03-12 14:08:58 -0500 Report

I too am on Lantus and Humulin R. However, I feel kind of stupid because I never know how much of the R to take. It is on a slide, but I don't think I'm using the slide properly. Last night I had supper at 8:00 PM. I tested at 11:00 PM and my BS were 411. I don't think I've ever been that high. So I took 36 units of Lantus (as prescribed) and also took 20 units of the Humulin R. Well don't need to tell you that it was too much R. I woke up with BS of 42. The only reason I woke up is because the phone rang.

Now I'm worried because I live alone and I suddenly realize that if I go into a diabetic coma, nobody will know perhaps for days. My daughter calls me everyday, but if I don't answer the phone, she won't worry about it, she'll think I'm out or something. I just called my doctor's office and told him of my BS episode, I'm waiting to see if he'll call me back. I hope I'm a little more lucky that you Becky. I feel a little paranoid.

Blooter 2009-03-12 16:33:50 -0500 Report

Your MD should prepare you a sliding scale of how much Regular Insulin according to how high your blood sugar is. If you are unsure you should have him explain it until you are sure. Regular insulin is fast acting and you should not be guessing about the dosage… that could be very dangerous. please be very careful

2009-03-12 22:22:14 -0500 Report

I used to be on a sliding scale of R, and the doc wrote the scale down in my one logbook. I made a copy of it, and tucked it in my lil carrier thing. WOW!! 20 units of R, you are lucky your phone rang!! Be careful with that stuff!! I hope your doc calls you SOON!! DEMAND A SCALE!!!

Ginetteb 2009-03-15 12:39:31 -0500 Report

Well, the doctor's office did call me back and his assistant gave me some very specific orders. She said that the doctor almost came out of his skin when he heard I took 20 units of "R". I was told to NEVER take 20 units of "R". I got the message and I promise you, I will obey. That 46 really shook me up. I was also told that if at any time I am not sure of what to do, to call the office and ask them, that they never want me to be in doubt about my medicine.

lipsie 2009-03-15 13:34:59 -0500 Report

Well that is showing that they do care! So that is a good thing. I am glad they did call though. Take care. Sheila

Debe Pendice
Debe Pendice 2009-03-12 08:46:58 -0500 Report

I just want you to remmeber one thing, Your MD is working for you. Without you he wouldn't have a practice. So I think you should call the shots and let him know that from the start. My MD are excellent and I let them know from the get go they are playing no games with me…Debe

2009-03-11 20:28:49 -0500 Report

Becky, I'm feelin alittle pissy myself tonight, due to a doctors appt today, so maybe I'll vent alittle here hehe.

If I was you, I would tell your Endo to take a long walk off a short pier, that he isn't the ONLY Endo in the world, and he DAMNED SURE ain't GOD!!!

May the force be with you on finding a doctor who doesn't just PRACTICE medicine, and ACTUALLY does it!!

BeckyJ 2009-03-11 19:53:05 -0500 Report

Just to clarify a little…My BG's have come down a little with the adjustments in insulin. I'm now down to 300 after taking 35 units with dinner. I still think that is too high though. I'm 35 miles from the Doc's office and it's so busy that even with an appt I usually wait about 30 minutes to see the PA. If I continue to have problems with the pain or my BG shoots up any higher I've decided to go to the ER instead as it's only about 20 minutes away. Thank you all for your concern. I'm just glad to hear that I'm not being paranoid about this. :)

Ginetteb 2009-03-12 13:55:15 -0500 Report

Honey, 300 is still much, much too high. Your BS should be between 75 and 120. The closer to 75 the better. I agree that it's still a sight better than the 600, but the numbers are still too high. Get some help, I don't know who you should see (obviously someone that cares) or what you should do, but get those numbers down. Your health depends on it. In the meantime, do some exercise, go take a 20-minute walk, but just don't sit around. You have to keep moving.

GabbyPA 2009-03-11 19:22:33 -0500 Report

I would march myself into the office. We have that kind of trouble with our PC, they are always messing up on faxing things places, don't return calls and so on. We have just taken up going to the office to get the attention we need. No appointment. It is aggrivating, and we are constatntly telling them why we show up, and I guess they are just too busy to worry about it. So we keep doing that. Specially if you want anything done right away. You have to get pushy. Specially with numbers like you have been having, those should be scary for your doctor!

