Hiya, new here kinda lost about my sugar

lipsie
By lipsie Latest Reply 2009-03-14 07:13:29 -0500
Started 2009-02-24 07:44:18 -0600

Hi all, glad to be joining you all and good to meet you all. I am a type 2, but I started just basic testing with slight highs, then they said my pancreas died and I was on regular shots, then my sugar dropped suddenly and I was removed from ALL forms of meds, now I am sliding scale…why so iregular or that cuz its similar to my life? lol


32 replies

southern_ lady
southern_ lady 2009-03-13 16:58:43 -0500 Report

Hi shelia,my blood sugars go up and
down,,mu highest was 560,nearly coma
and i have had the lows to go it,s just
by trail and error,,I take insulin
and we learn by keeping tract of our
sugars and seeong how the insulin is
doing.

lipsie
lipsie 2009-03-14 07:13:29 -0500 Report

Yeah, I just did not understand what that doctor stated to me, but from people here sounds like he was NOT on the right track. See, I learn more here then I do from doctocs! lol No, some doctors are great, just finding the right one I feel. But overall I am doing Okay…still up N down but not so extreme. Thanks for your comments! Sheila

southern_ lady
southern_ lady 2009-03-13 16:58:42 -0500 Report

Hi shelia,my blood sugars go up and
down,,mu highest was 560,nearly coma
and i have had the lows to go it,s just
by trail and error,,I take insulin
and we learn by keeping tract of our
sugars and seeong how the insulin is
doing.

DaveJ
DaveJ 2009-03-08 10:20:51 -0500 Report

About a year ago, a researcher accidentally discovered that the Islet cells are produced by the Spleen, not the pancreas. So it is possible you are gradually recovering some insulin producing cells as they gravitate to the pancreas. Also your weight has a lot to do with sugar retention. If you go below a certain number on your body fat index, it is possible to send the type II into remission. Another factor is exercise. Exercise will bring sugar down. Each person is different. I only mention these factors because there is hope out there.
Doctors are human. They are not all knowing as some would have you believe. Only you can be responsible ultimately for your health. My experience is that Doctors are great at figuring out what is wrong. They are not so great at producing cures. But the doctors and their partners in the pharmacy industry are all we have. The only thing you can do is keep checking your blood sugar and keep good communication lines with your doc.

lipsie
lipsie 2009-03-08 23:10:47 -0500 Report

You are exactly right about our doctors and pharmacy companies, etc. And thank you for the advice because I am trying to understand all this, even though I have been Diabetic for a few years, I never cared before so thanks. Sheila

kdroberts
kdroberts 2009-03-03 15:58:11 -0600 Report

It's pretty common for the pancreas of a type 2 to burn out after time. It's not type 1 because there is no autoimmune disease but you can't produce insulin. It is also one type of type 2, the inability to produce insulin or the ability to only produce a slight amount. It's tricky to figure out how to medicate when you are capable of producing a little insulin but with unpredictability because it's very easy to over or under medicate leaving you with a series of baffling high and low numbers. A sliding scale is probably ideal and it may become better with time and your body either stops producing insulin at all or becomes more predictable. It will allow you to dose based on multiple factors rather than try to fit the treatment within narrow parameters.

Not quite sure what the other poster got so worked up about, it's clear that they don't understand diabetes fully themselves and has other issues to deal with. You aren't the first person with these kind of problems with diabetes and you wont be the last.

lipsie
lipsie 2009-03-04 16:00:49 -0600 Report

Thank you very much. I have had diabeties for a few years but have not faced it and learned much of anything about it until now. I appreciate all your help. Yeah I was pretty upset over that comment, but so many here said good things I had to stick around, this is my place to learn and have support I feel. Sheila

MeiMei
MeiMei 2009-02-26 10:59:44 -0600 Report

Hi and welcome. I am a type 1 and have been for about a year and a half. I was diagnosed when I went to the ER with severe back pain (thought it was kidney stones). I was losing weight for over 6 months (diabetic ketoacidosis is a great way to lose weight fast but rather hard on the body). I have had my highs and lows as well. We all have whether we are type 1 or 2. Your pancreas is doing the ageing lightbulb trick kind of flickering on and off before it really dies out. Just keep really good records of your blood sugar and present them to your doctor when you see him/her. You should probably be seeing an endocrinologist or an internal medicine doctor as they are the ones who are more specialized in diabetes. Many of the new meters actually keep a record internally which the doctors can download onto their computers. You should also have a session with a diabetic instructor who will teach you all about carb counting and watching what you eat in relation to your insulin. A session with a nutritionist would not be a bad idea either. Depending on how old you are and what type of insurance you have these last two sessions are usually covered by insurance or medicare, as are your testing supplies.

