Some way YOU get your neuropathy pain under control?

lipsie
By lipsie Latest Reply 2009-03-19 21:51:21 -0500
Started 2009-03-11 12:40:47 -0500

Just wondering, maybe someone has something I don't know of…when you are have a (I call a flare up) painful time with your neuropathy in your legs/wherever - What kind of things do you do/have you tried to help the pain settle down? Ya never know, I may learn a new trick or two with this discussion, I hope. Thanks ya all! Sheila


25 replies

dj7110
dj7110 2009-03-17 19:34:06 -0500 Report

I use to be on neurotin, but my current pain meds seem to help the best of what i've been on. I also have bad back pain due to degenerative disk disease, arithitis with bone spurs. besides the neuropathy. I take 40 mg of cymbalta at night, Fentanyl 75MCG/Hr patches, Methylprednisolone 80MG / Ladocaine injections in my spine & shoulder every 6 weeks. as well as on my worst days hydrocodone APAP 10-650 tablets every 4 hrs..

rbergman
rbergman 2009-03-15 23:09:42 -0500 Report

I have it beginning in my feet, I have the tingling feeling all the time and shortly after putting shoes on, like tennis shoes, I can't wait to get them off because my feet ache so bad and just feel uncomfortable, I talked to my doctor about it back a couple weeks ago when I first saw her for my diabetes and she told me I need to get my sugars under control and if that doesn't stop it then she would put me on a medication for it. Still working on the BGL's and not being able to get them under 200 yet except occasionally so for now the feet will have to wait a bit longer, I have found if I sit in the recliner with my feet up for awhile it does help, its more painful when they are down, like now sitting in this desk chair. I also got into the habit of rubbing my feet together when I go to bed and usually fall asleep while doing this, its an automatic thing I don't even think about anymore I just do it. We also discussed that the NLD on my legs doesn't help any because of circulation issues it causes but I see a specialist for that condition on the 20th and we'll see about getting that under control as well. So I guess my only experience with this that I have found that helps is elevation right now, like most people I can't sit around all day with my feet up but if the opportunity comes up I take full advantage of it for as long as I can.

~Robin

lipsie
lipsie 2009-03-16 01:31:43 -0500 Report

Thanks, actually you are right, it is one of the BEST things for my legs/feet when they hurt but sometimes you just can't do that if you're out n about. If you don't mind my prying what is your condition? I am not sure I know what it is. Being my nosey self…just tell me to shuddup if ya want, really! Sheila

lipsie
lipsie 2009-03-15 19:29:18 -0500 Report

I also take Lyrica 200mg 3 times a day and I LOVE it! I have occaisional issues but compared to before..omg what a difference…love it! Sheila

jsd2005
jsd2005 2009-03-15 19:27:49 -0500 Report

There is a new medication called lyrica that seems to work well for this type of pain. Tale with your Dr. and see what he thinks. It has worked wonderful for me,
Good luck, there is hope sight.

lipsie
lipsie 2009-03-15 15:06:51 -0500 Report

I do take Lyrica 200mg three times a day and on a Duragesic patch even…for other reasons too but for the most part its under control compared to the past…but occasionally I get the cramping, stinging, etc…so thought I would see of others ways..I may just check that out Gabby..I am a big baby with pain…Sheila and pain don't mix well…lol Thanks! Sheila I have had neurapathy over 15 years now,use to take neuronton..worked great at high level for years but just stopped..Sheila

2catty
2catty 2009-03-17 17:36:52 -0500 Report

I get the stinging and pin needles in my neck, side, face, head and legs and feet now. At first I thought something was biting me and jumped out of bed and scared my husband to death. LOL

Gabby
GabbyPA 2009-03-15 14:59:18 -0500 Report

I only have it in my feet and the one thing that I do is put lotion on them before bed and keep them warm. For some reason the lotion will help calm them down. On nights when it is really bad, I end up taking a tylenol PM to just make me sleep thru it. I sure don't want another perscription to take. There is also a cream or spray called Bio-Freeze that helps a lot. My mom has used it, and she likes it. It is a little pricy, but worth it if sleep is your goal.

caspersmama
caspersmama 2009-03-15 14:45:04 -0500 Report

I take 75 mg of Lyrica 2 times a day and it has helped. Also I have found if I get up and move around a little it helps with the burning feeling. So I will go to the kitchen and clean something, that will usuaully help. Plus I have the cleanest kitchen in town. LOL

southern_ lady
southern_ lady 2009-03-13 15:32:50 -0500 Report

I have the same thing and would like to know of a answer,,my leg,s burn and
feel like I,m getting shot,s in the at night,