Blooter 2009-03-11 19:32:33 -0500 Report

Becky, I think it is probably not being taken seriously enough by the nurses and you should call the doctor after hours and speak with him directly. They all have answering services that can get in touch with them directly and if that doesn't work I would go to the ER. A BS of 600 is nothing to ignore. Good luck!

Anngelia 2009-03-11 18:29:43 -0500 Report

I agree with every response on here but especially the one that said you should tell the nurse you will hold the endo responsible if something happens. That is just wrong that he isnt making readings of 600 more of a priority. If it was me I think I would just show up at their office tommorow morning and raise a fuss. If your right there they cant ignore you.

2009-03-11 17:08:25 -0500 Report

Becky, So sorry you're going through this crap. Diabetes is hard enough at times without a DOCTOR'S office giving you the run around. I don't blame you for being frustrated and if the doctor's nurse is taking a reading of 600 as ok, she's nuts! (Sounds like you've had many of them!) I would go to another doctor, if you have that option, or go to the ER regardless of what she said. The ER will have to treat you! I wish I knew what time you actually posted this, DC time is so wrong :( I will be thinking of you and please let me know how you're doing. Vent on hun, you have every right. Relax and take the klonipin, I know it helps me! Hugs my friend! Angie

daniel velazco
daniel velazco 2009-03-11 16:34:47 -0500 Report

As it was said you need to try and relax.
You don't need to get your BG"S getting any higher. How long have you been seeing this endo? If you just started seeing him I would probably look for another endo. Yes those high readings can cause other problems and I know this as it has happened to me. I have retnapathy(bad speller) and have to have lazer surgery to correct the problem.
pray everything works out and you should know you can always vent here. Thats what
we are here for.

BeckyJ 2009-03-11 17:01:38 -0500 Report

I've been his patient for a year, I first saw him last April after being hospitalized with low blood sugar…25. Since then I have only seen him once at a check-up in October. I have an appt on April 21st but until then I just call in to speak with his nurses. They were supposed to call me back today and when I called a little while ago to hopefully see if he had left me a message was informed the office has already closed and they will call back 1st thing AM.

Ginetteb 2009-03-11 15:17:17 -0500 Report

Why don't you tell the Endo's nurse that if something happens to you because of your BG being too high, you'll hold the Endo responsible because of he ignored you.

With blood sugar as high as 600, I don't think that doctors have the luxury to ignore you. I just don't understand.

Sugar that high can cause problems with your kidneys, your eyes, and a whole lot of other bad side effects.

firefightermom 2009-03-11 16:47:47 -0500 Report

I agree with that. I would also start keeping a log of when you call them and get no response back. High BS isn't anything to keep you hanging around about and Im sure you are concerned about your test results also. As your doctor they are suppose to be there for you at times like this. Sorry you are having such a hard time hope it gets straight for you. Take care.

lipsie 2009-03-11 15:15:55 -0500 Report

First off, slow down and take a breathe cuz I can tell you need one. I can understand your concerns and frustration. I am not sure what the heck is going on with your doctor's office, it sounds like they are a mess. Yanno too being stressed out will spike your sugar level up even more so somehow you need to relax a little anyhow. I wish I could really help you and tell you what can fix this problem. Just know we all care here…stay strong. Sheila

BeckyJ 2009-03-11 15:21:11 -0500 Report

Thanks, I just called my psychiatrist to let her know I was getting the runaround and feeling really stressed. She told me to take a Clonazepam and try to relax. I'm feeling a lot better know and am just going to try and stay positive. Been noodling around the sight and that's helping. Just vented a little more than I probably should have. LOL!

lipsie 2009-03-11 15:25:47 -0500 Report

HEY, there was NO problem with you venting like you did. That is what we are here for, well at least I know that is why I am here. Believe it or not I really care about everyone and want whats best and I understand your situation…sorta cuz I also have the anxiety issues, etc. So please NEVER feel like you should not vent or ask for help here, or from me at least okay? *Hugs* Sheila

Next Discussion: diabetes »