Being a Diabetic I know the ins and outs and rights and wrongs and so on and so forth, when Laura was suspected as a Diabetic I sought help, when she was confirmed Diabetic I was sort of relieved that we had answers and sought out all the information ( a lot of that from all of you ) and set up all the necessary appointments and tests and meetings and so on. It was just the right thing to do. We are still waiting on some test results, have a meeting with the Dietitian on the 18th, also taking her to a Diabetes Training Course that day so both she and I learn all we can…so, I've done all I can so far right?? I thought so too, I was in control, I was the good mommy who was doing everything right, diet, exercise, medications, explaining things to her of the why's and why not's, got the school in on it and got them lined out on her meals at school, help my husband count the carbs and calories she gets and to pay attention to the portion size that coincides with those calories and carbs, helped her brother understand she isn't getting special attention because we love her more its because she has medical issues that if they go untreated she could die from it, so I've done all I can right??
Since our kids' school is only in session 4 days a week yesterday was their Valentines party, the teacher told the kids NOT to bring cupcakes or cookies or such, that instead she was asking parents for frozen yogurt and strawberries and banana's and the class would make smoothies (yes this was done for Laura's sake and I thought that was really sweet of the teacher). I too went to the school and helped with the process and counted the carbs and calories of what Laura was getting and the other kids loved the smoothies, the teacher gave all the students a package of bubble gum as the treat from her and she gave Laura sugar free gum. The room Aide gave all the kids a small bag of candy and she gave Laura a set of Locker Magnets instead of the candy. ( Again it was nice to see they were aware of her condition and the fact that yes she could have "real" candy in moderation but they chose to not tempt her with giving it to her.
Some of the kids did bring Valentines cards that had candy with them and Laura got those just as the rest of the class did, she told me she would just bring it home and give it to her dad and her brother and I told her that she could keep it she just couldn't sit down and eat it all up like most kids do. While the parties were going on in all the classrooms the secretary came across with the announcement of the students from each grade that qualified for the oral spelling bee ( On Monday they had to take a written test to see who the top 5 of each grade level were that would go on to the oral round). Laura was chosen from her class and her brother was chosen from his class. (YEAH MY KIDS!!!) After the party it was Parent/Teacher Conferences and no issues there as far as grades for either of our kids they both do great in school. Then came the 504 meeting. This is similar to an IEP meeting for children with disabilities to get the special care they need within a school setting, however the 504 is for kids with medical issues but not learning disabilities. ( I must say here, I do NOT like the idea of any child being "labeled" just so the school gets extra funding that may or may not be used in the care of that specific child…thats a whole other soap box for another time lol )
Anyway, at this meeting were the teachers, school nurse, me, Laura, the Superintendent and the Special Education Coordinator and the Principal. I had done everything I was asked to do for this meeting, medical records, instructions from the doctor, diet requirements, medication, etc. The meeting was going fine and then the SEC says to me…" We cannot possibly accomodate Laura's needs here at school we have no other Type 2 Diabetics here and its so different from the Type 1 kids that can take care of themselves it is impossible for us to change everything for 1 child." (This was the first statement of her little speech she had prepared)
OMFG!!! I tried to stay calm but the longer she talked the more pissed I got and finally I interrupted her and said " YOU are not only legally bound to accommodate my child but your morally ignorant about the whole thing if you think it would be a burden to YOU. My daughter is a 7yr old girl who didn't ask to have anything medically wrong with her whether it is her Thyroid or her Pancreas or any other organ that is affected, she has a right to come to school and get an education and if that means YOU have to change your "normal" routine to accommodate her then by God you will." (At this point Laura's teacher took Laura out of the room and off somewhere else so she didn't have to hear anymore). I whipped out the information the doctor had given us explaining the legal rights Laura has within a school setting and flung it across the table at this woman and said " Before you say any more I suggest you read this, and if that isn't good enough for you I will personally call