Even though this doesnt SOUND like good news, it truly is!

vrswesley
By vrswesley Latest Reply 2014-06-15 20:33:24 -0500
Started 2014-06-08 15:45:14 -0500

As of mon I will be a hospice patient! Im so excited!..Now before you all freak..please keep reading! first Hospice..doesnt mean Im dieing in 6 months..yes that is the rule..but not the hard and fast rule.. nobody thinks Im dieing that soon.. in fact they feelk if i go in now Ill probably klive longer!…they can get me on oxygen NOW! all those cookie cutter rules go out the window. hospice can do alot of good for me…and folks I feel like crap right now.. feel like Im suffocating..plain and simple…they hopefully can help..they say they can. keep praying for my helpers.to be able to get here soon.


15 replies

Gabby
GabbyPA 2014-06-12 11:07:43 -0500 Report

That is good news. I am glad you went that route. I know you had your doubts about it.

vrswesley
vrswesley 2014-06-12 11:17:10 -0500 Report

I never had doubts about hospice..just dont want to leave my home..have been promised all around that I can die here..in this apt. I like hospice…I know its a good system.

funnygirl98
funnygirl98 2014-06-10 14:48:51 -0500 Report

Ill pray for u vrwesley that you get well soon and show those drs that ur a fighter ;-) Don't ever give up cause when u do it seems like that's when everything goes wrong and downhill… Keep smiling;-)

jayabee52
jayabee52 2014-06-09 11:16:45 -0500 Report

Good to hear Vi

My MIL ("Jem's" mom) was on home hospice just before she passed and I cannot say enough good things about them. I worked in an institutional hospice facility before my disability and I much prefer the home hospice experience.

God's best to you and yours
James

wraithmb
wraithmb 2014-06-09 09:13:34 -0500 Report

Here's to the improvement in care! I'm glad to hear that you will be in a better situation. You sound a lot happier! Hopefully, you get to keep the same aid! It's always tough to lose someone you have become close with.

TopazDee
TopazDee 2014-06-09 06:54:59 -0500 Report

I am so pleased to hear you are getting the love and help you need I can tell your mood is much lighter that a burden has been taken off of your shoulders, the relief makes me want to cry happy tears for you, please keep in touch you can even send me private emails if you would like to, so wish you were on Skype so we could get to talk.
Stay Safe my friend xxx

vrswesley
vrswesley 2014-06-09 12:02:47 -0500 Report

I might be on skype just never tried it..think i have it..if I dont i can get it…my only fear is I wont beable to die here..should be able to..probably will but…Im a worrier.so…but so far I like these people.. Im waiting for the intake nurse right now.

TopazDee
TopazDee 2014-06-15 18:08:13 -0500 Report

Sorry for delay in replying but been in hospital for a week still have pain nothing shown up on ultra sound, MRI or CT scans so no nasties to be operated on sent home in same pain with appointment to see Gastroenterologyst in pipeline.
If you are on Skype you will have a Skype user name mine is Dee Williams.
If your hospices are he same as ours you will be able to stay there forever, hope every thing worked out as you want.
Love and light xxx

vrswesley
vrswesley 2014-06-15 20:33:24 -0500 Report

have to have friends to stay with me at the point I cant take care of me anymore-hospice doesnt provde that…I believe I have found four friends who with do it…Im setting up a room in my living rm that will be private for them to take turns…pray they can all do it. cause if they cant Ill have to go inpatient…and I dont want to!!!!!

Dr Gary
Dr GaryCA 2014-06-08 19:52:33 -0500 Report

Hi vrswesley,

Thank you for the update. I have know others in your situation, and becoming part of hospice really made a difference in terms of the care and services that were available to them. So I understand what you mean.

I am hopeful you will get the help you need. Please keep in touch with us.

Gary

vrswesley
vrswesley 2014-06-09 20:59:18 -0500 Report

right now , Im laying on my bed at my home…have oxygen w/o my c-pap! very happy about that. more is coming..soon

vrswesley
vrswesley 2014-06-08 20:34:15 -0500 Report

plan to… keep in touch…I knew hospice was the way to go from day one. just been waiting for someone to decide to let me into hospice. …knew they would take good care of me.. just needed..them to realize…how sick i am.