Is this normal for me?

gvarner10
By gvarner10 Latest Reply 2014-06-20 18:31:50 -0500
Started 2014-06-14 19:42:15 -0500

I was diagnosed with diabetes 1 year ago (May 2013) A1C of 14 and put on insulin & oral meds. After 4 months I was taken off insulin. In January my oral meds were cut from 2 to 1. Monday I was taken off rest of meds. I have been testing as I did when first diagnosed and my reading are all over the place. Could this be normal for me? I've read about liver dumping and wonder if this is what's happening or is my body adjusting to no meds. I've also lost 80 lbs in this year so there has been a big change in my body. My doctor wants to recheck my blood work in 4 months and see if I can stay off meds. Has anyone else experienced something like this. Thanks


23 replies

MarkS
MarkS 2014-06-20 15:47:01 -0500 Report

Well, I'd say that if you were truly diagnosed as a Type 1 diabetic then your doctor is not worth their weight in salt! You stated that you were taken off insulin; as a Type 1 that is not a possibility since your body does not make insulin and you need to add it. So, you are a Type 2 diabetic.

gvarner10
gvarner10 2014-06-15 18:39:28 -0500 Report

Readings have been good today. 6:02 am 90, 9:05 am 95 12:08 pm 103, 2:29 pm 116, 4:22 pm 126, just did my 2 hour after dinner and it's 93. Feeling much better.

Glucerna
Glucerna 2014-06-16 21:23:30 -0500 Report

I'm glad you're feeling better and learning more about how to manage diabetes. You're making great progress! ~Lynn @Glucerna

RebDee
RebDee 2014-06-15 12:42:25 -0500 Report

I was told that once I have my sleeve bariatric surgery and lose weight, I might not have to have meds and insulin for my Diabetes. So maybe the fact that you lost so much weight indicates to the doctor that you don't need meds. Bear with him until the next time you have to do fasting blood tests and see what the results are. Meanwhile, how did you lose all that weight in one year? Only your dearest friends on Diabetic Connect want to know. LOL

gvarner10
gvarner10 2014-06-15 17:44:12 -0500 Report

I'm almost embarrassed to say I don't know how I lost the weight. I was losing before I realized it. Someone told me I looked like I had lost weight, when I got home and weighed I had lost 15 lbs. in a short time I dropped another 15 lbs. Then I saw doctor about a cold and asked about blood work I had had done 2 weeks earlier (no one called me about it). Doctor hit the roof and fired the NP who ordered the test but didn't follow up on it. Since then I've started eating healthy with portion control & exercise. I do own a treadmill but didn't use it, now I'm on it at least 5 days a week. I went to a diabetic workshop and nurse there said my body was starving. My #s have been much better today with 90 this morning and at 4:22 pm 126. Just had dinner so will test in 2 hrs. It's good to have everyone here to talk to because it seems most people keep it a secret or so it seems to me. I've been shocked at how many people have told me they too are diabetic. You can't tell it by the way they eat but I'm not their judge.

gvarner10
gvarner10 2014-06-15 17:57:20 -0500 Report

Doctor also said the diabetic meds can help with weight loss. Now that I'm off the meds I know it's very important to keep the weight off.

Type1Lou
Type1Lou 2014-06-15 08:57:23 -0500 Report

By losing the 80 pounds, you increased your body's sensitivity to the insulin you still produce. (Congratulations!) That is why you were able to eliminate the oral meds. (If you put the weight back on, you'll probably need the meds again.) When you were at 182 and exercised, you were able to get it back down to 123, demonstrating the value of exercise in regulating your blood sugar. Diabetes is a balancing act requiring life-long dietary and exercise changes in order to maintain control. Your last A1c was great! Keep testing and keep a food and activity log to share with your doctor. The more info you have, the more you'll know what spikes your BG and what you have to do to maintain control. I've had diabetes since 1976 and I'm still making adjustments. You're not alone!

gvarner10
gvarner10 2014-06-15 17:56:05 -0500 Report

Thanks, I do keep a log, I use everyday health to log my food and exercise. I also use my fitness pal where I can enter my homemade meals to get my calories/carbs, etc. I sometimes feel alone and scared and just need someone to talk to who can relate. My daughter who is overweight blew up at me when I tried to talk to her about eating better and the need to get out and walk she said she was tired of hearing about diabetes and losing weight.

RebDee
RebDee 2014-06-15 12:46:08 -0500 Report

I document my food and exercise on MYFITNESSPAL on a daily basis. In fact, I write it in as soon as possible with my meals (if I dine out, it means more calories than when I dine at home) and allows me to see how many calories I have left for the day. I am on a 1200 calorie diet. MyFitnessPal is easy to do and keeps you on the up and up. Try it you'll like it!! Its FREE!!

gvarner10
gvarner10 2014-06-15 18:00:25 -0500 Report

I started using everyday health but do use my fitness pal to help figure calories/carbs, etc in my homemade meals. I'm on 1254 calories right now. I need to increase it some now that I've reached a good weight.

