I need to hear the truth with no sugar coating

By Anonymous Latest Reply 2014-06-28 14:49:06 -0500
Started 2014-06-20 18:42:42 -0500

Hi All,

I'm hoping someone can help me. I'd rather not talk about where I am coming from or why I am interested in this but I can't seem to get the truth from anyone I speak to. I want to open this up to people in their later life who have lived with diabetes type I or II (please specify) and have managed it VERY well. I want to know if you still have medical complications regardless of perfect management or if you don't. I know this may seem strange, but I have been doing research and trying to find answers and I feel the only thing i have left to turn to are people's personal experiences.

Please help me,

18 replies

Pegsy 2014-06-28 14:49:06 -0500 Report

I have type 2 diabetes and was officially diagnosed last August. I think I had it for at least 2 years before that. I am on Metformin but hope to be off all meds, eventually. I don't know if that will happen but I am trying through careful diet, exercise, good sleep and stress reduction. Proper diet is very frustrating for me as there are many different professional opinions and what works for some doesn't seem to work for me. I'm just doing all I can to stay as healthy as possible.

When first diagnosed I had numbness in my feet and occasional blurry vision. Blurry vision is extremely rare now. The numbness in my feet is only slight now and limited just to my toes so I feel good progress is being made. At diagnosis my A1c was 7.3. In April it was 6.6. We'll see what it is next month.

Jackson704 2014-06-27 10:38:02 -0500 Report

I manage my diabetes ok, sugars are getting under control I just need to lose weight but I don't have any complications from the diabetes

massettdave@yahoo.com 2014-06-25 21:36:42 -0500 Report

im 47 yrs old and wad diagnosed with type2 24 yrs ago,i dneied it for the first 7 or 8 years but i have a handle on it now. but during the time i didnt due what the doctors told me, i have neuropathy in both feet and lower legs, plus i have charkot in my right foot,everybody resopnds different to treatment,i started out on 2 oral medications aand now im insulin dependent,because i didnot follow my doctors orders. so everybody i talk to about diabetees i say do everything from diet to exercise and medications as told to by doctors. i have a friend who was diagnosed 5 yrs ago and his is in complete emisson for the last 2 years no meds now just diet and exerciae.

tabby9146 2014-06-25 14:33:26 -0500 Report

Hopefully Richard will share his story, he is type1, incredible control for all those years. He has a medal from Joslin,.

tabby9146 2014-06-25 14:31:23 -0500 Report

type 2 diagnosed in late 2008, put on metformin, 3 months, lost all the weight, (did not have a ton of it to lose really) been at ideal weight range ever since, controlling well by diet and exercise. no complications. A1C below 6 each time.

hantuni 2014-06-21 01:36:49 -0500 Report

I've been looking for a truthful answer to this too being 25 and having had type 1 for 18years. I had resigned my self to a later life of complications .. Hence the joining this app.

I read a fab article that made me feel much more at ease and happy with the future … It's on the discussions board under 'popular' right down the bottom, by a guy called Richard … It's well worth a look if you want good news :) …

From my research and reading a lot of it comes down to us and our own control, the better we look after our selves the more benefits we reap in later life :)

although i will say there's definitely something to do with our hearts because that sprung up in Richards article

Anonymous 2014-06-22 10:34:20 -0500 Report

Thanks so much! I read the article. It was very helpful because it's a very scary thing for me now. I'm caring for someone that has it and I'm so worried about them.

jayabee52 2014-06-20 23:57:05 -0500 Report

Howdy Anon
Type 2 here, ever since 1995.
I have a lot of complications myself, anything from burning neuropathy and I have Chronic Kidney disease for which I must take dialysis treatments. Of course my management early on left a lot to be desired but had ever since 02/2011 my mangarment was excellient.

That is FWIW.

jigsaw 2014-06-20 19:09:33 -0500 Report

I'm slowly becoming an antique fossil! I've had diabetes for over twenty years, with no complications. In addition to this, I feel pretty good in general.

By the way, I have no idea what perfect mgmt is, I just try to stay informed, and do the best that I can. It works…so far.

Type1Lou 2014-06-20 18:57:14 -0500 Report

I am 64 and have had type 1 diabetes since age 27, so I've dealt with it for 38 years. It wasn't until about 12 years ago, or so, after reading Dr Richard Bernstein's book "Diabetes Solution" that I started counting my carbs and reduced them to around 120 grams per day. This has resulted in much better control for me. Other than a two A1c readings in the low 7's about 4 years ago, my A1c's have ranged from 5.9 to the current 6.8, indicating good control. Could I have done better in managing my condition since 1976…of course, but I feel I have a good handle on it now. Part of the reason for not better managing my diabetes in the early years was due to ignorance. I have tried to learn as much as possible about diabetes and how it affects me since the early 2000's. This has led to better decisions about diet and exercise and better control. I have very slight neuropathy in my feet which does not hurt, nor hinder me. For the last 15 years, my ophthalmologist has noted the beginnings of diabetic retinopathy but nothing that requires treatment yet. Both are incentives for me to stay in control to prevent these conditions from worsening. Other than my diabetes, I consider myself to be in good health and am enjoying my retirement. I started pumping insulin in 2011 and was on MDI (Multiple Daily Injections) of Novolog and Lantus prior to that. I wish I had tried pumping sooner.

Anonymous 2014-06-22 10:38:35 -0500 Report

thanks so much for your response, it seems like it's never too late. Today younger people are getting diagnoses a lot more and luckily they have good management systems in place to help manage it. I guess we have to wait a couple years to find out if those that managed since they were diagnoses were able to prevent complications all together.

neverlowbg 2014-06-20 18:56:03 -0500 Report

I'm in my fortys have had type two for a couple yrs my bg was all over the place and had allot of complications with it not being managed my endo finally out me on the pump and about a month later with proper eating habits from dietician all my problems cleared up I get my insulin only med I am currently on all day and blouses at meals to cover carbs my a1c went from around 12 to now 6.1 as of yesterday's lab and I have no issues any more and I'm back to doing the things I did before diagnosis I feel great labs are good if not better than before my attitude is much better and my outlook on life has improved allot my brother in law I just recently found out has type 1 for twenty yrs and at first was rough he says then he went on pump and started eating right and has been problem free for 12 yrs he has helped me allot along the way and people here have helped allot to hope this help you hang in there it is rough but can get better it's hard to make lifestyle changes when you've been one way for forty yrs trust me it wasn't an easy road to get were I'm at now

Anonymous 2014-06-22 10:40:58 -0500 Report

Thanks so much for your response. Thanks for your encouraging words and all the details of your situation, it was very enlightening and helpful. I hope you stay healthy and that you keep your attitude high!

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