MeiMei
MeiMei 2009-03-13 14:57:48 -0500 Report

I have taken neurontin (gabapentin) 600mg at night for about a year and a half. It was prescribed 2-3 times a day but it makes me too sleepy when I take it that often and it helps me sleep when I just take it at night. I also take Requip at night (for leg cramps), and between the two of them I sleep pretty well. I understand that Lyrica is another choice although a little more expensive than gabapentin. Also when my blood sugars are out of control the neuropathy pain is more intense.

lipsie
lipsie 2009-03-14 06:34:13 -0500 Report

That's a new one to me, Requip…I may look into it. Though overall I am Okay dealing with what I got and being on the medications I am on. I still have Some issues, so I dunno. Thanks! Sheila

MeiMei
MeiMei 2009-03-16 10:40:23 -0500 Report

Requip is prescribed mostly for restless leg syndrome and Parkinson's disease. The others neurontin and Lyrica are mainly anti-epileptic drugs with a secondary use in MS and diabetic neuropathy which they seem to help. However, like all drugs they have their side effects one being the increased incidence of suidical thoughts, not that that happens all of the time. Just something to keep in mind.

caspersmama
caspersmama 2009-03-16 10:52:49 -0500 Report

I had that side effect with the neurontin but the Lyrica I have had no problem and have been taking a long time now.

2catty
2catty 2009-03-17 17:33:57 -0500 Report

I was taking Lyrica but it makes you gain a lot of weight. Which most drugs made for neuropathy does. I take topamax for mine. So far it is not working but that is because I am on a low dose right now. As far as requip that is for RLS and Parkinson's I take it for RLS. Let me tell ya it works. I can not imagine going back to not taking it. I dropped my last pill down the sink one time so I did without that night and boy oh boy at the difference. Could not do without it.

lipsie
lipsie 2009-03-17 17:55:46 -0500 Report

I didn't realize they are using Topomax for neuropathy now too! I take it for Bipolar…I take Lyrica for neuropathy. They say Topax can help you loose weight, have you noticed any of that yourself? Sheila

2catty
2catty 2009-03-18 18:27:36 -0500 Report

Well so far I have lost 3 lbs. not much but I guess it's better than gaining 3. My friend was taking Lyrica for a back injury and gained 80lbs with it quickly too. He stopped taking it and lost it all back down. I probably would lose more if I wasn't taking so much Lantus. I wasn't aware topamax was taken for bi-polar. Humm my son takes trileptal for his bi polar.

lipsie
lipsie 2009-03-19 02:41:51 -0500 Report

Yeah, I am on Lyrica too…I dunno, I have gained weight this last few months but been on Lyrica for years, BUT just recently went to the doctor and lost 13 pds! YaY! My Phsych Dr. said Topomax was known to help loose weight, I am starting to believe that, cuz I just started it ahhh a month and half ago maybe. Sheila

2catty
2catty 2009-03-19 15:32:34 -0500 Report

That is awesome lipsie. I hope the topamax keeps helping you. I is always great to go to the Dr. and see the scales go to the left instead of the right. I bet if you was not on the lyrica you would lose even more.

lipsie
lipsie 2009-03-19 21:41:44 -0500 Report

Yeah I hear Lyrica makes you gain a whole lot BUT I consider it my wonder drug really. I would be so lost w/out it. I really need it for my neuropathy…otherwise I am in pain and can hardly walk. Plus, the specialist put me on it for my seizures as well so it does play a part of that roll for me as well for me. Thank you btw! Sheila

2catty
2catty 2009-03-19 21:51:21 -0500 Report

I know what you mean. I suffer bad from neuropathy. I had to come off of it though. My body can not handle access weight, it does not do to well with it. I start having to many problems and issues when I gain weight. Which is why I am trying to lose it know. Plus the more I gain the more insulin I have to take. I do my best around 130 lbs. I am not there right now though LOL. I am trying though. He will just have to keep going up on my Topamax.

dyanne
dyanne 2009-03-13 01:09:28 -0500 Report

Hi well there is the anti depressent cymbalta it is also known to help with neuropathy. The only other thing I know of is keeping your sugars under control… which we all know isnt so easy !!!!!
dyanne

lipsie
lipsie 2009-03-13 02:36:28 -0500 Report

Thank you, the ONLY one to respond…lol I just was thinking, ya never know maybe someone has other ideas…yeah I used to use that BUT the doctor took me off it. It doesn't always but I guess in women for some reason cymbalta can cause suicide thoughs..etc…which I had. I was on it for my pain but also depression and it was fabulous at first for months then it switched so fast I was so mad cuz I really liked it. I am currently on Lyrica which helps neuropathy so much but I do have those moments after long days where I am cramps, pains, etc Thanks! Sheila

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-03-13 14:51:38 -0500 Report

How long have you had neuropathy? Have you asked your doctor for suggestions? Have you done any on line research about it?

Sorry I'm not much help - do not deal with it. But this is what I would do if it was me.

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