Type1Lou
Type1Lou 2014-06-15 14:06:43 -0500 Report

I don't count calories but I do count carbs because they are the primary factor in raising blood sugars. By keeping my carbs at 120 grams per day, the calories take care of themselves. I've weighed 120 pounds (plus or minus 3) for the last 15 years, so it works for me. Glad you are documenting your food and exercise; it gives you the info you need to make any needed adjustments.

RebDee
RebDee 2014-06-15 19:20:22 -0500 Report

I never realized that by keeping carbs at 120 grams per day, the calories take care of themselves. I take my BS before each meal as I need to do this for my pump, but I didn't realize that it could act as a calorie counter if you stay within the number of carbs per day. I need 1200 calories or myfitnesspal tells me that I am starving my body.

Type1Lou
Type1Lou 2014-06-16 07:00:39 -0500 Report

If I used Myfitnesspal and it told me I was starving my body, I'd ignore it, just like I ignore the GPS voice when it tells me to go another way when I know I'm taking the shortest route somewhere…"recalculating"!!!!!!

Kirla
Kirla 2014-06-15 05:13:21 -0500 Report

Numbers can run between 70 to 180. Depending on when you test. Before eating they should be below 100 or as close to it as possible if you’re going over. After eating it should stay below 180 or as close to 180 as possible if you go over. A few years ago I was able to keep mine between 60 and 120. Now they run mostly 90 –140. I like keeping my highs below 140. Most days I do ok.

I found that testing when I wake up and before and 1 hour after each meal helped me a lot in determining what foods spiked my blood sugar and what foods had little or no impact on my blood sugar. Testing this much should only be needed for a few weeks until you know how what your eating is affecting your blood sugar.

I found that high carb starchy foods like potatoes and all foods made with flour all spiked my blood sugar. I found that eating lots of low carb vegetables and small serving of meat (chicken and fish are best but beef and pork are ok in small amounts) worked well for my blood sugar control. I believe that most people can benefit from eating a lower carb diet. Do some research online by using google to determine if low carbs are right for you.

Good luck
Kevin

gvarner10
gvarner10 2014-06-15 07:22:18 -0500 Report

I have been at this for only a year and had it under control with the help of meds. I've lost 80 lbs with a low carb, portion controlled diet and exercise. It's discouraging that now that I'm off meds I had a high reading of 182 which is not ok with me. I know I've got to "start all over" with testing and in time will figure it out. Thanks for your response and encouragement.

haoleboy
haoleboy 2014-06-14 23:29:18 -0500 Report

Only you could say what "normal" is for you. We all have our own "normal" When you say "my reading are all over the place"… what does that mean? How high? How low? What was your last A1c … I'm assuming really good as your Doctor took you off all meds (congrats, btw) have you changed your eating habits (diet) since getting off the meds?

Steve

gvarner10
gvarner10 2014-06-15 07:14:41 -0500 Report

I've not changed my eating habits and last A1c was 5.8 which was 1 point up from previous result before oral meds cut in half. After meds cut in half my readings were between 90 - 120 now that I'm off meds (less than a week) example Saturday's readings were 6:25 am 90, 9:07 am after breakfast 116. I did an afternoon check at 4:35 pm which was after an afternoon snack, it was 182 - 4:37 pm 171, I got on my treadmill for 10 minutes and reading at 4:51pm was 123. I should have done a reading after lunch but didn't, food was same as what I have been eating while on meds. Had dinner and checked after 2 hrs reading was 105. It seems to be the late afternoon right before evening meal it spikes. Friday's late afternoon reading was 139 so the 182 reading really worried me. I am at the mindset that coming off of meds is like starting over with testing as the meds kept my reading under control. I have noticed I have a hot flash in the face in the afternoon and wonder if it could be I'm getting low and my liver is dumping. Will be doing a lot more testing and see if I need to increase my afternoon snack portion and make sure I test after EVERY meal for a while. Thanks for responding I know there is no written rule for everyone and what works for one doesn't for others and this is why this disease is so depressing.

Glucerna
Glucerna 2014-06-15 16:46:24 -0500 Report

You're right that your body is going to respond differently to food and exercise without the medication. Testing more often and keeping track of everything you eat, plus your activity/exercise, is going to help you figure this out. ~Lynn @Glucerna

gvarner10
gvarner10 2014-06-15 18:03:29 -0500 Report

My numbers so far today have been good. Started the day with 90 and as of 4:22 pm it was 126. Will be testing again around 7:30 (2 hrs after dinner). I log everything I eat and my activities with everyday health.

RebDee
RebDee 2014-06-15 19:21:48 -0500 Report

Did the doctor tell you what was happening to you when you lost all that weight without trying?

gvarner10
gvarner10 2014-06-16 05:51:15 -0500 Report

Not really. A diabetic nurse said my body was starving. The doctor did say to let him know if I keep losing but right now I'm still in the calorie range to lose 1 to1.5 lbs a week. I'm 5' 7" and 150 lbs. My weight range is 123 - 153 so I could lose a few more lbs. I also have issues with my liver and I have too much iron in my blood.