I wrote this some place else but I am trying to figure this place out and this is about as good an introduction to the way my dad of two T1 kids brain works as anything so here goes…
Just because Rome wasn't built in a day why doesn't the "honeymoon" just end in a big fight, break up and quickly divorce?
We could at least sleep.
NOOooo.. it goes out in fits and spurts and big numbers and crazy days, sometimes it seems like things are going just fine, everyone is getting along and BAM, lunatic numbers. I don't need it when the meter gets all personable and tries to be friendly by saying "HI."
Honeymoon! What sadist came up with that term?
We found process of beta cell drop off went in waves every few weeks maybe two months at the most. Every few weeks numbers get all messed up - yea haa. joy. happiness.
First it is increasing doses as more beta cell production is lost. Then after full onset it seems the little brats keep growing! One even had the AUDACITY to start puberty!
All that growing is caused by growth hormones that kick in at night, in our cases within an hour or so of them going to sleep. So they need testing then and a few hours later. Lovely.
It seems that growing takes energy! Who would have thought it? Who would figure that T1 kids need more insulin to grow (and then they want to eat more too!) It is like growth hormones are anti insulin, they grow and the insulin needs kick up at night and they eat everything in sight and need more insulin.
I think we all should call the endo and complain! It has to be their fault. I mean, can't they make all this growing happen when I am not trying to sleep?
And don't get me started on the puberty deal! Like diabetic parents need more problems? Zits and cranky stinky kids who need to bathe more often isn't enough? NO ye olde BS-BS* goes nuts, again and when does it do it? - OVER NIGHT! (*Blood Sugar BS [you can figure out that second one your selfs…])
What the heck! We need to rename this stinking thing from Type 1 Diabetes to Parents Never Get to Sleepabetes.
And don't get me started on those clowns making CGM's - stop thinking about bonus checks you get when they are selling like mad and start getting these thing out of FDA, available, approved for kids, cheaper, longer lasting and covered by the freaking insurance company.
So maybe we should rename this stinking thing from Type 1 Diabetes to What is Up With the CGM Because We Parents Never Get to Sleepabetes.
Insurance! Yeah, aren't they just wonderful too? I am still waiting for an explanation why they will not cover the cheaper strips that come with a SideKick meter but will pay for more expensive strips to put in a meter as an RX. Our insurance company motto: holding down cost by not buying the cheaper stuff! And they have no idea what a CGM is.
So maybe we should rename this stinking thing from Type 1 Diabetes to: Does Anyone Have a Ouija Board so we can Figure Out Why the Insurance Company Doesn't Know What is Up With the CGM Because Parents Never Get to Sleepabetes.
Oh and carb counts! Why cant we get carb counts? Getting carb counts when you go out to eat is like trying to pry tactical invasion time tables out of the Pentagon. I don't need the D-Day Details I only Need Carb Counts. So let see… that means we are up to…
I don't need the D-Day Details I only Need Carb Counts for your Menu and Does Anyone Have a Ouija Board so we can Figure Out Why the Insurance Doesn't Know What is Up With the CGM Because Parents Never Get to Sleepabetes.
Now I realize that is a lot to say when you sleep deprived and someone asks why your kid is doing a blood test in the restaurant, next to the insurance company, that is across the street from the CGM factory.
On the plus side, maybe, they might not confuse I don't need the D-Day Details I only Need Carb Counts for your Menu and Does Anyone Have a Ouija Board so we can Figure Out Why the Insurance Doesn't Know What is Up With the CGM Because Parents Never Get to Sleepabetes. with Type 2.
Next Discussion: Did you know..... »