Debe Pendice
Debe Pendice 2009-02-26 01:44:11 -0600 Report

I do a sliding scale. I am at the point to where i know what to do when I get in a sticky situation with my BS. Also I have had diabetes for 46 years and it has been no picnic either. Its been trail and error periods. I use to get so disgusted when I was doing my best and still ended up with bad results. Furthermore, the more disgusted I got the more stress and the higher the BS. Well many years later, I now m in good control and the sliding scale works great for me. I see where your coming from and it will get easier. I once in the while still have to call the MD to help me if I can't get to the root of my BS. I will never give myself extra insulin above the sliding scale my MD gave me…Debe

jsd2005
jsd2005 2009-02-25 02:32:41 -0600 Report

Most [probably the rational for the irregularity is the insecurity with the pancreas. Hard to explain, but sometimes, it works for awhile, then doesn't work at all. It is sick and this may be an indication that it's is on it's last leg, so to speak. Somehow, our immune systems attack our bodies and there is no hard and fast starting or stopping point. Just be prepared that this may indicate that meds may be a mainstay, after this episode, for the remainder of your life. Otherwise, maybe it's a virus that once resolved, may leave you just as you are. i hope this helps in some way to understand.

dyanne
dyanne 2009-02-25 01:41:15 -0600 Report

Hi and welcome to the site it should be very helpful to you. there are many nice people out here. I dont really have an answer for u. What kind of sliding scale are u on ?? Any meds? Lows do happen all the time to diabetics… but they dont go off their meds. It would need better control and you need to know what to do if that happens to you. Maybe explain a bit more and we may be more helpful to you. Good luck and welcome
dyanne

Anonymous
Anonymous 2009-02-24 22:27:40 -0600 Report

I think you either have absolutely no idea what diabetes is nor how the pancreas, liver, what you eat, how much you exercise etc. have to do with diabetes. At your age, you were either diagnosed diabetic as a child , had a sudden attack of cancer of the pancreas—hence it died and you also along with it,or you are not diabetic.It sounds like You (may not be at all, and I apologize if I am wrong) are making fun of us who are and spend a lot of time trying to share how we take care of our health and some of us also are caregivers for family or friends who are diabetic. It is a serious, but manageable problem and most of us take it very seriously but we try not to let it control us. There is more to real life than the physical or other problems we all have. Have you actually got diabetes? If so, and you are in the condition you say you are in, Why haven't you gotten yourself to a Specialist— an Endocrinologist for instance?

roshy
roshy 2009-02-25 08:05:48 -0600 Report

i doubt if anyone would come on to a site to just make fun of anyone and their health conditions!! perhaps she is sinserely confused and looking for advice!!

But i compeletly agree with you, if you are having serious health issues with blood sugars go straight to a doctor and get professional and medical advice and help.

Gabby
GabbyPA 2009-02-25 08:10:26 -0600 Report

With the poor quality of doctors and the ill-advice of many things...I can see how she is just getting wrong infromation from her doctor. I remember when my mom took my dad to the doctor saying something was really wrong, the doctor kept telling her is was just a cold...a cold that ended up killing him...it was pancriatic cancer. So you never know what limits your doctor has in their knowledge of what they are trying to diagnose.

roshy
roshy 2009-02-25 08:18:13 -0600 Report

I know ! it happens every where and way too frequently. A second opinion by a professional should always be taken into concideration unfortunitly not many people an afford one. Other networks such as sites like this are an excellellent option to people who are confused and ill informed.

rbergman
rbergman 2009-02-25 08:31:28 -0600 Report

I for one can attest to the many mis-diagnosis doctors can make. Whether you have signs and symptoms of 1 or more conditions I personally feel they seem to "pick" the most logical in their mind and go with it. With the recent trials and tribulations our daughter alone has been through,it was a roller coaster from hell, as a mom all I want is answers, but I want the right answer, and most importantly I want a doctor or specialist that takes the time to listen to my concerns, not just dismiss me because I'm a paranoid mother in their eyes. The decent doctors/specialists are out there, you just don't always get lucky and find them right from the get go. I know for us, if Laura's first Ped Endo had run ALL the tests some issues would have been found sooner, and that is not my opinion that is what other doctors have told me personally. Omitting certain tests isn't against "the rules" but it seems unethical in my opinion not to do all you can when a problem is presented to you, not just close your eyes and point your finger to a condition on a list and say…"This is what you have".

Gabby
GabbyPA 2009-02-25 14:33:42 -0600 Report

Omitting tests is going to be the way of our future because they are going to determine for us what we need, before they even know. It is horrific.

mamaoak
mamaoak 2009-03-01 07:42:54 -0600 Report

well i have one of those craz dr, would not increas my test strips and told me only to test twice aday? cant do that so it is causeing some trouble this smorning my tester was out of wack as well i cant stand this it is driveing me crazy.

