This will be a long post just to forewarn you all.
We had Laura's appt with her new Ped Endo today, we were there with the doctor in the room with us for over 3hours I was amazed at the fact the doctor spent so much time with us first off. Here is what we learned…
Laura is being considered a Type 2 Diabetic but is between transitioning from Type 2 to Type 1 (this was heartbreaking to hear for all of us). The problem is with her auto-immune failure antibodies are attacking her pancreas, they ran so many tests today 10 vials of blood were drawn for testing for so many different things, A1C was 12.6, she had glucose in her urine, the skin tags under her arms that recently developed is caused by too much insulin in her body we were told, she is considered obese due to the weight she's at vs. her height and age (we knew that already though and knew that it was started when her Thyroid went out first) but to hear someone say your child is obese is a horrible feeling especially when you know it wasn't something we could have prevented on our own.
Another test showed high cholesterol (didn't know that) A bacteria content test was done to see if they can figure out the direction of the anti-bodies that are attacking her pancreas, that test wasn't one that could be completed before we left so I don't have those results yet. They put her on the following carb diet…30-45g breakfast, 45-50g lunch and 50-60g dinner and snacks non-existant unless its fresh veggies or fruit, nothing else. They want to slow the weight gain or have her have no more weight gain, then the goal is to lose 1-2 lbs per month. She is to only drink 1% milk and water, nothing else, no juice or anything and especially no sugary drinks. They also put her on a multi-vitamin daily. They designed an exercise plan for her to work out ( walking, biking, swimming, and her dance group) alternated with weight training exercises 45min per day 6 days a week. They gave us a food journal book to log everything she eats, when, how much etc and a workout log book to show exercises done and when. They started her on Metformin 500mg tablets, for the first week she is to take 1 tablet with supper every day, then the the second week increase it to 2 tablets at supper (1000mg) the third week it will increase to 1 500mg at breakfast and 2 (1000mg) at supper, the fourth week it will increase to 2 tablets (1000mg) with breakfast and 2 tablets (1000mg) with supper and thats the level she will remain at until her 6wk checkup on March 20. We were told that because Metformin causes stomach issues and diarrhea do not use this increase chart until the diarrhea stops with just taking 500mg per day and she said if by the end of 2wks we haven't been able to increase the dosage to call them because this medication will not work for her. She also told us they have a time release form of Metformin but her body has to adjust to this form first before that one can be given…didn't get much more information on that because we have to start with this for 6wks first if she doesn't have too bad of side effects with it. She provided us with several books, I haven't started them yet as we haven't been home very long this evening for me to do that but will let you know what we learn from them. We are meeting with a nutritionist but they said they would have to call me Monday with that appointment date and time so I don't know when that will be yet for sure. This all sounds like so much for a 7yr old to have to deal with, and it is, but the Doctor is trying to prevent her from turning completely Type 1, in fact she calls her a Type 1 1/2 because she is literally right between being a Type 1 and a Type 2, she said this is rare and only affects about 3% of children. She said that the other doctor diagnosing her as pre-diabetic to Type 2 was wrong and that she should have been started on medication long before now according to her test results. She also said she knew of the last Ped Endo that was in charge of Laura's care and he is considered a Thyroid Endo NOT a Diabetes Endo and should have at the least referred her himself and not left it to us to find a Diabetes Endo. (will deal with that anger issue later the goal now is to help Laura in every way we can).
She explained to Laura what foods she cannot have at all, what she can have in moderation and what she can eat "free will". Needless to say, candy and sweets are out and Ice Cream only if sugar free. Her potassium level was low, her sodium level was high so she showed us how to adjust foods to fix both of those over a period of time. She also told us to schedule an Allergy Test with our PCP to find out exactly what she is allergic too that requires 2 different medications daily, she said if it is food allergies we of course will have to work those foods out of her diet whether they are healthy foods or not. She said she could not agree that Laura had been having UTI's because in her records no cultures were ever done to prove this and that the itching and redness she has "down there" is again caused by the high amount of insulin her body is holding onto, they are pediatric yeast infections, only considered pediatric because she is a child, but they wouldn't be as severe as an adult only because she hasn't reached puberty. Upon a complete examination though it was discovered she is developing pubic hair already (remember she is only 7yrs old) and again this is attributed to her auto-immune failure destroying the Thyroid, and the Synthroid she is on to work as her Thyroid has kicked her hormones in early, however they cannot decrease the dosage of Synthroid because any lower dosage would not be enough…
I'm sure there was more that I'm just not remembering off the top of my head but I took my list of questions, got them all answered to the best of her ability and to our satisfaction and I took notes on everything she said because there was just so much I didn't want to forget anything (like I'm doing now lol)
At this time I would appreciate any prayers offered, spoken (written) or unspoken for Laura, its sucks to be me as a Diabetic myself and for her its just so much more than just diabetes. She dealt with what she was personally told fairly well but until it all starts falling into place I really don't think at her age she quite understands it all, her hang up right now is the food deprivation, and what kids wouldn't fuss over not eating junk food lol.
I welcome any and all questions and I'll try my best to answer them as best I can but I'm truly learning right along side her for the most part.
Hugs and Luv to All,
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