every school board member, my congressman and an attorney that I'm sure would be happy to explain to you that just because you've never had to deal with a child with Type 2 Diabetes doesn't mean you don't have to do it." At this point the Superintendent who hadn't said a word the entire meeting said he thought it was time to take a 5 or 10 minute break, and we all got up and walked out of the room, I went outside and tried to calm down but it wasn't working very well, at this point a cigarette would have been nice but I was on school grounds so refrained lol. The school nurse and the super both came out where I was and both said they didn't understand why the SEC would have said that and apologized for her…I reminded them she is no child and she is the one that should apologize, not them and thanked them anyway but it meant nothing to me. After our "break" we went back in the SEC informs everyone that she called Laura's doctor in Rapid City and asked for more specific information on what she felt the school needed to do for Laura. While reading her "notes" of this information she said everything that was already outlined in the doctor's orders, (you all need to understand all it requires at school is that Laura's meals be within her carb range which the nurse takes care of that along with me by phone calls of what the school meal contains, what has to be cut out or reduced in portion and then I talk with Laura about it so she understands why …for instance yesterday was chili which was fine, but a huge cinnamon roll with tons of icing and a fruit sorbet that was 30g alone, were added to the lunch, so we had to cut the cinn. roll and the sorbet…) When she got to the medication schedule, come the 3rd week of medication she will need to take a pill at school with breakfast and in the 4th week 2 pills with breakfast, again the school nurse takes care of this. (Explanation: Laura takes a Thyroid pill at home and has to wait an hour to eat, she takes this pill at 6:30am and leaves on the bus for school at 6:50am, unless I were to get her up every morning at 4:30am there is no way to get the pill in her and feed her breakfast at home)
So anyway, long story short after another hour of this an agreement was made and Laura's 504 was set into motion. We came home and of course I was still pissed about the whole thing, when Dean (hubby) came in I told him all that had gone on and he wasn't the happiest camper either but I'm the aggressive and he is the passive in our family so it didn't seem to bother him like it did me, mainly because he knew I'd handled it and it was over…men!!! lol
Laura of course had questions about the part of the meeting she was at and asked why they said they couldn't help her at school and was upset so I calmly explained to her that the woman just didn't have all the information and that things were fine now. (Yea, I sugar coated it but I had to).
We had dinner and was watching TV when it was time for Laura to do her 2hr after meal BG. i watched as I always do and the meter beeped and on the screen were the letters HI…I have personally had reading over 400 and NEVER saw the letters HI on my meter, so I grabbed the manual to see what this meant, according to the book it said if the meter reads between 20-500, under 20 the letter LO come up over 500 the letters HI come up. It said if the person didn't show the proper symptoms for such a reading to retest, so that's what we did, in the meantime Laura is crying and dear ole hubby is in a panic waiting for me to read the book and after I read it I read it outloud to them. Ok so, we retested and it was 259 (still high but not HI thank God). So, after that was said and done and everyone here went to bed I was still upset myself, I did my bedtime reading and guess what I got …HI…oh great, so I retested myself only to get the same thing again, now of course I know my stress level was through the roof still and I attributed it all to that, I took my insulin and the extra I needed to bring it down and waited a couple hours and checked again and it was down in the low 200s.
Thinking about everything that has happened with Laura since last March when it all started I started crying, and I kept crying and I'm crying now writing all of this and it still makes me angry for what this woman not only said, but how it affected Laura, and how it affected MY BG as well, I know I shouldn't let some people's ignorance get to me but as I said in the beginning I had to do all the right things and take all the steps necessary for Laura's sake, why do other people think its ALL the parent's responsibility and nobody else's?
Also I found that I was so busy doing the right thing that I'm not sure until last night that it "sunk in" that my daughter has diabetes, I wasn't in denial but I was covering up my own emotions about it by staying busy to "fix" everyone else involved and fix Laura, she isn't broken, just a little more fragile now.
Sorry for the book but I just had to get it out.
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