Ian P
Ian P 2009-02-25 16:57:55 -0600 Report

I'm not surprised you decided not to advertise your identity, I feel you are being presumptive and rather judgemental regarding this ladies question.

If she is new to our condition then she could be confused or have mis understood the implications or explaination of her condition, after all the information that we are barraged with when we first are diagnosed is rather daunting. Besides that even if this lady is suffering more from Munchausens syndrome than diabetes she is allowed the benefit of the doubt.

We nearly all have a support network at home, but it is still a lonely process coming to terms with and living with our condition and talking to other diagnosees is the best way I personally have found to combat that excluded feeling so I don't think we can afford to alienate anyone. Maybe a small apology for jumping to conclusions would be a nice gesture.

steadb
steadb 2009-02-25 17:05:08 -0600 Report

Thanks for your comment here. We need to be supportive on this site even if times we express a different point of view.

Stead

rbergman
rbergman 2009-02-25 18:51:33 -0600 Report

I have to agree, diagnosis' aren't always explained well to patients and if we don't take the initiative to ask questions too many health care providers seem to think we already know it all or some such. I've been confused many times about my own and our daughters diagnosis and have come here to ask for advice on how to handle it. That is what this site is for, remember NO question is too stupid to ask and to be put down for the way we word things here isn't right, if we were all rocket scientists we wouldn't need sites like this for advice and support.

Gabby
GabbyPA 2009-02-26 10:23:31 -0600 Report

I know in the beginning, we just don't know what to ask. We think our doctors are gods and they know everything. We only find out the contrary as we do our own research....it is a long road and it often starts in confusion.

MeiMei
MeiMei 2009-02-26 11:02:07 -0600 Report

Your comment is really uncalled for in light of this web site. We are here to support and help, which is sounds like this person is asking for and needs.

roshy
roshy 2009-02-24 19:36:39 -0600 Report

could it be the honeymoon period?? i was told that the pancease goes through a stage of producing some very little insulin then stops!! maybe the small bit of insulin and the meds were working together and that is what is causing your lows!!

welcome to the group by the way!! x x

dj7110
dj7110 2009-02-24 12:39:03 -0600 Report

welcome to the group, I too started out on meds, type 2 than was told by my doctor my pancreas gave up and i was put on insulin. I currently take lantus at night and humalog during the day with my meals. My readings fluctuate from time to time too. I was 328 last night. 126 first thing this morning. and had a weekly avg of 212. It just takes time. There are many things that beside food that effect your blood sugars also, from illness to just plain stress. From my personal experiance, at times, it can be quite the roller coaster ride.

mamaoak
mamaoak 2009-03-01 07:37:13 -0600 Report

well i dont trust the dr here when i came out of hospital the dr had me on 45 units daytime and night time plus insulin on a slideing scale. i sugars where so low all the time so i now have decreast it to 4 units and i am doing fine no other insulin shots. so i do notknow what is going on. my tester for blood gulcose went out out of wack this morning. so i am as lost as well. going to a specialist on march 9 th hope he can help me.

dj7110
dj7110 2009-03-01 19:55:54 -0600 Report

I hope you have better luck with an endo.. unfortunatly we have no specialists anywhere near me.. And unable to drive anymore just complicates things. the local diabetic clicnic I go to only has a nurse as the highest professional.

Richard157
Richard157 2009-02-24 12:14:23 -0600 Report

I agree with Ian. Every turn I have taken with my 63 years of diabetes has required an adjustment period, sometimes quite lengthy. Every time I changed to new insulins, when I first started carb counting, starting a new exercise program, etc. I started pumping in 2007 and it took me 3 months before I was satisfied with how things were going. Always expect it to take time when you take a turn in your path. Slow down and be patient and know what you are doing. Get help from your doctors, from us and from research. Good luck!

Richard

Ian P
Ian P 2009-02-24 10:48:04 -0600 Report

I am type 1 and was diagnosed nearly a year ago at the ripe old age of 42 and I have had difficulties too.
All you can do is keep good records and keep testing, 4 times a day isn't too much if you are finding it difficult to balance. When you're adjusting your meds dont change the dosage until you are sure it needs adjusting, give it a couple of days before changing your dosage, things will be up and down for a while. As diabetics we are all different, we react in different ways, you have to take ownership of your meds so KEEP TESTING you'll get to grips with it eventually you are unlikely to suffer too much through reasonable experimentation but you have to give yourself time to adjust. Remember we all have difficulty at times. Good luck.

Next Discussion: diabetes »